Author Topic: Newbie to this Forum  (Read 4803 times)

Crabcakes

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Newbie to this Forum
« on: June 11, 2009, 02:56:05 PM »
Hi everyone! I was diagnosed with Sjogren's yesterday, though I had long suspected I had it. Severe flares are new however, and very hard to deal with. Have a referral to a rheumie, but have not yet been. I am partially stunned to get the diagnosis, and partially relieved to have a name tot his bucketful of symptoms.

I hope to give and get support and friendship here!

I live in Phoenix, AZ, but travel a lot to Colorado, where my daughter lives. She has MS and we go there to help her out a bit so she can rest. Looks like we will be caring for each other!  :P

I am looking forward to getting to know you!

Leisa

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Re: Newbie to this Forum
« Reply #1 on: June 11, 2009, 03:38:00 PM »
Hi Crabcakes :D. Welcome to the sight. I'm a newbie also and have found this sight to be very helpful! No cures or remedies but great support and friendship. We all have varying degrees of this horrible disease as you will find out as you read all the posts. Just know you are welcome here and if you eed to rant, research or cry, we are all here for you. Also a great place for a good laugh too. Like someone said, If we could'nt laugh we would all go insane ;D.
                                                                                                          Welcome, Leisa

Linda196

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Re: Newbie to this Forum
« Reply #2 on: June 11, 2009, 04:56:37 PM »
Hello and welcome, Crabcakes.

I hope you find the support and friendship you're looking for, this is definitely the place for it!
Sounds like you have some experience with Autoimmune diseases, and I'm glad to hear that you and your daughter can provide help and support for each other, just don't either of you over do it!
Please check out our home page at http://www.sjogrensworld.org/index.html {{INCLUDES A LINK TO AMAZON SHOPPING!!}}
; and live chat at https://kiwiirc.com/client/irc.dal.net/#SjogrensWorld

Pisces24

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Re: Newbie to this Forum
« Reply #3 on: June 11, 2009, 05:21:59 PM »
Welcome Crabcakes. I am a newbie too having been diagnosed in March of this year. I also believe I have had Sjogrens for some time.

Remember that Sjogrens is just a label the doctors finally found to call it that fits. It doesn't change how you feel except maybe emotionally.  With any severe diagnosis, you go through stages like stages of grief until your mind can accept it.  I went through mine already 2003-2005 when I got shuttled dr to dr, got so many highs and lows, and basically got driven crazy by them though I felt physically good. See I have had "odd" bloodwork since 1998 and by 2003 my gp said it had progressed to the point he wanted answers. 2005 an internal medicine specialist finally decided to call it indolent lymphoma. Finally 2009 an immunologist I saw thought to run a test for Sjogrens due to my 10 yr teeth cavity problem and acouple instances in the past of a swollen partroid gland. BINGO!  I tested very high for SJS both A&B. But it is just a label to me and hasn't changed a durn thing. Still progressive but don't know how fast or severe it will progress as everyone is different. Though I must confess I like the name Sjogrens better than lymphoma!

I have 2nd & 3rd cousins on my mothers side that have various autoimmune diseases so I guess we are more closely related medically that I thought!  I have a 2nd cousin that has the adult MS in MN.  I have several 1st cousins that are snowbirds in Apache Junction and Kingman, AZ and love it there. Except for my plethora of cousins, I have no other close family. I am a midwest gal and love it here though would love to visit Colorado someday.

What kind of flares have you been having? I get the allergy eyes, sinus infections and for 2 days have had hot flashes alot.  Stop in the chat room someday .  Welcome!

Scottietottie

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Re: Newbie to this Forum
« Reply #4 on: June 11, 2009, 05:51:18 PM »
Hi Crabcakes  :)

Welcome to Sjogren's world. I can imagine you're feeling kind of shel;l shocked right now. A mixture between "oh well - that explains why I've been feeling so rough" and "Oh no! I have this for life!"  Pisces is right. You are the same person as you were last week. Nothing has actually changed except you now have a label.

I'm sure you'll get and give support here. It's a friendly site.

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!

Patze

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Re: Newbie to this Forum
« Reply #5 on: June 11, 2009, 06:46:47 PM »
Hi Crabcakes,

Let me also welcome you to the SJS World! 

I also agree with the others, it's good to finally have a tag to what's been ailing you (it sure helps with the medical establishment though! :D), but you are still the same wonderful person you've always been.

Please do stop by often, and I also hope to chat with you one day!

Take care -

Patze
Our home page  http://www.sjogrensworld.org/index.html
Live chats  http://sjogrensworld.org/chats.htm

Everything has beauty, but not everyone sees it - Confucius

The important thing is not to stop questioning ~ Albert Einstein ~

Sero Negative Queen

lynnmarie219

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Re: Newbie to this Forum
« Reply #6 on: June 11, 2009, 07:36:28 PM »
Hi Crabcakes and welcome to Sjogrens World!

Wow...you are very new at this only being diagnosed yesterday....and you found us already...how wonderful!

Read all that you want to here and ask any questions that may come up..someone will always be along to help you out if at all possible. This is a place filled with information, support and friendship...so settle in and enjoy the comapny!

dbab

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Re: Newbie to this Forum
« Reply #7 on: June 11, 2009, 09:16:00 PM »
Welcome Crabcakes  :)

Katybarstool

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Re: Newbie to this Forum
« Reply #8 on: June 12, 2009, 04:03:06 AM »
Hiya Crabcakes

... and welcome from me too ;D

Kathyx