Potential of Transplanted Stem Cells to Mature Into Salivary Gland and Chk cells

[jjj3]

http://clinicaltrials.gov/ct2/show/NCT00023491?cond=%22Sjogren%27s+Syndrome%22&rank=23

This study has been completed (in 2004, apparently).  Did anyone here participate?  Does anyone know how this study turned out?  I'm still crossing my fingers for a better treatment for lack of saliva (hopefully sooner rather than later)!! 

Thanks for any info.
Cathy

[Sjenny]

Cathy:

I sent an email to NIDCR asking for the results of the study - so will await a possible reply.  This looks very promising!

Sue

[jjj3]

Thanks Sue.  You are such an asset to this forum!

Cathy

[Sjenny]

Cathy:

Thanks!  I feel the same way about you!  No word back as yet, after a few days, I will try again.

The study is being done by the National Institute of Dental and Craniofacial Research and here is their Contact Page http://www.nidcr.nih.gov/ContactUs.htm

It is cllinical trial NCT00023491.

I would encourage any forum members to contact them also - there is strength in numbers!

Sue

[Sjenny]

Got caught up on the holidays and lost track of this - but I'm going to get more aggressive about contacting them next week.

In the meantime, what do you think of this?

http://www.ncbi.nlm.nih.gov/pubmed/16522169?dopt=AbstractPlus

Is it my understanding that a combination of blueberry, green tea, catechin, carnosine, and vitamin D(3) stimulate endogenous stem cells to promote healing and regeneration.  Might have some indirect applicaton to us?

Sue

[jjj3]

Hi Sue and everyone,

Thanks Sue for your diligence.  I'm continuing to hope and pray everyday that a cure will be found in the not too distant future.

I've been absent for awhile as I'm dealing with a lot and have somewhat withdrawn as an attempt to cope.  My 13 year old daughter is having a number of health issues, possibly autoimmune.  She goes for testing tomorrow.

I check in periodically in hope that some new therapy or discovery toward a cure can be found.

I still think of you all and miss the interaction.  I hope you are all doing well (as well as possible, that is).

Hello Janna!  I miss you!

I'll post more after Jessica's pediatric rheumatologist appt.

Love,
Cathy

[Sjenny]

Cathy:

I am so sorry to hear your daughter is having health issues - I will pray for you both!

It is so much worse when our kids are ill, we would take their place in a heartbeat. 

I hope the doctor has answers for you.

Love,
Sue

[jjj3]

Thanks Sue,

Jessica has Raynaud's.  The Dr. did a lot of bloodwork.  I should know something within a week.  I hope all the tests are negative.  Thanks for your prayers!

Cathy

[Sjenny]

OK this is what I want to see - except the stem cells from the patient are turned into salivary gland cells and implanted in the parotids (or any gland needed).

http://www.telegraph.co.uk/health/healthnews/4569971/Trials-for-revolutionary-stem-cell-surgery-in-UK-within-a-year.html

Sue