Thanks so much. I thought I had posted about getting an appointment. Mayo refused me at first. But when I told a close friend who lives in NY and is also a physician about it, she was not happy. She instead refused to accept their answer, so she wrote a letter to the head of the neurology dept. And in that letter she told him what she thought was wrong, what tests they had that would help me, etc. and that without help, in her professional opinion I would be dead in a year's time. She then challenged him professionally telling him that she was used to cutting edge physcians in NY and she didn't see how he could not at least do as much as they would. Well he apparently felt he had to do at least that much and told her " with an appeal like that, how can I refuse?" So I'm going. I got my paperwork to fill out from them and telling me my appointment is Dec. 4th. Then she followed up by forwarding a copy of his answer to the head of Rheumatology also. And he said he would talk to the doctor in neurology and he would see me too.
So it looks like I'm going. Do you know what kind of humidier Chloe has?
Billye