Well gang, I have not kept you updated on my infections but I have continued to have them. I was on antibiotic earlier in the year but can't remember that far back. I do know that I had antibiotic in May for Culture of staph from my sputum. I had a really gross sinus infection in July and was on Biaxin. I just never felt really very well but just thought it was from the horrible heat and humidity and being overtired from company.
Anyway, the past month I thought I had yeast coming off and on and had a weird raw throat and increased mucus. Well about 1 1/2 weeks ago it got worse and I just put off going to the doc cause I knew I had my infusion the 1st of Oct and would take a sputum spec along. I ended up in urgent care on Friday the 3rd and talked with my immunologist on Saturday. Today I got a call telling me that I had Klebisella which is another one of those rotten infections that can serious and sort of hang around hospitals etc. Having the low immune system makes me very vulnerable. I am on Cipro and hope that it works.
I was really sick with this one as far as the mucus goes as it went into my throat so much that I felt like I couldn't swollow at times plus it also is in my bronchioles plus my salivary glands. Sooo, I am discouraged tonight as I have been sitting around since last week unable to do anything much. A load of clothes here and there and cook, but that is about it. The bad thing about this is that my hinder is getting fatter all the time. Also, I miss working outside on these nice fall days and I miss being up and about and cleaning house on these cool, rainy, fall days. Fall is my favorite time of the year.
The good thing is that my iimmune system is working some and I know that the infusions help as I don't seem to usually get as sick when the infections come. The hard thing is to get to the doctor without delay as per my immunologist. I have a tendency to downplay my symptoms and wait too long before I go to the doc.Not a very bright thing to do but hope springs eternal and I always think that I will get better.
Also, these doctors just can drive a person crazy. I got a new PCP about 1 1/2 years ago and I am not happy with him. I think he is dumb. It didn't take me long to come to this conclusion but I kept giving him another chance. He really has been ticking me off though. He insisted that he knew about Sjogrens and understood the t cell deficiency etc. He is good about doing the blood work etc when I call and tell him that my Immunologist wants such and such done. But, this last May when I had the MRSA(few bacteria) on culture he wasn't going to treat me as he says that is not uncommon. I told hiim that I did not feel good and finally got a script. He treated me for 2 weeks and my Immunologist told me later that I should have been treated for 3 weeks.
In August I had another culture and awaited results and finally got a letter telling me that culture was negative. When I went in for a visit he proceeded to tell me that I grew out MRSA again. My immunologist was not happy. The other thing that really takes the cake is that he has never felt of my salivary glands and didn't talked himself out of doing a breast exam on me before he did a mammogram. He just is lazy. Thankfully, I do have another doc in my own town who consented to take me and he is really nice and is a good doc. Problem is if I have to be hospitalized I will have to go back to the bigger clinic as I will have to be near my neurologist so she can watch my Myasthenia gravis.
There, that is my story. So, I did not get anything accomplished this summer except go to the doctor and have company for 5 weeks. Also, my hubby is having issues with his blood pressure and his atrial fib and that is more docs appt. Heck, I think we should all get a job doing light cleaning in the doctors waiting room. Take care all. Irish
