Author Topic: The results are negative  (Read 1736 times)

Dejibo

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The results are negative
« on: July 25, 2008, 07:10:44 AM »
hello! and thanks for all of the great support and information while I struggled with this whole new disease process.

After much debate, it has been decided that I DONT have primary sjogrens. The MS center, and the RA MD have been locked into a heated debate, and after many reviews of many records, test results, and findings, it has been decided that I DONT HAVE SJOGRENS primary. IF I have secondary, it doesnt change or add to the course of treatments I am already on for multiple sclerosis. It has been advised to me to NOT do the lip biopsy, since damage can and does occur during tissue sampling. Since it wont change my course of treatment as negative or positive result, there is NO need to do it, and risk the damage.

My MS md and the RA MD have been awesome, and this has been quite the puzzle to untangle. IF I have secondary, I will be working hard to do better things for my poor old dry eyes. I dont really have alot of oral sx, and well, the dry eyes are my worst sx.  there are many things being done to help me with that. I am thinking of going for the upper eye plugs, as well as maybe some restasis.

So, thank you for all the well wishes, support and kindness. For now, I remain trapped on MS island, not sjogrens.

You guys rock!

Scottietottie

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Re: The results are negative
« Reply #1 on: July 25, 2008, 07:53:28 AM »
Hi Dejibo  :)

I'm sorry you're stuck with the MS dx but SjS manifesting itself like that is probably as bad.  the main thing is getting the symptoms treated - and the MS.

I hope you'll still be hanging around here. We'd miss you if you go!

Glad you have good docs.

Take care - Scottie  :)
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