Author Topic: Its me, upset again!  (Read 4858 times)

rosielj

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Its me, upset again!
« on: May 18, 2008, 01:51:21 AM »
I am so upset, I went to my Lupus clinic last week and my usual doctor was not there.I had been sent to the dental Hospital for a diagnosis of S.S in the last few months and they said there after all their tests that I did have S.S
This doctor called me in and was just awful, his attitude from the start was really negative. He asked what was giving me the most trouble and I said the S.S and he said "your not diagnosed with that anyway" I explained that they had said at the other clinic that I was, he then looked at some notes and said "well even if you are it makes no difference" I said it had to me because my teeth are crumbling and all the glands in my neck are up, and the tumor I had removed from my parotid last Sept seems to be coming back in the same area. He just looked at me and said nothing, just smiled at me.
I had been to the GP the day before this apponitment and the receptionist there said they had the results of my recent blood tests (been feeling bad recently and my GP took some blood) She said some of the tests were a bit high and to take them with me to show them at the rheumotology clinic. I got them out and showed this guy, and he said they were all perfect! I felt such a fool! He looked at me again like I was some freak. It's not my fault if the receptionist told me to take the results, I don't understand them! I know it says Serum <abnormal  ESR 20 Borderline, E choli blood test Abnormal, also Urine test has red cells and white cells, and cholesterol is 7.2
Why do some of them say abnormal if they are perfectly fine I don't understand it?
My biggest problem at the moment is a really painful bladder which is ruining my life, I don't do anything anymore because the more I walk around the more it hurts, I have blood in my urine nearly every test I have, and my last visit  to my usual rheumy he said I should be kept in for a 24 hr monitor if it happened again. In the meantime I had also had a ultrasound scan of bladder and kidneys.
I asked this Doc if he had the results of the scan and he had a look and said it was fine, I asked what could be causing so much pain then, and he basically told me it was probably all in my mind! He said sometimes we feel pain thats not really there!
He rounded the visit up by telling me there was nothing much they could do for me and I left, held myself together until I got out, and then hid somewhere quiet and had a good cry!
He made me  feel like some fraud who is making up symptoms for, well for what reason?
I know this pain in my bladder is real, I feel it everyday,why would someone think they had a pain in their bladder if they didn't? I don't want to have it, I want to wake up one morning and feel NO PAIN!
What is it about me that people treat me like this? He made me feel like an attention seeking mad woman, and I know I'm not like that, or am I going mad?why is it always me that Doctors treat like this? whats wrong with me?
I'm so upset.
Love to all
Rosie x

navydad

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Re: Its me, upset again!
« Reply #1 on: May 18, 2008, 04:37:50 AM »
if it were me,, I would collect the urine,, take it to his office and drop it on his desk and ask what is this,, and why is it happening,, as for him saying sometimes we feel pai when it isnt there,, take a hammer and crack his head with it,, and tell him,, sometimes we feel pain when it isnt really tehre,, I have become very jaded of doctors,, No Hon,, your not crazy

rosielj

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Re: Its me, upset again!
« Reply #2 on: May 18, 2008, 05:29:59 AM »
Thank you, thank you, thank you ! I don't feel like I'm crazy,but you start doubting yourself.

Linda196

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Re: Its me, upset again!
« Reply #3 on: May 18, 2008, 05:53:24 AM »
Rosie, you're not crazy, but I have my suspicions about that doctor!

Blood anywhere it shouldn't be is NOT NORMAL! That includes in the urine. Lab tests that state in black and white "abnormal" are not FINE, no matter how a disinterested doctor may choose to read them. A cholesterol level of 7.2 depends on the "breakdown" but if there isn't an LDL level ordered, the total cholesterol is pretty much useless anyway. The "Serum < normal" is a pretty common finding in fasting bloods, and the ESR is high normal, so at least he got those two right!

It sounds to me like it's time to see a new doctor (maybe 2- an ENT about the parotid swelling and a urologist about the bladder issues); and to sent a record to the old one's superior, with copies of the labs, details of your complaints, and a record of his responses.
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lynnmarie219

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Re: Its me, upset again!
« Reply #4 on: May 18, 2008, 06:44:33 AM »
Rosie,

No...you are not crazy! And that "doctor" ought to be ashamed at how he treated you because that was plain wrong not to mention unprofessional. It makes me mad when medical doctors make their patients feel this way...they are supposed to help and heal!

Please find a new doctor and as Linda suggested...a letter to this ones superior would be in order. You deserve to be treated with dignity and respect. Hang in there and good luck finding a new doctor who will do that!

Hugs to you!

Katybarstool

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Re: Its me, upset again!
« Reply #5 on: May 18, 2008, 07:07:47 AM »
Rosie

What a horrible doctor.  I'm wondering if he was the one with the 10% brain that someone else saw recently ;)

Keep your chin up - it can only get better.

Kathyx

susanep

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Re: Its me, upset again!
« Reply #6 on: May 18, 2008, 07:30:10 AM »
Yes please see another doctor. You do not deserve to be treated this way. I walked out on a doctor years ago for treating me like this. I was given the name of a place to call and report him by another doctor, but didnt because by the time I got home this doctor kept calling me to discuss the matter. He knew he messed up. He kept me on the phone 1 h our. Then he said I could come back and see him for a free visit. I said no thanks. I did tell him how he made me feel, and he finally apoligized, but I still didnt want to see  him again. I knew he was just trying to cover himself.

Good luck
susanep
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rosielj

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Re: Its me, upset again!
« Reply #7 on: May 18, 2008, 01:11:48 PM »
Thank you so much all of you, what would I do without you?
 Why do I not have any fight left in me when I encounter people like this, I would never have accepted the way he was if he had been talking to a family member that way, but my confidence seems so low these days that I can't be bothered, or feel too ill to fight my own corner.I also have really chronic iron deficiency at the moment and that is taking my energy away, (suppose he'd think thats normal too!)
It wasn't a fasting blood test as it was just an on the spot random one that the GP took and yes it does have a breakdown of the HDL cholesterol then 7.2 is under the Serum total cholesterol level which I take it is the final reading? We have a bad gene for cholesterol in the family and I am suppose to keep it under 5 so I will be upping the statins if that is an accurate reading, or maybe its higher because it wasn't my usual fasting one? The serum one just reads
 <archived>:Serum <Abnormal>
Volume of specimen Collected N/A specimen description Serum
Don't know what that means?

Anyway it doesn't really matter, its just worrying because the receptionist will probably have made a note to my Doctor that she had sent the results with me to the Consultant so therefore they will be presuming any action needed will be taken by the hospital.
I am so glad that I found this forum or I probably would have cracked up by now!!
Thank you all so much for your replies
Love
Rosie

Patze

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Re: Its me, upset again!
« Reply #8 on: May 18, 2008, 02:47:00 PM »
Hi Rosie,

I'm sorry that you've had to deal with such a turkey of a doctor; unfortunately for us, they're everywhere.  Don't let him deter you from finding an answer for your gland and bladder problems, they are not normal.  Yep, Linda does have a point, can you see an ENT and a Urologist instead of just the one? 

Please hang in there, and as they said in the '70's, keep on trucking! :)

Patze
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irish

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Re: Its me, upset again!
« Reply #9 on: May 18, 2008, 09:29:57 PM »
rosie, I doubt seriously if you are crazy as Linda said, but I think that your doc must have walked into the wrong office. Sounds like he should be working on cars or something that isn't human.

I would suspect that you need to see a urologist or a nephrologist or maybe both. Also, people with autoimmune can have interstitial cystitis and trigonitis that may need some treatment.

Don't feel too badly as I just saw an oral maxillary specialist last week. He had gotten my ct scans and I think that he also called one of the clinics that I had great trouble with and had written a long letter of complaints to. This doctor just sat in his chair and made a few remarks and ended up asking a lot of stupid questions. Anything that I mentioned as a problem he would say "well, that must be stressful" as in "you are one big nut case and I am not even going to try to help you". I had not had that treatment for several years since finding my good immunologist and I was so thunderstruck that I was unable to get my act together and ask intelligent questions. This doc also had one of his assistants come in and stand by the door so I know he thought he needed a witness.

The attitude that we are all crazy and that we should not complain when we are misdiagnosed or not diagnosed is ridiculous. We pay all this money to get medical help and they take our money and run. If we took our car to a mechanic like that we would ask for our money back. Sheeeesh, this makes me so mad.

Hopefully, the next time you see the doc you are able to see a doc you know. It is so hard to be assertive and stand up for ourselves as we get so sick and tired of the same old nonsense. Irish ;D

wordnerd

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Re: Its me, upset again!
« Reply #10 on: May 18, 2008, 10:02:28 PM »
Rosie,

I don't think there's a single person on this board who hasn't been told they have a crazy case of the "crazies".  In fact, I think I'll go start a poll after this and find out!

And then since I'm board and stuck in the hospital (no not the psych ward), I think tomorrow to pass some time I'll start a online support group website for people so radically crazy that the crazy has spread to their blood so that when its drawn it turns the test results crazy so they come out positive when they are really just crazy negative.

But seriously... I have plenty of doctors at this point who don't question that I have very real illnesses, but when I get one who tries to tell me its all in my head I start doubting myself.  It's so programed into me that in the presence of a doctor suggesting its all in my head it never occurs to me to try and argue or tell them off and refuse to pay the bill.  I need to retrain myself to be just as assertive with doctors as I am with everyone else who treats me poorly.  I still haven't done anything about my former primary doctor who was "treating me" with a textbook approach to treating somatic disorders.  I wish I could work up the courage to send her the bill for my current hospital stay with an attached letter stating that I expect her to pay for my care until it equals every cent I ever paid her to waste my time convincing me I was crazy instead of getting treatment that could have kept me out of the hospital in the first place.

Ditch that useless doctor and get one who listens to you and believes you.  And if you demand all of your money back you will be my hero!

Take care!

-Lauren

EDIT: You can go take the poll here
« Last Edit: May 18, 2008, 10:15:37 PM by wordnerd »

Linda196

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Re: Its me, upset again!
« Reply #11 on: May 19, 2008, 05:44:02 AM »
Rosie, I'm not sure how accurate a non-fasting cholesterol level is, maybe it should be repeated under the proper circumstances?

http://bodyandhealth.canada.com/channel_section_details.asp?text_id=2726&channel_id=151&relation_id=20119 has excellent information about the interpretation of cholesterol levels, but what it boils down to is; total cholesterol isn't a relailable number to base treatment on; LDL can be used for a basis for treatment if it is over 6.0; but the best value to decide treatment on is the ratio of total cholesterol to HDL cholesterol. It is a number calculated by dividing the total cholesterol by HDL-cholesterol (TC รท HDL/C). This ratio is a better measure of heart disease risk than is total cholesterol.

Lauren, I'm one of the very lucky few who hasn't been told by their doctor that "it's all in your head". Funny thing is, I've always assumed that whatever was ailing me was something I could think my way out of...I'm the one who thought it was all in my head! My doctors have had to prove to me that I had physical ailments! I still think it's pretty suspicious that things I'm not fond of, like doing dishes or sweeping the floor, cause me more pain than things I enjoy, like playing at the computer!
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