3 years ago I had this strange word thrown at me, sjogrens. I have never heard of it, and it scared me even more to know my mom is a nurse and she wasn't familiar with it either. I didn't know anyone with it. Many times I asked, why me, I'm on in my 20's. and there no cure?!?! Its very scary. I still am not completely comfortable with it, therefor I don't tell anyone that I have it. Its my secret, my b/f thinks I'm crazy but I just don't want people to know, I'm afraid they will look at me or treat me differently. (which inside I know thats not the case) Maybe when I am more comfortable with it, I will feel more comfortable telling people. But until that time comes, I'm extremly thankful that sjogrens world exists.
I'm sorry that you have to deal with the not know everyday how you will feel and all the terrible things that this brings, but the same time, its nice to know that I'm not alone.
I just wanted to take a moment to thank all of you from the bottom of my heart for being here, here to support, here to answer and most impt. here to listen and comfort.
Thank you.
Joyce