Author Topic: Elise's Diary  (Read 105139 times)

Pooh

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Re: Elise's Diary
« Reply #60 on: January 23, 2008, 11:18:35 AM »
Craig,

Scottie is so right.  Elise will grow up to be a kind, caring and loving young lady.  How could she not, with her Dad and Mum taking such great care of her.  Children learn by example and hers have been exceptional. 

I know exactly how she feels, lol, with you watching over her so closely.  ;D  My family will do the same to me when I'm ill or down with something.   I feel like I'm in a fish bowl. :D  But I know as Elise does, it's only because we are loved so. 

Take care and say hi to Elise.

Hugs and God Bless,
Pooh

elise

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Re: Elise's Diary
« Reply #61 on: January 24, 2008, 11:04:06 AM »
thank you everyone,
love elise
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itssue

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Re: Elise's Diary
« Reply #62 on: January 24, 2008, 04:20:44 PM »
Elise,

We may have never met you, but we feel as if we know you, and of what we know, we know we all love you. And, with all the love and good wishes coming from your sjogren's buddies to you, I'll bet you'll be up and chipper in no time.

Stay strong, sweetie!!!

{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}

Sue

ktfabian

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Re: Elise's Diary
« Reply #63 on: January 24, 2008, 04:22:19 PM »
Elise-

I have a question totally unrelated to health (as if there could possibly be such a thing!) I noticed when your Dad posts, there's a picture of whom I believe is John Bonvi. Is that what your Dad looks like, what you Dad Wishes he looks like, or what YOU wish your Dad looked like? 

Just curious! I often live to see who people use as their Avitars. I haven't been brave enough to choose one yet, but I'm sure it would contain at least one cat as a I have 6 living with me now.

Hope you're having a good day, feeling like a kid and finding some fun to be had,
Tracy
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55yo Sjogren's, Fibro, Selective IgM Def., back pain - fused L3/4-L5/S1,  Costochondritis, Achilles tendon tear,  cluster headaches
Plaq, Medrol, Vit D, Arava, Rituxan, Mobic, Evoxac, Tumeric 1000mg daily, Cymbalta, Fiorcet, Klonopin, Soma, pain med.

craigmosley

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Re: Elise's Diary
« Reply #64 on: January 25, 2008, 07:23:53 AM »
ktfabian.......................i wish  ;D

Methyle Pred and Methatrexate today.............through a canular as her portacath is still a bit bruised.  :)

ktfabian

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Re: Elise's Diary
« Reply #65 on: January 25, 2008, 05:11:33 PM »
Elise-

Once again, you're much stronger than I am.  I couldn't handle methotrexate - it made me too sick. 

I'm on prednisone (yes, I'm the one with the BIG belly and BIG bathing suit) and am now trying Arava.  I hope to have another infusion of Rituxan soon, as it makes me feel better.

I hope the bruising goes away and I'll wish for a visit from Bon Jovi for you (I wouldn't mind seeing him myself!), but I don't think either of us will have much luck with this wish!

Keep on being strong! Tracy
________________________________________________
55yo Sjogren's, Fibro, Selective IgM Def., back pain - fused L3/4-L5/S1,  Costochondritis, Achilles tendon tear,  cluster headaches
Plaq, Medrol, Vit D, Arava, Rituxan, Mobic, Evoxac, Tumeric 1000mg daily, Cymbalta, Fiorcet, Klonopin, Soma, pain med.

Rania

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Re: Elise's Diary
« Reply #66 on: January 26, 2008, 03:45:07 AM »
A gentle {{{{{ HUG }}}}} for you, Elise. :)

Rania

itssue

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Re: Elise's Diary
« Reply #67 on: January 26, 2008, 11:34:36 AM »
Elise,

Just wondering, do you like Jon Bon Jovi or is it your dad or both of you???  I think he is a doll and I like him and his group, and I'm part of the senior age groupie section.  Oh well, I guess you never get to old for good music.   ;)

Sue

craigmosley

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Re: Elise's Diary
« Reply #68 on: February 01, 2008, 12:54:25 PM »
What a day........... ???

Got there at 9am...........they couldnt find the portacath  ???
No doctor around to send her for an x-ray to find it...................

Had Canular for her 1 hour MethylePred.....................left at 5pm !! ???

Not a happy bunny !! >:(

Pooh

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Re: Elise's Diary
« Reply #69 on: February 01, 2008, 01:04:09 PM »
Craig, did they find the portacath?  How is she doing now?  Don't leave us hanging, I hope she is alright.  I know it must have been a horrible day for her.

Please give her a gentle hug for all of us.  I hope there is light at the end of journey soon.

Hugs and God Bless,
Pooh

craigmosley

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Re: Elise's Diary
« Reply #70 on: February 01, 2008, 01:31:49 PM »
No........they havnt found it...................they decided to wait untill next thursday (when she goes for her Goblins) then give her an x-ray..........they think that she is still a little swollen and thats why they cant find it...........

How is she now ???..............asleep.......................she was fed up with everyone poking at her.

The best bit is that when we met a new specialist they wrote her a medication chart and i belive that i am being trained to inject the methatrexate......the MethylePred stops on Feb 15th and that just leaves the "Goblins" once a month !! >:(........................BOY am i mad..................Iv just about reached my limit  >:(

A phsyo came round to see her last week when i had nipped for a coffee and wanted Elise to lift her arms and things.........i was Fuming !!

Elise told her where to go !! :o ;D ;D................"Thats my girl" ..............LMAO

Pooh

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Re: Elise's Diary
« Reply #71 on: February 01, 2008, 03:10:18 PM »
WAY TO GO ELISE!!!! Don't you let them get to you girl.  You stick up for yourself.   :D :D ;D

Hang in there little one, there be better days coming I'm sure.   ;)

Take care Craig and stick to your guns.  Don't let those medical heads walk all over you. 

Hugs and God Bless,
Pooh

(((((((((((((((HUGS - Elise)))))))))))))))))))))))))))))


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craigmosley

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Re: Elise's Diary
« Reply #72 on: February 02, 2008, 01:56:57 AM »
BUT !!............having said that......................Elise woke me up this morning  ???

She got out of her bed............"Walked" to my bed room and demanded i got up and take her down stairs !! :o
She is now playing doctors (of all things) with her sister.

All the upset and bad feelings have gone out the window !!

Linda196

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Re: Elise's Diary
« Reply #73 on: February 02, 2008, 05:49:26 AM »
Good girl Elise (maybe not waking Dad, but carrying on!)

We just may have the beginnings of a wonderfully caring doctor in our midst...having faced all that she has, and knowing so much of the frustration, pain and disability that patients face, when she is well, she'd make a great care giver.
Please check out our home page at http://www.sjogrensworld.org/index.html {{INCLUDES A LINK TO AMAZON SHOPPING!!}}
; and live chat at https://kiwiirc.com/client/irc.dal.net/#SjogrensWorld

lynnmarie219

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Re: Elise's Diary
« Reply #74 on: February 02, 2008, 10:55:13 AM »
Good to hear that today is a little better for you Elise...hang in there! We are all here thinking about you and rooting for you!

Take good care of yourself.......sending another gentle hug to you....