Author Topic: Anyone have an autoimmune response to the COVID vaccines?  (Read 438 times)

Sweetcheex76

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Anyone have an autoimmune response to the COVID vaccines?
« on: April 29, 2021, 09:23:16 AM »
I had both my Pfizer vaccines in March. First one, no problem. The second one, the day after, I felt like I was starting a flair and I’ve had all the typical flare symptoms since: extreme dryness of eyes and mouth, fatigue, joint pain, incredibly thick mucus and saliva, pain on the right side of my tongue and whenever I flare or am catching a virus, I feel like I am vibrating inside nonstop. It’s been really rough and I was thinking that the vaccines are continuing to cause an autoimmune response. This morning, I had an appointment with my doctor, told him my symptoms and he thinks it is an autoimmune response to the vaccines. And, the response is very typical for me- if someone gives me a cold, they get over theirs in a week, I get the cold for 6 weeks which is why it makes sense that I am still reacting to the vaccines. I’m wondering if anyone else has had problems after being vaccinated? Thanks.
Sjogren's, Trigeminal Neuralgia, Reynaud's, Fibromyalgia, osteoarthritis, ocular rosacea, rosacea, endometriosis, ADHD, anxiety, depression, pre-diabetes.

Plaquenil, Cevimeline, Restasis, Metformin,  Vyvanse, Xiidra, prescription ibuprofen, Vitamin D

SjoDry

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Re: Anyone have an autoimmune response to the COVID vaccines?
« Reply #1 on: April 29, 2021, 01:33:57 PM »
The only weird thing that happened after 2 Moderna vaccines is that I have a perpetual cramp in my right calf. The cramp started the day after my 2nd vaccine and has not stopped. It is not red, warm to touch or inflamed, but still has constant pain. My son has an employee that has the exact same issue.

Crazy, crazy.
SjoDry
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Female 55 y/o; SJS Primary; CVID; Autonomic Neuropathy: Chronic Digestive/G.I. issues; Leukopenia;Tachycardia; Bronchiectasis; High Blood Pres; R.A.;Chronic Pain; Sub~Q IVIG infusions~Hizentra; Plaquenil; Restasis; Gapapentin; Breathing/nebulizer meds; Pain meds;

ghostkiwi

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Re: Anyone have an autoimmune response to the COVID vaccines?
« Reply #2 on: April 29, 2021, 01:36:37 PM »
I?m going to get my first Pfizer shot on Saturday. And I?ve actually been really worried about getting it for that reason. The last vaccine I got was a dtap booster a year ago and it made me flare really bad and I feel like my symptoms have yet to get back to where they were before I had had it. So I?d love to hear other people?s reactions with first and second shots.
25 years old, Sjogren's, Syncope, chronic parotitis, Anemia, Pinched nerves in Neck, arthritis, Plaquenil, Methotrexate, Evoxac, Triamterene-HCTZ (for potential Meniere's Disease), Vitamin B 5, Iron Supplements, Restasis, Lotemax, artificial tears, traumeel, arnica

Way2dry

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Re: Anyone have an autoimmune response to the COVID vaccines?
« Reply #3 on: April 29, 2021, 03:08:07 PM »
So sorry to hear this happened to you too.  The day after my second Pfizer vaccine shot in early March, I woke up with extreme fatigue and severe flare symptoms.  It was as if someone had flipped a switch.  The fatigue from the shot went away,  but my flare symptoms got worse.  I am so dry I have no tears or saliva and new problems seem to crop up almost every day.  I?m miserable physically and mentally because before the second COVID shot I had been doing quite well.  I am worried that this flare might not settle down because of my autoimmune response to the vaccine. 

Hope your flare settles down and you feel better soon.
Primary Sjogren's dx'd 2013 on symptoms. Blood tests neg. Breast cancer 2013. Dry everything. Tinnitus, GERD,Tamoxifen, vit d, Restasis & Evoxac stopped working, COQ10, fish oil

jazzlover

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Re: Anyone have an autoimmune response to the COVID vaccines?
« Reply #4 on: April 29, 2021, 09:11:54 PM »
Research what Dr Tenpenny says about the V before getting one. You may have to find her on Rumble since you tube censors everything truthful.
Mast Cell Activation Syndrome (MCAS), Salicylate Sensitivity,  Interstitial Cystitis,  gluten intolerance, Raynaud's, Sjogren's, A-fib; cytomegalovirus, recovered from Lyme disease

meirish

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Re: Anyone have an autoimmune response to the COVID vaccines?
« Reply #5 on: April 29, 2021, 10:39:06 PM »
I had the Johnson vaccine and for the next five days I was very fatigued and slept a lot. I also had the aches and just lack of interest in doing anything as I felt ill...like the flu. I had a little upset stomach and the sniffles for 24 hours or so which is very rare for me. It seemed like I improved some but not back to my old self. Then I started feeling so very exhausted and just wanted to take a lot of naps. I didn't feel fluy then but couldn't quit figure out what was going on.

THe 23rd of March I a toe amputated which wasn't a hard surgery and I was awake through the whole thing. I had to sit around a lot for several weeks and was tired but had to walk only to bathroom and to get meals and the darned boot was heavy and wore me out also. I get IVIG and they have been moving the days further apart due to my kidney disease so I went from every 4 weeks and then every 5 weeks xs 2 and then every 6 weeks the last time. I was thinking that my fatigue was from either met flu shot or from having my IVIG so far apart.

Well, finally had the IVIG and after the 500 mgm of solumedrol IV prior to infusion I was feeling better and then I just got stronger every day. Took about a week to get back to normal. I was sort of sideswiped by this event but do think in hindsight that the vaccine kicked my autoimmune issues up and it took the IVIG and steroids to get me back.

I went with the Johnson vaccine specifically as it is the old DNA method more or less and I felt it would not be as hard ono my system. I tend to react to medications more than normal people. I knew that I had taken the regular flu shot for many years so felt more comfortable with the Johnson vaccine. My gut feeling was that I would take the Johnson vaccine but not the Pfizer or Moderna. I have to scientific info to make me think that way but just my own research and decision. We all have to do what we think will work for us. Good luck to all of you. This has been a hard confusing year for all of us.. meirish

araminta

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Re: Anyone have an autoimmune response to the COVID vaccines?
« Reply #6 on: April 30, 2021, 03:45:35 AM »
Very sorry to hear about those unpleasant symptoms, of course we never know for sure if it's the jab causing them or they would have arrived anyway.   But just to say I had no problems with my two Pfizer jabs, other than a sore arm.

We are all different in how we react to things, but in my opinion the risk of getting Covid is generally worse than that of side effects.
Dry eyes (MGD), nose, mouth, labyrinthitis, rashes, dry skin (occasional eczeme), mouth ulcers, constant but fluctuating fatigue.  Blood tests and Schirmers negative,no Sjogrens dx yet.   Flax oil, multivitamins,  saline nasal spray, Hylo forte, Lacrilube, organic castor oil for eyes, moisturisers.

Sweetcheex76

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Re: Anyone have an autoimmune response to the COVID vaccines?
« Reply #7 on: April 30, 2021, 07:18:31 PM »
Way2Dry- your issues sound exactly like mine. I can’t remember the last time I had a flare and wonderful for so long. The fatigue and mouth dryness are unbearable. I have to drink something to swallow food. I’m just hoping at some point that it resolves itself but it’s been almost a month and it’s never been this bad. Hope you feel better soon.
Sjogren's, Trigeminal Neuralgia, Reynaud's, Fibromyalgia, osteoarthritis, ocular rosacea, rosacea, endometriosis, ADHD, anxiety, depression, pre-diabetes.

Plaquenil, Cevimeline, Restasis, Metformin,  Vyvanse, Xiidra, prescription ibuprofen, Vitamin D

SjoGirl

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Re: Anyone have an autoimmune response to the COVID vaccines?
« Reply #8 on: May 03, 2021, 03:21:28 PM »
About two weeks after my first shot I was doing some home organizing on a Saturday. This was typical stuff but I did a lot of it but then also took a break the next day and took a stroll outside and had a relaxing day after working hard. The following day I felt like someone had beat me from my shoulders down to my ankles. I had not been in that much pain since I first became ill and nothing helped it.

I happened to have a rheumatologist appointment around this time. She said doctors were seeing patients who were experiencing delayed reactions as much a one to two weeks after their shot. I ended up doing a Medrol pack which took care of it. I had no issues after the second shot.
Raynauds, sero-negative RA, Primary SjS, osteopenia, degenerative disc disease, disc protrusions,stenosis, Carpal tunnel,  poly neuropathy, myoclonus, hiatal hernia, esophagitis, viral infection, Leukopenia. Restasis, Vitamin D, B12, Evoxac, Lanzoprezole, calcium acetaminophen.

Way2dry

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Re: Anyone have an autoimmune response to the COVID vaccines?
« Reply #9 on: May 04, 2021, 07:55:19 AM »
My eyes have been affected the worst.  Just saw my eye specialist who told me several of his Sjogren?s patients got worse after the second COVID shot.  He said some of them improved after 3-4 weeks after the shot.  I?m really hoping this will be the case for us.
Primary Sjogren's dx'd 2013 on symptoms. Blood tests neg. Breast cancer 2013. Dry everything. Tinnitus, GERD,Tamoxifen, vit d, Restasis & Evoxac stopped working, COQ10, fish oil

jazzlover

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Re: Anyone have an autoimmune response to the COVID vaccines?
« Reply #10 on: May 05, 2021, 09:58:33 AM »
 :'( :'(
Mast Cell Activation Syndrome (MCAS), Salicylate Sensitivity,  Interstitial Cystitis,  gluten intolerance, Raynaud's, Sjogren's, A-fib; cytomegalovirus, recovered from Lyme disease

Kathy57

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Re: Anyone have an autoimmune response to the COVID vaccines?
« Reply #11 on: May 05, 2021, 07:09:24 PM »
Dear friends,

I took the Johnson and Johnson vaccine and I had a sore arm and some fatigue afterwards.  I feel a wonderful relief after having received the vaccine.  I feel  like it has given me back my life again.  I?d do it all over again.

Kathy
62 yr old female - Diagnosed Sjogrens Aug. 1st 2014.  Plaqinil, Evoxac, Prevacid, Lexapro, Hypothyroid, Esophagel Reflux, Gastritis, Barretts Esophagus, failed sinus surgery with 3 nasal septal perforations.  (Can't see it from the outside)  Asthma, albuterol, Dulera, Nebulizer, Osteoporosis.