Author Topic: Vulvodynia (vulval pain)  (Read 423 times)


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Vulvodynia (vulval pain)
« on: March 22, 2021, 03:10:07 AM »
Anyone experience this kind of pain? And what did you have to do to cure it?

I have been in pain off and on for over a month and it seems to be getting worse. I do have an appointment with a specialist a urogynecologist on April 1st and I don't know if I'm going to last that long. I have been using vagicain cream and anbesol off and on to help with the pain iand t's not very long lasting relief.

I heard a TENS unit might help with this type of pain, idk...

So if anyone has any suggestions or any type of treatment that they use for it, if you could let me know before my appointment I'd really appreciate it.

I am in misery almost 24 hours a day😩. It wakes me up in the middle of the night all throughout the night so I'm just exhausted from lack of sleep and pain.🥱😵

65 Years Old - Diagnosed in 2008 - Secondary Sjogren' s, HypoThyroid, Fibromyalgia, osteoporosis, RA, , Pre-syncope, Hypermobility syndrome, Arthralgia, Insomnia, neuropathoy, dry mouth, eyes, low BP & Vit D, Citrulline Antibody, orthostatic hypotension, ulcer, glaucoma, brain fog, and depression


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Re: Vulvodynia (vulval pain)
« Reply #1 on: March 23, 2021, 08:32:07 AM »

I am sorry you have this condition,  were you diagnosed by  your primary doctor. Does heat help? Is it better with walking?

I had something similar to this. Back 20 years ago, which would make me in my 40s. My gynecologist diagnosed me with pelvic congestion. It was most painful with sitting , standing and laying better with walking and moving. I would try to sleep at night with a heating pad folded and placed between my thighs, it gave some relief.

They could not tell me why I had it. I was given I think an anxiety help me cope with it. I believe I was also prescribed birth control pills.

medications: synthroid- Cymbalta- plaquenil- lots of supplements

***Lord help me to be the person my dog thinks I am***


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Re: Vulvodynia (vulval pain)
« Reply #2 on: March 24, 2021, 05:47:41 PM »
Sorry to hear that you are suffering from this. Really can be miserable I bet. This is another issue that would benefit from a visit to a neurologist. WE have had people on here before who have had this and generally it is from inflammation in nerves in that area.

The one nerve they mention is the puedental nerve...don't know if I spelled that right. Here is hoping that you can get some relief. Good luck. meirish


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Re: Vulvodynia (vulval pain)
« Reply #3 on: March 25, 2021, 08:49:58 PM »
Consider looking at your diet. Big correlation between that and oxalates.
Mast Cell Activation Syndrome (MCAS), Salicylate Sensitivity,  Interstitial Cystitis,  gluten intolerance, Raynaud's, Sjogren's, A-fib; cytomegalovirus, recovered from Lyme disease


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Re: Vulvodynia (vulval pain)
« Reply #4 on: April 05, 2021, 03:15:00 PM »
i had vulvodynia and had terrible years but it can be cured. after I have seen many gynecologist I found one who has a specialization on this . he gave me a cream with hormones and I made tens. after a few months it went away completely. I still use the hormone cream that was changed in the years. when I feel pain is coming back I start tens because I bought the little machine to do it by myself so I do not need to go to the doctor to do it
60,primary sjs, diverticulosis,ibs,atrioventricular blocks 2 degree first type, acid reflux.
omeoprazole, vit c, flack seed, omega 3, b complex, nac,systane ultra, pineapple seeds