Author Topic: elevated creatinine level  (Read 1025 times)

meirish

  • Sr. Member
  • ****
  • Posts: 253
elevated creatinine level
« on: November 21, 2020, 08:00:14 PM »
There is a purpose for my long post. I felt that it was something that people might find would help them with their kidney issues. Also, this has been a big issue for me as I have been trying to get doctors to understand that autoimmune issues can cause kidney problems. So many doctors don't know that much about autoimmune issues and it is always so hard to get them to take us seriously. I am diabetic so this has also been a consideration.

Actually since diabetes is always the first thing that docs think of the kidney specialist blamed my kidney issues on it. Went back to my primary later and he said that he felt that diabetes wasn't the cause. I asked him what then? He mentioned infection and I pointed out my gram negative sepsis or bad urinary tract infection that cause me to have bacteria in my blood. This is a very serious infection that required 5 days hospitalization with IV antibiotics. Nothing to fool with as high mortality rate.

Doc went back and checked all my creatinine levels since 2018 and found that after my bad infection my creatinine levels went up and then would go up and come back down but not down to the normal range as before. So, he felt that was the reason. He said that my blood sugars have been under control for so long. I doubt the kiddy doc even looked at my blood sugars.

The interesting thing was my primary said that with diabetes the creatinine will rise a little every year until a person has bad kidney disease or failure and needs dialysis.Could take 20 years.  With the problem I had which is called Acute Tubular Necrosis, the creatinine will rise suddenly and stay pretty much above normal. If a person has a really bad injury to kidneys  (like infection or drug injury, etc.) they can also end up with renal failure and need dialysis or they can die. Some antibiotics are bad for kidneys also.

Doc said that since I was doing a pretty strict low sodium diet plus watching potassium and phosphorous that my creatinine levels may come down some over time. I was glad to hear that. However, I did something really dumb last year and started drinking diet Coke. I have since discovered that it is much worse for kidneys than regular Coke and I gave it up about 4-5 months ago.

I can have diet 7-up or clear sodas. I can have Zevia which is a carbonated drink that is not registered as a soda but more of a nutritional drink. Zevia has many flavors and uses Stevia as the sweetener.  It has no sugar, potassium or phosphorous in it and uses citric acid to give it the zing. I usually dilute it with water or carbonated water to lessen the zing. If I drink it often I get a acid reflux from the acid. It has no dye in it either and is clear in color.

The good thing about my diet is that I have lost 15 to 18 pounds and hope to lose some more. It is easier on the blood sugars and the kidneys so that is good. but I really have to leave out a lot of food I love. I found a popcorn that is 70 grams of sodium for 3 cups so that makes me happy. Have to read labels like crazy.

So, just some info....always a learning curve with all the health issues that can come up and especially as we get older. Hope some of this is of use to you. Good luck and Happy Thanksgiving.   meirish

Yikes, I redid this and it is still long. I was born talking I think!!








« Last Edit: November 22, 2020, 06:55:23 PM by meirish »

Scottietottie

  • Global Moderator
  • Hero Member
  • *****
  • Posts: 9210
Re: elevated creatinine level
« Reply #1 on: November 24, 2020, 04:36:27 PM »
Hi  :)

I had routine blood tests last week and was called back for another blood test today. Creatinine level too high and GFR too low.

No diabetes here but I'm waiting for the results and then a phone call next week to see what the GP actually has to say about it.

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!

meirish

  • Sr. Member
  • ****
  • Posts: 253
Re: elevated creatinine level
« Reply #2 on: November 24, 2020, 09:14:49 PM »
Scottie, When you do the research you will find that they have charts that show age brackets usually 5 years at a time and what the GFR should be. Of course, this is an estimate but it does give you the knowledge that our GFR goes down as we get older. Good luck. meirish

Carolina

  • Hero Member
  • *****
  • Posts: 5831
  • —if it ain't one thing, it's another." Roseanne R.
Re: elevated creatinine level
« Reply #3 on: November 25, 2020, 06:03:21 AM »
i am at stage 3a (of 5 stages) of kidney health.
 
https://www.kidneyfund.org/kidney-disease/chronic-kidney-disease-ckd/stages-of-chronic-kidney-disease/

I have been at stage 3 for 10 years at least.  I'm now 78.

There is no medication for this.  I understand this is considered normal for my age.

Elaine
Female-Elaine,79-CVID-pSJS-WMD (Eylea) C-PN-CAD-Osteoarth-SFN-Knee/Shoulder Degeneration-SIBO-Act.Purpura-Tinitus-Meniere's-Hiatal Hernia-Achalasia-Hand Surgeries, UTI's-Braces/Walker-IVIG Gamx-Medrol-Gabapentin-Atenolol-Pilocarpine-LDN-Nasonex-Lipitor-Estrogel-D-Mannose-NAC-Om. 3-Naltrexone-Esomep.

Scottietottie

  • Global Moderator
  • Hero Member
  • *****
  • Posts: 9210
Re: elevated creatinine level
« Reply #4 on: November 25, 2020, 04:42:52 PM »
Hi  :)

well - yesterday's blood test put creatinine back within normal range. GFR still low-ish.  However I got called in for yet another blood test today because my calcium serum and potassium showed up as elevated. Sheesh.

I'll find out their thinking on Monday afternoon when I have a telephone appointment with my GP.

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!

meirish

  • Sr. Member
  • ****
  • Posts: 253
Re: elevated creatinine level
« Reply #5 on: November 25, 2020, 08:54:37 PM »
That is the way I feel Scottie. My creatinine goes up and down but puts me in stage 3 kidney disease. Plus my GFR is quite low..but my potassium, sodium, etc are all in normal range. I don't get it. They say my kidneys aren't bad enough, but...my GFR is low. I think it is very confusing. Hope yours is all ok. meirish

susanep

  • Hero Member
  • *****
  • Posts: 3693
  • Each Day Is A Miracle !
Re: elevated creatinine level
« Reply #6 on: December 01, 2020, 08:37:58 AM »
My last blood work showed my kidney function was a little off as in less functioning, but they don't say much when it's a little off. I don't like that.
susanep
Sjogren's, Lupus, Rheumatoid Arthritis, Hypothyroid, Fibro, Sleep Apnea, Diabetes 2, Asthma, and Gerd.  (Meds I take) Omeprazole, Pilocarpine, Levothyroxine, Effexor, Cpap, Aspirin, Mobic, Prilosec,, Xanax, Restasis, Systane,Vitamin D3, Plaquenil, Gabapentin, Provigil , Advair, Nasonex, and Proventi

Kathy57

  • Hero Member
  • *****
  • Posts: 769
  • Primum non nocere - "First do no Harm"
Re: elevated creatinine level
« Reply #7 on: December 01, 2020, 11:13:00 PM »
Irish,

It was interesting to hear about Diet Coke affecting creatinine levels because my husband loves Coke Zero and his creatinine is too high.  His kidneys have been damaged due to the toxic chemo he took for his cancer.

We are at MD Anderson right now and Jim is being scanned and CT?d, and tested like crazy in preparation for staring a phase two trial for his cancer on Monday.  He has blood work this Sunday and his creatinine cannot be too high to participate in this trial.  I?m going to tell him to knock off the Diet Coke, and to drink more water. His creatinine has been elevated but still low enough for him to qualify.  He has to be able to clear the drugs with his kidneys.

It?s just one more thing for me to worry about.😱. I?m a little worried that they are going to say that something has changed and he can?t participate.  I know it is useless to worry but I think ?worry? might be my middle name right now.

I?ll keep you updated on what happens. 

Kathy

62 yr old female - Diagnosed Sjogrens Aug. 1st 2014.  Plaqinil, Evoxac, Prevacid, Lexapro, Hypothyroid, Esophagel Reflux, Gastritis, Barretts Esophagus, failed sinus surgery with 3 nasal septal perforations.  (Can't see it from the outside)  Asthma, albuterol, Dulera, Nebulizer, Osteoporosis.

meirish

  • Sr. Member
  • ****
  • Posts: 253
Re: elevated creatinine level
« Reply #8 on: December 03, 2020, 05:34:45 PM »
Kathy, Hope all goes well with this latest treatment for your husband. I never drank Diet Coke until last fall and I started drinking it cause I have suffered from nausea for years and appetite issues. I knew that years ago they used Coke syrup for nausea so had the bright idea that maybe coke would help me. Well, I got addicted to the darn stuff and it was hard for me to give it up.

I had been a diet Mt. Dew drinker for years and that has no phosphorous and has potassium and sodium but....I also ate a lot of other stuff with high phosphorus, potassium sodium etc. It is so hard to eat and drink the right foods now days. Almost can't win.

I am drinking Zevia now which is licensed as a nutritional drink I think. No dyes at all, no sodium, potassium or phosphorous. Only has caffeine in a couple of flavors. It also has no corn syrups or sugars and is sweetened with stevia. I find that if I put ice in it and let it sit til some of the fizz settles down I can enjoy it better. It is more expensive but is only med in my household so I just work with the budget. Company says that it is more kidney friendly and the absence of so many of the offending chemicals proves that.

I happened onto an interview of the man who started the company and he told a whole lot of info and made me feel better about drinking it. Owner of Zevia drinks 12 cans a day. Wow!!! Just some extra info for you to meditate on. Women always have to research things...which is very good and shows that we are caregivers in the family. May you have a good trip and good results for your husband I will keep your husband in my prayers. meirish

Kathy57

  • Hero Member
  • *****
  • Posts: 769
  • Primum non nocere - "First do no Harm"
Re: elevated creatinine level
« Reply #9 on: December 04, 2020, 09:44:12 AM »
Irish,

Thanks for your prayers and for your good information.  We found a really nice little apartment that is walking distance from MD Anderson!  We won?t sign on until we know that Jim is 100% in the trial on Monday, but I think we got lucky.

We are staying at the Rotary house right now and we walked over to the building with the apartment to check it out.  Several places will rent short term for cancer patients.  I hope it all works out.

My symptoms have been fairly under control.  Just the usual dryness, fatigue, and constant clearing of my throat.  Don?t think I can shake that.

I?ll let you know on Monday what the news is.  We should know all by then.  We feel so blessed to be able to do this but the unknown always causes me some anxiety. 

Thanks so much for letting me vent and share my worries.  I find strength in knowing that we are not alone and that others are coping well with much worse issues.

Kathy
62 yr old female - Diagnosed Sjogrens Aug. 1st 2014.  Plaqinil, Evoxac, Prevacid, Lexapro, Hypothyroid, Esophagel Reflux, Gastritis, Barretts Esophagus, failed sinus surgery with 3 nasal septal perforations.  (Can't see it from the outside)  Asthma, albuterol, Dulera, Nebulizer, Osteoporosis.

Kathy57

  • Hero Member
  • *****
  • Posts: 769
  • Primum non nocere - "First do no Harm"
Re: elevated creatinine level
« Reply #10 on: December 07, 2020, 09:36:09 PM »
Sjogrens friends,

My husband made it into the trial and we signed onto the apartment!  One less big worry.  We are going home tomorrow and will be back after Christmas.  Going to bed early for a long driving day tomorrow.   So far so good.

Stay safe and stay well

Kathy
62 yr old female - Diagnosed Sjogrens Aug. 1st 2014.  Plaqinil, Evoxac, Prevacid, Lexapro, Hypothyroid, Esophagel Reflux, Gastritis, Barretts Esophagus, failed sinus surgery with 3 nasal septal perforations.  (Can't see it from the outside)  Asthma, albuterol, Dulera, Nebulizer, Osteoporosis.