Author Topic: elevated creatinine level  (Read 226 times)

meirish

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elevated creatinine level
« on: November 21, 2020, 08:00:14 PM »
There is a purpose for my long post. I felt that it was something that people might find would help them with their kidney issues. Also, this has been a big issue for me as I have been trying to get doctors to understand that autoimmune issues can cause kidney problems. So many doctors don't know that much about autoimmune issues and it is always so hard to get them to take us seriously. I am diabetic so this has also been a consideration.

Actually since diabetes is always the first thing that docs think of the kidney specialist blamed my kidney issues on it. Went back to my primary later and he said that he felt that diabetes wasn't the cause. I asked him what then? He mentioned infection and I pointed out my gram negative sepsis or bad urinary tract infection that cause me to have bacteria in my blood. This is a very serious infection that required 5 days hospitalization with IV antibiotics. Nothing to fool with as high mortality rate.

Doc went back and checked all my creatinine levels since 2018 and found that after my bad infection my creatinine levels went up and then would go up and come back down but not down to the normal range as before. So, he felt that was the reason. He said that my blood sugars have been under control for so long. I doubt the kiddy doc even looked at my blood sugars.

The interesting thing was my primary said that with diabetes the creatinine will rise a little every year until a person has bad kidney disease or failure and needs dialysis.Could take 20 years.  With the problem I had which is called Acute Tubular Necrosis, the creatinine will rise suddenly and stay pretty much above normal. If a person has a really bad injury to kidneys  (like infection or drug injury, etc.) they can also end up with renal failure and need dialysis or they can die. Some antibiotics are bad for kidneys also.

Doc said that since I was doing a pretty strict low sodium diet plus watching potassium and phosphorous that my creatinine levels may come down some over time. I was glad to hear that. However, I did something really dumb last year and started drinking diet Coke. I have since discovered that it is much worse for kidneys than regular Coke and I gave it up about 4-5 months ago.

I can have diet 7-up or clear sodas. I can have Zevia which is a carbonated drink that is not registered as a soda but more of a nutritional drink. Zevia has many flavors and uses Stevia as the sweetener.  It has no sugar, potassium or phosphorous in it and uses citric acid to give it the zing. I usually dilute it with water or carbonated water to lessen the zing. If I drink it often I get a acid reflux from the acid. It has no dye in it either and is clear in color.

The good thing about my diet is that I have lost 15 to 18 pounds and hope to lose some more. It is easier on the blood sugars and the kidneys so that is good. but I really have to leave out a lot of food I love. I found a popcorn that is 70 grams of sodium for 3 cups so that makes me happy. Have to read labels like crazy.

So, just some info....always a learning curve with all the health issues that can come up and especially as we get older. Hope some of this is of use to you. Good luck and Happy Thanksgiving.   meirish

Yikes, I redid this and it is still long. I was born talking I think!!








« Last Edit: November 22, 2020, 06:55:23 PM by meirish »

Scottietottie

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Re: elevated creatinine level
« Reply #1 on: November 24, 2020, 04:36:27 PM »
Hi  :)

I had routine blood tests last week and was called back for another blood test today. Creatinine level too high and GFR too low.

No diabetes here but I'm waiting for the results and then a phone call next week to see what the GP actually has to say about it.

Take care - Scottie  :)
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meirish

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Re: elevated creatinine level
« Reply #2 on: November 24, 2020, 09:14:49 PM »
Scottie, When you do the research you will find that they have charts that show age brackets usually 5 years at a time and what the GFR should be. Of course, this is an estimate but it does give you the knowledge that our GFR goes down as we get older. Good luck. meirish

Carolina

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Re: elevated creatinine level
« Reply #3 on: November 25, 2020, 06:03:21 AM »
i am at stage 3a (of 5 stages) of kidney health.
 
https://www.kidneyfund.org/kidney-disease/chronic-kidney-disease-ckd/stages-of-chronic-kidney-disease/

I have been at stage 3 for 10 years at least.  I'm now 78.

There is no medication for this.  I understand this is considered normal for my age.

Elaine
Female-Elaine,78-CVID-pSJS-IC-PN-CAD-Osteoarthritis-COPD-SFN-Knee/Shoulder Degeneration-SIBO-Intertrigo-Act.Purpura-Raynaud's-Meniere's-Hiatal Hernia-Achalasia-IVIG Gamunex-Medrol-Gabapentin-Atenolol-Pilocarpine-LDN-Nasonex-Lipitor-Estrogel-D-Mannose-NAC-Co-Q10-D3-Omega 3-Naltrexone-Omeprazole-

Scottietottie

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Re: elevated creatinine level
« Reply #4 on: November 25, 2020, 04:42:52 PM »
Hi  :)

well - yesterday's blood test put creatinine back within normal range. GFR still low-ish.  However I got called in for yet another blood test today because my calcium serum and potassium showed up as elevated. Sheesh.

I'll find out their thinking on Monday afternoon when I have a telephone appointment with my GP.

Take care - Scottie  :)
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meirish

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Re: elevated creatinine level
« Reply #5 on: November 25, 2020, 08:54:37 PM »
That is the way I feel Scottie. My creatinine goes up and down but puts me in stage 3 kidney disease. Plus my GFR is quite low..but my potassium, sodium, etc are all in normal range. I don't get it. They say my kidneys aren't bad enough, but...my GFR is low. I think it is very confusing. Hope yours is all ok. meirish