Author Topic: Sjogren's doesn't stop other stuff happening!  (Read 949 times)

Scottietottie

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Sjogren's doesn't stop other stuff happening!
« on: August 13, 2020, 08:35:51 AM »
Hi  :)

I'm just in for a moan basically. With the virus on the go - here in the UK, normal hospital stuff is on a big go slow. I have an orthopedic referral in the pipeline somewhere. I referred by a physical therapist last January - but have no word. A different orthopedic Dr - he does feet but wont look at knees apparently - told me I needed an operation on one foot back in February but it's still on hold.

One thing that IS working is getting referrals for possible cancers. The GP has been swift here. I thought I found a lump on one breast. The GP thought she could feel it too. I was seen within two weeks, had a mammogram and and an ultrasound and was sent away with the good news that I just have lumpy breast tissue - but it's healthy.

I had a telephone consultation with a GP this morning. I made the appointment two days ago. I have a brown line down the side of a big toe nail. I emailed photos to them. I thought they may look at it but without seeing the actual toe I'm being referred to a dermatologist just in case it's a melanoma under the toenail. As they are rare - it probably isn't. So I'm going to get to see them within two weeks too. Waiting for a phone call or a letter.

It's on the foot that needs an operation anyway.

Thanks for listening. Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
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Never do tomorrow what you can put off till the day after tomorrow!

MarieB

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Re: Sjogren's doesn't stop other stuff happening!
« Reply #1 on: October 11, 2020, 03:31:08 PM »
Hope that wasn't cancer!  Have you heard anything on it? 
My nails are doing all sorts of crazy things.  Going flat, changing shape.  Yikes
Take care, hope you get the best results possible.
Marie
Diagnosed w/Sjogrens May2014
SSA >8  SSB >8 (0.0-0.9AI)H
Antichromatin Antibodies >8 (0.0-0.9AI)H
Anti-DNA(SS)IgG,Ab/Qn 37(0-19EU)H
Began Plaquenil May 2014

meirish

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Re: Sjogren's doesn't stop other stuff happening!
« Reply #2 on: October 11, 2020, 11:01:39 PM »
Scottie, Just found your post now. So glad your mammogram was negative. It also sounds like you are getting rapid care for your ailments. It is so hard to take care of problems just because of the covid. I am able to do the close by appointments ok but the 2 hour away ones keep getting put off. It all amounts to the need to stay overnight and not feeling as protected as I would in my own circumstances. I would bet that this is a problem for a lot of people. Having to stay in a hotel or motel these days would be worrisome at best.

Home you are getting everything taken care of and that the toe nail was nothing to worry about.

I is raining unexpectantly the post hour and such a wonderful sound and smell. Take care. meirish

Scottietottie

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Re: Sjogren's doesn't stop other stuff happening!
« Reply #3 on: October 13, 2020, 05:43:46 PM »
Hi  :)

Glad to report the toenail was NOT melanoma. Care here seems to be working well for stuff that really needs seen to - but it's not good right now for non life threatening stuff.

I have a knee that seems to be collapsing. I have seen somebody but they can't make up their mind if it's the knee - the foot - the tendons or the muscles that are causing me to walk in really awkward way - however they will see me again in three months.

The mammogram people and the dermatologist were great though and saw me really quickly.

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!