Author Topic: How Many of Us Have Blepharitis?  (Read 2602 times)

A Mom on Spin

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How Many of Us Have Blepharitis?
« on: August 14, 2017, 06:29:16 AM »
My recent visit to a Dry Eye Specialist has me wondering about how many of us have Blepharitis or Meibomian Gland Dysfunction and if it's officially connected with Sjogren's. 

It seems that every eye doctor I see seems to concentrate on these two conditions (supplying the all-important layer of oil to our tears) instead of the underlying condition of not making ENOUGH tears.  Yes I get it, if I don't have that layer of oil, the few tears I make will evaporate immediately, but this last doctor told me that my body WAS making tears because I had salt in the one tear they collected from each eye for the test.  But did the tech actually tell him that she had to wait about five minutes on each eye to prod and gather enough moisture to be considered a tear?

And so he has me using Restasis, the steroid drop, an antibiotic drop (all together, mind you) 6 fish oil pills per day, sleeping goggles, warm compresses, and prescription Avenova for lid and lash hygiene.

Does anyone else out there think that if we made more tears, perhaps our oil glands wouldn't clog up in the first place?  And why is the always-dreaded inflammation word used for these conditions?

Liz
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lorigacc

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Re: How Many of Us Have Blepharitis?
« Reply #1 on: August 14, 2017, 08:01:23 AM »
I am actually having a minor bout with it today (only one eye acting up), and mine is definitely related to my Sjogren's.  Restasis really didn't work for me, the Xidra is a bit better. Also use refresh gel drops, refresh pm...even with ALL of that....my eyes are still bone dry and I still have days like today. My eye doctor is talking about putting plugs in...I will give them a try....what have I got to lose?!
Secondary Sjogrens, Rheumatoid Arthritis, Antiphospholipid Syndrome, Osteoporosis, Vertebral Compression Fractures, Seizure disorder, Neuropathy
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jazzlover

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Re: How Many of Us Have Blepharitis?
« Reply #2 on: August 14, 2017, 11:05:32 AM »
My doc didn't give a name to it, but I'm pretty sure I have this. I was just given a very expensive antibiotic drop which helped clear it up, but only after I did the compresses also. Such a boring thing to do!!

I would say it's all related to Sjogren's.
Mast Cell Activation Syndrome (MCAS), Salicylate Sensitivity,  Interstitial Cystitis,  gluten intolerance, Raynaud's, Sjogren's, A-fib; cytomegalovirus, recovered from Lyme disease

A Mom on Spin

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Re: How Many of Us Have Blepharitis?
« Reply #3 on: August 14, 2017, 12:39:38 PM »
My doc tried to put plugs in, but my ducts were so small, the tiniest one wouldn't even fit.  It's clear I'm not losing tears that way! :'(
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Primary SJS. RA & lupus. Positive ANA, SSA, anti-phospholipid Antibodies. Large and small fiber peripheral neuropathy

araminta

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Re: How Many of Us Have Blepharitis?
« Reply #4 on: August 14, 2017, 01:59:53 PM »
I had this quite badly for a long time, the optician's advice of warm compresses, lid massage and cleaning absolutely did not work.   A member of this forum kindly told me about diluted tea tree oil, which cleared up the blepharitis within a few days.

I agree I think it is probably related to Sjogrens.   I was told my Schirmer test was OK, but I have MGD and my eyes are often red especially by the end of the day.  I have so many of the Sjogrens symptoms, but because the Schirmer test and bloodwork were OK I cannot get a diagnosis.  :(
Dry eyes (MGD), nose, mouth, labyrinthitis, rashes, dry skin (occasional eczeme), mouth ulcers, constant but fluctuating fatigue.  Blood tests and Schirmers negative,no Sjogrens dx yet.   Flax oil, multivitamins,  saline nasal spray, Hylo forte, Lacrilube, organic castor oil for eyes, moisturisers.

Carolina

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Re: How Many of Us Have Blepharitis?
« Reply #5 on: August 14, 2017, 04:42:54 PM »
Diagnosed with Blepharitis in 2010 during a routine eye exam.

Quite a shock.

I don't have a bad case, just sort of ordinary. 

Regards, Elaine
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jazzlover

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Re: How Many of Us Have Blepharitis?
« Reply #6 on: August 15, 2017, 10:08:04 AM »
Great idea on using something natural ...

I'm no longer able to go near any essential oils. They make me very ill.
Mast Cell Activation Syndrome (MCAS), Salicylate Sensitivity,  Interstitial Cystitis,  gluten intolerance, Raynaud's, Sjogren's, A-fib; cytomegalovirus, recovered from Lyme disease

bluegardenia

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Re: How Many of Us Have Blepharitis?
« Reply #7 on: August 16, 2017, 04:58:37 PM »
i deeply suggest u to try hot(very) pads with one drop of tee tree, it clears blepharitis that comes from a tiny super tiny thing that lives among our lids and closes the holes from where oil goes out. sorry i do not remember the name of the thing. i could not open my eyes and within few days it got better and gone. thats what i suggested to araminta
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bluegardenia

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Re: How Many of Us Have Blepharitis?
« Reply #8 on: August 16, 2017, 05:00:25 PM »
Parasites (Demodex eyelash mites) thats what they are
60,primary sjs, diverticulosis,ibs,atrioventricular blocks 2 degree first type, acid reflux.
omeoprazole, vit c, flack seed, omega 3, b complex, nac,systane ultra, pineapple seeds

A Mom on Spin

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Re: How Many of Us Have Blepharitis?
« Reply #9 on: August 17, 2017, 06:02:46 AM »
Ooooh, are they really eyelash mites? 

I've been scrubbing with baby shampoo.  I'm getting out my tea tree oil!
www.mysjogrenslife.blogspot.com
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Primary SJS. RA & lupus. Positive ANA, SSA, anti-phospholipid Antibodies. Large and small fiber peripheral neuropathy

Linda196

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Re: How Many of Us Have Blepharitis?
« Reply #10 on: August 18, 2017, 05:06:41 AM »
Just a couple of cautions:

The skin of the eyelid and surrounding area is extremely delicate, so take care with the temperature of anything applied there. If it's hot enough to cause even slight discomfort, it's too hot.

When bathing or applying compresses, be gentle! Rather than "scrubbing" use mild to moderate pressure, starting at the inner corner (by the nose) and swiping once across the lid to the outer corner, with a cotton ball or something similar, and if you are concerned about any infectious process (bacteria, virus or parasite) use each ball, wipe or whatever ONCE and discard. Compresses should be a clean cloth or gauze dressing, soaked in whatever medium you are using (warm water or medication) at a comfortable temperature, applied for about 10-15 minutes with the head back and no pressure applied, the weight of the compress will be enough to keep it in place.

Generally, the order of application would be: warm plain water compresses to loosen any accumulation, cleansing with whatever solution you choose, medicated compress, application of any internal eye medication like drops or ointments, few minutes rest with eyes closed and slight pressure on the inner corner at the nose to maintain medication in the eye (not needed if you've had punctal plugs or occlusion).

Of course if any doctor's or pharmacists recommendations differ, follow those, they are specific to you and your treatment.
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A Mom on Spin

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Re: How Many of Us Have Blepharitis?
« Reply #11 on: August 19, 2017, 04:35:39 AM »
Thanks, Linda, for the order of treatment. I never knew whether to scrub, warm, or put drops in first.

Liz
www.mysjogrenslife.blogspot.com
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Primary SJS. RA & lupus. Positive ANA, SSA, anti-phospholipid Antibodies. Large and small fiber peripheral neuropathy

heidiaj

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Re: How Many of Us Have Blepharitis?
« Reply #12 on: August 22, 2017, 02:57:37 PM »
I recently saw an ophthalmologist for a consult, & was told I had blepharitis.  After doing some online research, I don't think I have that at all.  I do wonder if these docs see "Sjogren's" & then say...easy diagnosis: "blepharitis."  The one helpful thing I walked away with was the doc's recommendation to use GenTeal Tears gel.  I use Systane drops, but as of late, my eyes have been drier than ever, and this gel does seem to provide additional relief.  I do have heavy eyelids (my dad had them even as a young person), and the ophthalmologist recommended I go for a consult regarding having them surgically repaired.  My dad did end up having to have it done, and, as the ophthalmologist I saw suggested, they would be paid for/covered by insurance if they are impeding your vision.  I had an appointment, but decided to hold off.  My rheumy also referred me for a neurological consult, and I think it is important to pursue that first.  I have had feelings of numbness...almost like novocaine...around the outside corner of my eye.  I also have involuntary closing of one eye at a time, at random.  I notice this seems to happen more when I wake up and when I'm tired before I go to sleep.  Has anyone had symptoms like this that relate to blepharitis, or to some other Sjogren's-related issue?
I'd love to hear any opinions on this.  Thanks, Heidi
Agranulocytosis in '07 led to Sjogren's diagnosis; SS-A = >8.0; SS-B = 3.7; ANA Positive; ANA Titer = 1:32; Pattern: Speckled; RF = 132 IU/ML; Hashimoto's, fibromyalgia; IBS; GERD; on Gabapentin, Levothyroxine, Vitamin D + others