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Author Topic: Saliwell device to increase saliva  (Read 14005 times)

Sharon

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Re: Saliwell device to increase saliva
« Reply #15 on: June 14, 2016, 02:01:17 PM »
Maria- Physicians don't mention many treatments...for example, has anyone's doctors mentioned any supplements to them to improve their AI condition? None of mine have...
As far as the nervous system, not sure about that. This device seems to force the salivary glands to work harder by stimulating them, similar to the results delivered by chewing gum which also produces more saliva or crying or yawning which will produce more tears.
As long as your glands are still somewhat in tact and not completely atrophied, it makes sense (at least to me) that this would work.
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Sjogren's (+ RA): positive ANA, RNP, RNP-A, APCA. Severe eye dryness + inflammation, multiple sensitivities and allergic reactions, fatigue. 
ORENCIA, Restasis, Anti-inflammatory diet, Vit. D & C, Ubiquinol 100mg, Omega 3....

Maria3667

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Re: Saliwell device to increase saliva
« Reply #16 on: June 14, 2016, 04:01:00 PM »
Hi Sharon,

Well my reumatologist actually mentioned several supplements, but never any device of sorts. Maybe your right, the electrical stimulation forces the glands to work harder - so did the electricity fail in our glands and is being turned back on again? (Why did it stop working?)... Food for thought ...

By the way, didn't Joe S (hope my memory serves me right) mention frequency modulation in regard to our failing glands before?
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53. DES-daughter ('67), Lyme's ('98), GAD ('98), Sjogren's ('02), hypothyroid ('04), endometriosis ('14), osteoarthritis ('16), blepharitis & MGD ('18). Pilocarpine, thyroid meds, 12.5mg quetiapine, 5% testosterone. Allergies: sodium hydroxide, nickle, methylisothiazolinone, latex

Sharon

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Re: Saliwell device to increase saliva
« Reply #17 on: June 15, 2016, 12:32:42 AM »
Our glands are just damaged and inflammed from being under attack.

Now all we need is a device similar to this for our eyes (lacrimal glands)!
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Sjogren's (+ RA): positive ANA, RNP, RNP-A, APCA. Severe eye dryness + inflammation, multiple sensitivities and allergic reactions, fatigue. 
ORENCIA, Restasis, Anti-inflammatory diet, Vit. D & C, Ubiquinol 100mg, Omega 3....

Catlover

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Re: Saliwell device to increase saliva
« Reply #18 on: July 05, 2016, 05:45:45 PM »
Here is a device that I pray will help us.  I have spoken to this dentist.  He is really trying to help people like us.

http://www.chesterfieldobserver.com/news/2016-06-08/News/Dry_Run.html
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SunshineDaydream

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Re: Saliwell device to increase saliva
« Reply #19 on: July 07, 2016, 05:38:41 PM »
That device looks promising, Catlover.

When I inquired last year, my insurance company did not provide coverage for the Saliwell device because it was still considered experimental. My dentist had not heard of Saliwell until I asked him about it a few weeks ago. He contacted Saliwell and was told that it is not yet FDA approved and the company does not have any representatives in the US.

Hopefully one or both of these devices come to market soon in all of our locations. It's good to have different avenues of relief.
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Sjogren's, lupus, OAB and osteopenia
Rx: Evoxac and Myrbetriq
Vitamins and Supplements: A, B complex, C, D3, E, calcium orotate, magnesium glycinate, D-Mannose, curcumin, fish oil, probiotic

keelton

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Re: Saliwell device to increase saliva
« Reply #20 on: August 01, 2016, 12:00:13 PM »
I got a saliwell device!  I will let you guys know if it works.  Will give it a few months.   I had someone bring it to me from Europe. It is not available yet in the US
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upquark

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Re: Saliwell device to increase saliva
« Reply #21 on: August 01, 2016, 12:03:24 PM »
Keelton,
what country did you purchase it from? My husband is going to Germany and I am hoping he can get it from there.
Thanks!
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alwaysimproving

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Re: Saliwell device to increase saliva
« Reply #22 on: August 01, 2016, 01:17:17 PM »
I am a little bit confused on how it works - so do you make saliva only as long as you put it in your mouth? Or do the effects last longer?
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keelton

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Re: Saliwell device to increase saliva
« Reply #23 on: August 01, 2016, 04:21:48 PM »
They have an office in Germany so it is available there.  You should email them and ask where you can get it first.    I had someone bring it to me from Denmark.    As far as how it works . It is supposed to be cumulative meaning a lasting affect.   We will see if it works!  It would be nice to have a few people on here using it so we can test it for others . It's 250 dollars. 
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drylady

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Re: Saliwell device to increase saliva
« Reply #24 on: August 01, 2016, 05:46:04 PM »
 Keelton I'd love to know your experience with it. Good luck.
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33 years old. Plaquenil 200mg (2x), Evoxac 30mg (3 x).

Catlover

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Re: Saliwell device to increase saliva
« Reply #25 on: August 06, 2016, 02:17:49 AM »
Hi,

I contacted some of the US researchers that were part of a clinical trial.  I was actually going to buy this device from overseas.  They said it did not show improvement on sjogren's patients.  Big sad face. I hope they were wrong and it works for us.
« Last Edit: August 06, 2016, 02:23:15 AM by Catlover »
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drylady

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Re: Saliwell device to increase saliva
« Reply #26 on: August 06, 2016, 10:45:06 AM »
Hi Catlover. Bigleyj from Australia is using it and says it works so that's hopeful.
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33 years old. Plaquenil 200mg (2x), Evoxac 30mg (3 x).

Bigleyj

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Re: Saliwell device to increase saliva
« Reply #27 on: August 10, 2016, 03:17:30 AM »
Hmmmm I wonder how many sjogrens patients they trialled it with.  My specialist said that I was his first sjogrens patient he was trialling it on.  That was just over 18 months ago.
So to the researcher that says it didnt show improvement for sjogrens patients ...Hellooo ...  here I am!

Anyway, hi to everyone on the forum from rainy Melbourne, Australia.

Jo 😀
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Female, 44 Yrs, Victoria, Australia. 
Diagnosed SJS Nov 2014, diagnosed skin-only Lupus Dec 2014, overactive thyroid medicated since 2011.
 plaquenil, carbimazole, escitalopram (esipram), second generation oral saliwell stent, vitamin D.
Came off low dose Valium mid-2015 😀

janny

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Re: Saliwell device to increase saliva
« Reply #28 on: August 15, 2016, 10:07:13 AM »
Hi guys. I already know what the answer to this question is, but here goes anyway. Does anybody know of any possible way that I could get one of these devices in the U.S.? I know it's not FDA approved yet, but I am desperate. I did contact the company and they told me it would "be a good excuse to make a trip to Europe" to get one. Well, Europe is not in my budget right now and I don't feel good enough to go anyway! But, just thought I'd ask all of you if you knew of any way to get around it (other than going to Europe, of course). Wish I had a friend or relative who lived out of the country! Thanks.
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Sharon

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Re: Saliwell device to increase saliva
« Reply #29 on: August 15, 2016, 01:05:07 PM »
I think you can order it from their site Janny.
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Sjogren's (+ RA): positive ANA, RNP, RNP-A, APCA. Severe eye dryness + inflammation, multiple sensitivities and allergic reactions, fatigue. 
ORENCIA, Restasis, Anti-inflammatory diet, Vit. D & C, Ubiquinol 100mg, Omega 3....
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