Author Topic: Vision changes  (Read 3140 times)

1722Mich

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Vision changes
« on: April 09, 2014, 06:16:01 AM »
Was wondering if this is a problem for anyone else...I have worn glasses since my early 20's.  I go to an opthamologist for my yearly eye exams & glasses prescriptions because I was on plaquenil for years.  So I know I get good exams & accurate prescriptions.  My trouble is that & this is my speculation...my vision changes during the day due to eye muscle fatigue.  I have confirmed that my vision changes with my first eye physician.  He did a morning exam & then did a repeat on the same day in the afternoon & there was a big difference.  This was before my Sjogrensdiagnosis so I had a huge medical work up looking for diabetes (negative) & was seen by an eye specialist who found absolutely nothing.  His only comment was that it was probably due to a familial weakness in the muscles that control the eye.  My sister had a severe lazy eye that required surgical correction.  He suggested I try some exercises to strengthen the muscles.  If anything those made it worse.  This has gone on for years. I've tried scheduling my eye exams in the middle of the day hoping to split the difference. That sort of works. It is just frustrating to have blurry vision in the morning because the glasses ate too strong & blurry vision in the evening because the glasses are too weak.  I also tried getting two different sets of glasses with different prescriptions...one for morning, one for evening but the fatigue varies in severity & my vision fluctuates with that. So I seem to be always stuck with glasses that aren't quite right.  Sometimes it is just annoying but other times like at night it is downright frightening! I have been to a neuromuscular specialist & they've confirmed that the sjogrens is the cause of my muscle weakness.  I have problems with pretty much every muscle in my body not just my eyes.  Anyone else dealingwith this?  Advice?

rnathans

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Re: Vision changes
« Reply #1 on: April 09, 2014, 01:49:00 PM »
Do you have dry eyes? I ask because my vision fluctuates and is okay at times and other times is very blurry. It is very hard to get an accurate refraction as a result. My eye doctor says it is the dry eyes that causes this and that artificial tears can help somewhat. I have been diagnosed for about ten years and we have discussed this on and off since then. Last month when I had my annual appointment he also tested my eyes again for dryness because my refraction results made no sense and yep those things they put in your eyes were pretty dry after 10 minutes.

In addition, even without Sjogrens people who use computers,etc a lot during the day can have blurrier vision later in the day. I do not know if this applies to you.

cccourt1942

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Re: Vision changes
« Reply #2 on: April 09, 2014, 02:12:02 PM »
My eyes don't get blurry until the early evening.  However..a year before SjS dx I didn't read for two years.  It tired my eyes so that I got tired myself.  Then I remembered the optometrist told me to use Naturale Tears for dry eyes...over 25 years before.  I started using it and my eyes were new again. 

The question is if you want to add Restasis to your medicine cabinet!  I don't.  I can manage with drops and gel..but I am retired.  Makes a big difference.
Sjogren's, Psoriasis, Hashimoto's, Osteoporosis, Osteoarthritis, Cold hands/feet,  fatigue,  pilocarpine-25 mg , Restasis, Plaquenil, Low dose Prednisone (2-3 mg daily) Xylimelt, Citrucel, Alcon-Naturale, Tears,Omega 3, Vit.D, Caltrate+D3, Fosamax, CoQ10, Zinc, Oxtellar. Levothyroxene

nannysbaby

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Re: Vision changes
« Reply #3 on: April 09, 2014, 02:23:22 PM »
I have thought recently that my vision has changed markedly in a rather short period of time, but I have not been tested to the extent you have, like in the morning and eve on the same day.  I have been somewhat worried about my vision because I have been on generic Plaquenil (hydroxychloroquine) for 7 years and although I have been keeping check, I still keep having wierd vision off to the side in one or both eyes.  So I stopped the med to see if I kept experiencing it, but it's hard to know for sure since I never know when it will happen.  I see my dr. in two weeks and maybe he can help me further with that.

Anyway, I do feel deep muscle pain in my eyes and it hurts to look up or down or press against them even just a little.  This indicates an involvement of the muscles to me.  I know my eyes "feel" tired at the end of the day.  Nothing surprises me about this wretched disease and with all those ANA's coursing through our bodies to the ultimate extent anything is possible.  I really hope you can figure something out.  It's so frustrating to try and read something with a pair of expensive glasses and never be able to.
Primary Sjogren's, Fibromyalgia, RLS; Methotrexate, Hydroxychloroquine, Vitamin Supp., Thera Tears

Suslew

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Re: Vision changes
« Reply #4 on: April 09, 2014, 05:41:37 PM »
I too get these vision fluctuations.  And have several pairs of glasses that sometimes work.  I never know which pair will make things better or worse it changes so much.  It is really frustrating and I'm sorry to say I don't have a good work-around yet.  It is good to know I'm not the only one out there.

machenza

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Re: Vision changes
« Reply #5 on: April 09, 2014, 05:59:16 PM »
My vision changed a lot over the last two years, and now adding Salagen makes my vision more blurr and distorted. IDK if it is the Sjo or the Graves

Nellie

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Re: Vision changes
« Reply #6 on: April 09, 2014, 06:18:05 PM »
Any chance that you have another autoimmune disease? Myasthenia gravis does affect eye muscles. Usually it is drooping eyelids but my optometrist told me several years ago before my diagnosis that I should do exercises to strengthen my weak eye muscles instead of changing my prescription.

Makes sense now, after my MG diagnosis. I also have trouble with my eyes adjusting to bright light so I end up wearing my dark wraparound glasses a lot. When I had drops to dilate my pupils it took 9 hours for them to go back to normal. I was wearing dark glasses to drive after sunset!

Kendo
Seronegative for Sjogren's, Celiac, MG; ANA pos, eat GF, calcium disorder, asthma, probable myasthenia gravis, low potassium, low stomach acid, fat malabsorption.
Mestinon, calcium, Vit D, 600 mg NAC, multi Vit, B50 complex, potassium, evening primrose oil, fish oil

drylady

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Re: Vision changes
« Reply #7 on: April 09, 2014, 07:22:27 PM »
I take Plaquenil too.It affects my vision and my ability to focus. I think its a listed side effect.
33 years old. Plaquenil 200mg (2x), Evoxac 30mg (3 x).

Cassi307

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Re: Vision changes
« Reply #8 on: April 09, 2014, 09:32:19 PM »
I also have vision fluctuations and after trial and error and many exams I have figured out that it has a lot to do with dryness. Keeping my eyes hydrated helps.
It is frustrating when you go for one rx for glasses and when you try to read you can't. I can't afford multiple pairs of glasses because my lenses are too expensive
Drugs or other medical issues may affect it but if everything is negative dryness may be your culprit.
Sjogren's, seronegative RA,  ckd, hyperparathyroidism, asthma,  osteoporosis, tremors, macular degeneration. Meds:  cardizem cd, low dose Prednisone, Rituxan, Preservision, calcium with d

1722Mich

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Re: Vision changes
« Reply #9 on: April 09, 2014, 09:38:27 PM »
I am so glad I joined this site! I've only been on a couple of days & have learned so much from everyone here! Finding out that others are going through the same things is so helpful.  Sorry, not saying I am glad you all suffer as well its just that thinking I was alone in this was so hard.

To answer the questions:  No myasthenia. My neuromuscular doc tested for that.  My rheumy tested me for a boatload of others & its pretty much just Sjogrens for me. I have had episodes of cutaneous lupus & pallindromic rheumatism. I also have hypothyroidism and a history of migraines that manifest not only in pain but in several visualdisturbances plus vertigo. To the question re dry eyes...yes definitely but oddly they are not nearly as dry as my mouth & other mucus membranes.  I only ooccasionally need natural tears or on bad days the semi gel drops. I am unable to cry tears but I get thick gunk that I suppose is my ducts last hurrah.  I have discussed restasis with my opthamologist but since my eyes don't really "bother" me I've opted to not go that route. I do work on the computer a lot at work & read my kindle or books a lot. I'll have to try using the drops just because and see if they help. I took plaquenil for years but stopped it last fall due to it increasing my muscle weakness. Since stopping it my eye dryness got markedly worse but I have opted to stay off it. My opthamologist assures me that while my eyes are dry my corneas remain healthy. The plaquenil also did not ever affect my visual fields.

It is amazing what we learn to live with despite the Sjogrens. We create our own unique "normal" & just carry on with our lives. I decided not long after my diagnosis that this disorder would not define who I was. I resolved to never let it get the better of me. I am exceptionally stubborn & often go past the limits of what my body will allow. When this triggers a flare I berate myself but this tiny little part of me is defiantly chanting "Na na na na!! Can't hear you!" I hope to never lose that part of myself.

Thea

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Re: Vision changes
« Reply #10 on: April 10, 2014, 07:23:05 AM »
this tiny little part of me is defiantly chanting "Na na na na!! Can't hear you!" I hope to never lose that part of myself.

This made me smile!

Inflammatory osteoarthritis, dx Nov 2013, Secondary SS (sero-neg) dx Feb 2013, Type 2 Diabetes (diet controlled), Post-Viral Syndrome (lungs); Hydroxychloroquine, Restassis, Omega 3 oils, Optive Advanced, Biotene, fluoride gel, MI Paste

Chris

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Re: Vision changes
« Reply #11 on: April 10, 2014, 01:48:31 PM »
My vision is much worse now! I find to hard to read which is my favorite hobby! I will discuss with my eye doc next week. I have been on plaquenil about 2 years....
47 year old mom of two. Sjogrens, Hashimotos,small fiber neuropathy, neurogenic atrophy(myocitis)
Armour, methotrexate, plaquenil, folic acid,
Vit D3',Claritin, ,Ivig, Rituxin