Author Topic: Mystery Diagnosis - Sjogrens Youtube show  (Read 5464 times)

finallyadx

  • Hero Member
  • *****
  • Posts: 1107
Mystery Diagnosis - Sjogrens Youtube show
« on: May 13, 2013, 08:31:57 AM »
http://www.youtube.com/watch?v=5bahu5kZY-g&feature=share&list=UU4Jo7KhmZ1V7-kQDu43BZ9Q

An amazing story about a woman named Linda who struggles with multiple symptoms through the years and struggles to get a diagnosis...Interesting stuff.

Primary ss dx 2013, plaquenil, vitamin d, iron supplements, vitamin b12, d-mannose for chronic UTI's, magnesium for heart palpatations and Zinc

Nancy60

  • Hero Member
  • *****
  • Posts: 1034
Re: Mystery Diagnosis - Sjogrens Youtube show
« Reply #1 on: May 13, 2013, 04:20:34 PM »
That was a really good description of Sjogrens and how hard it can be th diagnose, how it effects patients. Thanks for sharing, I put it on my Facebook page since its similar to how it effects me. Maybe some of my family or friends will kind of get the idea.

Nancy

Cassi307

  • Hero Member
  • *****
  • Posts: 743
Re: Mystery Diagnosis - Sjogrens Youtube show
« Reply #2 on: May 13, 2013, 04:51:04 PM »
Great video. The perfect educational piece to help educate those around us so they stop thinking we are crazy.
Thanks so much.
Sjogren's, seronegative RA,  ckd, hyperparathyroidism, asthma,  osteoporosis,  Meds:  amlodipine, low dose Prednisone, calcium, sodium bicarbonate. Also, multivitamin and B complex

Velcro

  • Guest
Re: Mystery Diagnosis - Sjogrens Youtube show
« Reply #3 on: May 31, 2013, 09:15:52 AM »
That is a great video!  Thank you.

MirkeshCat

  • Jr. Member
  • **
  • Posts: 75
Re: Mystery Diagnosis - Sjogrens Youtube show
« Reply #4 on: July 25, 2013, 11:34:35 AM »
Very great video! I can feel with that woman!!!!
male, 37, married with children :)
Paramedic
SjS, Graves, PTSD, chronic EBV
Thyroxine, Plaquenil, Betablockers

powderpuff

  • Guest
Re: Mystery Diagnosis - Sjogrens Youtube show
« Reply #5 on: July 25, 2013, 09:44:02 PM »
I've watched this episode several times prior to my diagnosis. I can relate to her now.

Thanks for sharing.

ellenkerr

  • Guest
Re: Mystery Diagnosis - Sjogrens Youtube show
« Reply #6 on: July 25, 2013, 11:39:35 PM »
Great video that explains sjs and the impact to your life.  I definately want my family to see it so maybe they could understand me a little better.  Thanks for sharing this with us.