Author Topic: How Do You Do...I'm Linda196  (Read 8285 times)


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How Do You Do...I'm Linda196
« on: August 28, 2012, 06:29:57 AM »
Greetings from the Maritimes, Eastern Canada...

My story starts as a baby boomer in 1951, the oldest of four children, and a sickly baby at first. My paediatrician liked to tell interns that I was born dead, but got over it. Until I was 6 months old, I wasn't doing well, but then, from no where, I became a healthy, fast growing, into-everything baby, and things went pretty well after that, until I was 5, at which time I developed Rheumatic fever, and spent the better part of a year in forced confinement. As it turned out, that may have been good practice. Never one for common colds, I managed to survive enchephalopathic measles, mono with liver involvement, several falls from high places (where I probably shouldn't have been), and a post tonsillectomy haemorrhage. The attention to my neck after the "bleed" discovered a goitre, at first thought to be thyroid cancer, but after removal it proved to be Hashimoto's thyroiditis, my very first official autoimmunity!

After that, at intervals of about every 3-4 years, I collected new AIs; polyarthritis, Inflammatory Bowel syndrome, Sarcoidosis, fibromyalgia, Reynaud's Phenomenon, deQueverain's synovitis, dermatomyositosis, Sjogrens Syndrome, and most recently, Poly Myalgia Rheumatica with overtones of Psoriatic Arthritis. I must admit to being very lucky when it came to diagnosis, because I had what my rheumy calls "an established track record" for AI, so they always looked there first, even when I was convinced that these weird and unrelated symptoms must be "all in my head". For a great many years, I was able to ignore or deny my illnesses, and I never called them that, always "conditions"(even a neuro-sarcoid stroke). I refused to have "pain”, I only admitted to "discomfort". It took the diagnosis of SjS in 2003 to knock me on my you-know-what, make me realize that I really had a problem, and start a search for like-minded folks. That search brought me to Sjogren's World, and a vast resource of friendly helpful people who KNEW what I had trouble admitting to myself; I have a real illness, it will effect my life, I may mourn the person I used to be, but I have support, caring, and friendship to help me through it.

In 2006, my husband (since 1974) and I reconciled after a separation of 4 years…both older and wiser, and now good friends. The same year two of our children relocated to Alberta, my son on his own, and my daughter with her husband and two daughters born in 2003 and 2006, so for a while I was a long-distance Nanny. My older daughter is still nearby, with my oldest grandchild, a boy born in 1999, and the younger daughter and my three granddaughters have recently moved home and we are neighbours.

I'm retired (much too early, I was only 54, and only for medical reasons) from critical care nursing and plasma exchange therapy, my passions. I do try to keep my professional hand in, and with retirement time on my hands, I finished writing a textbook for nurse specialists in Plasma Exchange.

I was thrilled and flattered when asked to join the staff of Sjogren's World, and I hope to pass along to others the gifts of support, education and fun I've received here from staff and members alike. I co-host a chat on Sunday nights, so please join us.

« Last Edit: January 14, 2016, 04:19:22 AM by Linda196 »
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