My first occurrence with chemosis happened just a few months ago. When I woke up my eye way swollen shut, I couldn't open my eyelids, a few hours later the swelling started to decrease so I could open my eye; however my vision was temporarily gone for about 6 hours before I could distorted images. It took an additional four days for all of the swelling to subside. My vision when I'm not experiencing eye problems is 20/15 (better than 20/20) when chemosis occurs it's usually around 20/80, sometimes worse. Prior to this event I had no history or chemosis, or sjogerns. After seeing 3 ophthalmologists they had me on and off lotamax (steroid eye drops). I'm currently back on it to prevent the severe flare ups. I also take a steroid topical cream for my eyelids which quickly decreases any swelling. These medications helps prevent major flare up but the pain is still present and I still get blurred vision even without the swelling.
My pcp did additional tests which identified that I have a high ANA 1:160. My rheumatologist performed additional lab work, everything came back normal except the ANA was the same and I have low vitamin D which I contribute to pcos. Both doctors believe I have sjogerns syndrome. I was under the impression sjogerns is just a dry eye problem. Is chemosos a common symptom with sjogern's? I'm seeing ophthalmologist number four tomorrow, hopefully I'll have better luck.
I was just curious do is it common to experience such intense pain even my eye isn't swollen and is chemosis is a common symptom of sjogerns?
Thanks for your help in advance.
