Author Topic: vitamin d and other stuff  (Read 4689 times)

dreamBIG

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Re: vitamin d and other stuff
« Reply #15 on: January 18, 2011, 07:23:31 PM »
Cat - Glad I could help!  Good luck with your first dosage.  Don't forget to listen to the little voice inside your head saying not to take it if something isn't right.

Patze - I'm near Vanderbilt, and I've seen a few other doctors there.  It's a long story on how I saw my first Rheumy outside of Vanderbilt.  I think I might seek a second opinion there.

Patze

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Re: vitamin d and other stuff
« Reply #16 on: January 18, 2011, 07:44:56 PM »
Hi DreamBIG,

Don't forget to keep us updated, okay?  I've heard some good things about them, and I'm curious to see what they have to say too. 

Hang in there and don't let them get you down -

Patze
Our home page  http://www.sjogrensworld.org/index.html
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Sero Negative Queen

balor123

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Re: vitamin d and other stuff
« Reply #17 on: January 21, 2011, 09:31:07 PM »
My Vit D was low (17) as well despite 1hr weekday walks. 4 50k IU pills later and it was in the low 20s. Another 4 and it made it to the 40s. Taking 1.5k IU daily now but back down to high 20s. It's a tough battle.

On the high IU Vit D, no side effects a big energy boost. Yummy :) It's a toxic dose but your liver can handle it for much longer and it recovers quite well afterwards.

Patze

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Re: vitamin d and other stuff
« Reply #18 on: January 22, 2011, 05:03:36 AM »
I hear you Balor, it's up and down for me all of the time too.  I go up to the high 20's and then do the slide back to the mid teens; this yo-yoing is driving me nuts. :-\ 


Patze
Our home page  http://www.sjogrensworld.org/index.html
Live chats  http://sjogrensworld.org/chats.htm

Everything has beauty, but not everyone sees it - Confucius

The important thing is not to stop questioning ~ Albert Einstein ~

Sero Negative Queen

dainbramage

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Re: vitamin d and other stuff
« Reply #19 on: January 22, 2011, 07:22:20 AM »
So have anyone find out why SjS have low vit D levels? Mine is 17 and I am on 50,000IUs a week.

Nancy60

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Re: vitamin d and other stuff
« Reply #20 on: January 22, 2011, 07:57:28 AM »
My understanding is that low vit D levels are found frequently in people with Rheumatic diseases but they are not sure why.  One theory with Lupus and Sjogren's is the sun sensitivity that occurs frequently with it, but that doesn't explain everyone.

Just me thinking now.... it could be the inflammatory process depleting the levels since that is one thing common to all.  I wonder if it is low in other inflammatory illnesses (not Rheumatic) like heart disease, cancer etc...

Nancy