Author Topic: CCP  (Read 2714 times)

mebog

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CCP
« on: January 12, 2011, 02:00:26 PM »
Hi, this is my frist post.  I'll get the hang of it along the way. I've enjoyed reading, all good info.  I'm female 72 yrs old, probably the oldest one here.
After about forty yrs of pain and 5yrs since a lung biopsky, my new rummy did a CCP on my frist visit. The results of 224.  The pulmonolgest said that SJS was the cause of the pulmonary fibrosis but it took four rummies before I had the proper test.
so now we are in the mist of a new treatment.
Would be grateful for any information.

Thank You, mebog

Scottietottie

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Re: CCP
« Reply #1 on: January 12, 2011, 04:50:51 PM »
Hi Mebog  :)

Welcome to Sjogren's world. I'm not sure if you are the oldest poster at present - but there have certainly been older posters in the past! It's not unusual to take a long time to get diagnosed! Lots of us have been through that.

Please feel free to ask any question you want. I can't guarantee an answer but I can guarantee that people will try to!

The search box at the top can be useful too. If a word is typed in it will take you to topics about it.

I hope you find the site useful. It's certainly friendly and supportive.

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!

Carolina

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Re: CCP
« Reply #2 on: January 12, 2011, 04:56:26 PM »
Hi Mebog,

I'll be 69 in March!

Let us know what you have been diagnosed with and what you are taking. 

There's a place in your profile.   See mine as an example.

Keep us posted and welcome!

Kisses

Elaine
Female-Elaine,79-CVID-pSJS-WMD (Eylea) C-PN-CAD-Osteoarth-SFN-Knee/Shoulder Degeneration-SIBO-Act.Purpura-Tinitus-Meniere's-Hiatal Hernia-Achalasia-Hand Surgeries, UTI's-Braces/Walker-IVIG Gamx-Medrol-Gabapentin-Atenolol-Pilocarpine-LDN-Nasonex-Lipitor-Estrogel-D-Mannose-NAC-Om. 3-Naltrexone-Esomep.

Joe S.

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Re: CCP
« Reply #3 on: January 12, 2011, 04:58:55 PM »
welcome mebog. You will find a lot of good information on this site. Some of us have posted what meds we are on to help others.
bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
Lisinopril, Amlodipine, Pantoprazole, Metformin, Furosemide, Glimepiride,
Centrum Silver, Cinnamon, Magnesium, Flaxseed, Inositol, D3, ALA, ALC, Aleve, cistanche
Reiki, reflexology, meditation, electro-herbalism

Patze

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Re: CCP
« Reply #4 on: January 12, 2011, 05:04:58 PM »
Hi Mebog,

Let me also welcome you to the SJS World and family!  

No worries about the age, the way I see it, you're 72 years young! :)  

I'm glad that you've finally found a great rheumy, lucky you (I know it stinks to have to go through a lot of doctors before you find one that will be on the ball for you :-\)!

Take care of yourself -

Patze
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Pisces24

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Re: CCP
« Reply #5 on: January 15, 2011, 04:16:59 PM »
Welcome to the group. You will find lots of information here and a great bunch of folks.
Unfortunately it takes us a looong while to get a correct diagnosis and most of us have had Sjogrens for many years before it got to be a problem to solve.  It took 6 years for me to get a diagnosis.

The specialists opinions ran from "the cat did it" to "some type of cancer but you are not sick enough".  So both myself and my gp have a very changed opinon of specialists, Course with any illness/disease you sooner or later find out 1) Drs are not the smartest people in the world  2) some drs are lazy and 3) learn to stick up for yourself and be your own advocate.

72 isn't old!  I used to ride the bus to college (long ago LOL) with a 95 year old who had more pep than most people I knew.  You can't help much what OTHER people label you - but don't start labeling yourself.
Welcome to the bunch!

BTW: I have spots on my lungs due to SJS that the pulmonologist is watching. I am age 53.

lynnmarie219

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Re: CCP
« Reply #6 on: January 16, 2011, 04:50:23 PM »
Hi Mebog and welcome to Sjogrens World!

I hope you find it helpful here...this is a place where many of us feel we can come to for friendship, information, and support! And don't worry about age....there are people here of all ages....its only a number!  ;)

WELCOME

JannaLee

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Re: CCP
« Reply #7 on: January 16, 2011, 05:14:55 PM »
Hi Mebog!  I would never guess your age by looking at this post!  You type like a much younger woman!!...and a slim one at that!

Welcome to the crowd!  I have found the folks on this forum to be extremely kind and knowledgeable!  To tell you the truth, I don't know what I'd have done without this place.

 Looking forward to knowing you better,
Janna

harlin

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Re: CCP
« Reply #8 on: January 16, 2011, 05:19:27 PM »
Hi Mebog
Welcome to a wonderful site that has so much useful information. This has been a God send to me since I was diagnosed. I have learned so much from so many wonderful people with the same illnesses that we have.
Glad you found us! Hopefully you will enjoy it as much as I have. Everyone is wonderful and so kind. We are all in the same boat.
Welcome aboard and God bless
harlin