EXCELLENT thread!!
Here's some of the stupid things I've been told -
1 - You look/sound healthy.
2 - You have a bad attitude, you must WANT to be sick (my PCP told me that!)
(being realistic = bad attitude
)
3 - God must want it for some reason, stop fighting God.
4 - You are exaggerating your illness.
5 - It's not like sjogrens is terminal or anything
(even after being told of the very serious complications)
6 - Get off the Western meds and try the natural (untested) herbs
(sure, like I need strange unknown herbal side effects on top of everything)
7 - You need to pray more/you don't pray enough
8 - It all happens for a reason
9 - your response to this is wrong
(from people who have never gone through the 5 stages of grief)
10 - So you can't eat trigger foods (grains/pasta/citrus/sugar etc.) You are healthier for it.
(no .. I'm not getting a balanced diet)
11 - Go ahead and eat those trigger foods, you have to be happy.
(even two bites of bread will lay me up for 2-3 days with a flair
)
12 - So you lost 60 pounds (so far), you can buy all new clothes!!
(I feel like crap so shopping is a chore ... and expensive)
13 - Get out of the house, you'll feel better. Go shopping or to the beach ...
(I'm too tired, too sore, too numb in the legs, and UV from the beach will flair me)
