Author Topic: Too many AIs here cheek this out  (Read 3745 times)

Gerty

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Too many AIs here cheek this out
« on: September 08, 2010, 12:39:35 AM »
I was feeling a little confussed since getting DXed with Raynaud's last week Ive been looking on-line to see if it was or it was not an AI It seems to be on some list but not on the others I started to think maybe its a grey area a bit like fibro can be. I asked my Dr he said yes but I also read somebody here asking or making a statement not an AI is it. so I thought I would see if I can find a trusted site this is what I came up with little did I know or expect to find so many of them  :o some are just related AI what ever that means
http://www.aarda.org/research_display.php?ID=47

Joe S.

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Re: Too many AIs here cheek this out
« Reply #1 on: September 08, 2010, 03:49:31 AM »
I tried to post a list like this with descriptions of the diseases and it was to large (>20000 characters). Good list.
bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
Lisinopril, Amlodipine, Pantoprazole, Metformin, Furosemide, Glimepiride,
Centrum Silver, Cinnamon, Magnesium, Flaxseed, Inositol, D3, ALA, ALC, Aleve, cistanche
Reiki, reflexology, meditation, electro-herbalism

cmclien

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Re: Too many AIs here cheek this out
« Reply #2 on: September 08, 2010, 05:28:54 AM »
That is an amazing list. 
Its funny (not) but when I was about 18 years old (I'm 48 now) I developed a syndrome called Meniere's disease (inner ear).  They couldn't find the "usual" reasons I had it and I didn't fit the profile, middle age male of someone who had it.  I see its now on that list and I just read that its associated with hashimoto's which I later went on to develop.  Around the same time my fingers kept turning blue they told me and they told me it was because I was smoking, so I quit.
So I was treated for meniere's and about 8 years later I "outgrew" it, thats what they said anyway....they didn't really know.  I was going to the Univ of Washington at the time and they kept bringing in all these young doctors to study my odd case.  They treated it by a low sodium diet and diuretics.
Seeing this on that list now makes me really think HMMMMMM

puccini914

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Re: Too many AIs here cheek this out
« Reply #3 on: September 08, 2010, 07:29:45 AM »
You know what's funny, I always thought that Raynaud's was more of a symptom then an actual disease or condition of it's own. Silly me.

YYC_ Mommy

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Re: Too many AIs here cheek this out
« Reply #4 on: September 08, 2010, 08:36:04 AM »
Thanks for sharing this Gerty! Great information.

Scottietottie

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Re: Too many AIs here cheek this out
« Reply #5 on: September 08, 2010, 08:48:29 AM »
Hi  :)

I know someone who has had Raynauds since her early 30s but she doesn't have anything else at all.

Take care - Scottie  :)
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Epson

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Re: Too many AIs here cheek this out
« Reply #6 on: September 08, 2010, 08:56:52 AM »
AIs are like jello, there's always room for more ;D

Gerty

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Re: Too many AIs here cheek this out
« Reply #7 on: September 08, 2010, 03:08:12 PM »

Hi  :)

I know someone who has had Raynauds since her early 30s but she doesn't have anything else at all.

Take care - Scottie  :)
[/quote] my Dr gave me a web site to have a look at this is this site he gave me. My understanding of Raynaud's is this
Raynaud's Phenomenon stand alone no other cause
Raynaud's disease no obvious underlying cause
Raynaud's syndrome there is an underlying cause IE: lupus sjs RA and some other and some meds as well.

I still feel its a grey area and anywonder us and the med prof are confussed. Ill give you the link of the site my Dr gave me I feel because the Dr gave it to me he feels the information here is adequate  ? thanks ever body for your comments I was a bit like this when I saw this list way to many   :o  [url]http://www.patient.co.uk/doctor/Raynaud's-Phenomenon.htm#]
Hi  :)

I know someone who has had Raynauds since her early 30s but she doesn't have anything else at all.

Take care - Scottie  :)
my Dr gave me a web site to have a look at this is this site he gave me. My understanding of Raynaud's is this
Raynaud's Phenomenon stand alone no other cause
Raynaud's disease no obvious underlying cause
Raynaud's syndrome there is an underlying cause IE: lupus sjs RA and some other and some meds as well.

I still feel its a grey area and anywonder us and the med prof are confussed. Ill give you the link of the site my Dr gave me I feel because the Dr gave it to me he feels the information here is adequate  ? thanks ever body for your comments I was a bit like this when I saw this list way to many   :o  http://www.patient.co.uk/doctor/Raynaud's-Phenomenon.htm#

I still have not read the full lot of the information myself its to much for me to read online ill have to print it out and take my time to have a good read myself

Joe S.

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Re: Too many AIs here cheek this out
« Reply #8 on: September 08, 2010, 04:22:30 PM »
The list reminds me of a Robert Benchley essay "You to can have a phobia". So, "You to can have an auto immune disease"
bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
Lisinopril, Amlodipine, Pantoprazole, Metformin, Furosemide, Glimepiride,
Centrum Silver, Cinnamon, Magnesium, Flaxseed, Inositol, D3, ALA, ALC, Aleve, cistanche
Reiki, reflexology, meditation, electro-herbalism

Scottietottie

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Re: Too many AIs here cheek this out
« Reply #9 on: September 08, 2010, 05:22:18 PM »
Hi  :)

Well my friend has had a good run then. The Raynaud's was obvious in her early 30s and she's in her sixties now and still healthy.

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!