Author Topic: What are your Worst Fears?  (Read 13418 times)

harlin

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Re: What are your Worst Fears?
« Reply #15 on: August 19, 2010, 07:19:47 PM »
My biggest fear? well lets see. I think loosing my family would be my worse fear. They mean so much to me I don't think I could bear it.

My other biggest fear that I won't be around to see my grandbabies grow up. I am getting a new grandbaby in January!! I just want to be healthy enough to spend all my time loving on them.

Gerty

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Re: What are your Worst Fears?
« Reply #16 on: August 19, 2010, 07:33:58 PM »
I guess from time to time Joe its been different and depending on what my life has experience at the time like you seeing the women that has a mind but can't do anything for herself. Right now my worse fears is my S.L.E coming back. I was told that when it comes back it will be worse then what I was at the stage of getting a walker just to move around the house I was house bound and spent most of my time in bed. So if it came back worse then it was at that stage I fear how would I be could I be like this lady your talking about later down the track.

BonusMom

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Re: What are your Worst Fears?
« Reply #17 on: August 19, 2010, 09:25:07 PM »
Being abandoned by friends and family when I need them the most; the death of one of my children or my husband; and when my body is but a shell of what it once was and I am a burden on my family and society, not being at liberty to say enough is enough and ending my journey when I'm ready.

jessica1104

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Re: What are your Worst Fears?
« Reply #18 on: August 19, 2010, 10:32:01 PM »
My biggest fear is that I will never feel well again, that I won't ever have the feeling of opening my eyes from a nice night's sleep and feeling rested and ready for the day. :(  I also worry that my healthy husband will leave me bc of my disease.  He is so supportive and I keep as much as possible bottled in because I want to appear normal, but it's still worrisome.

LeoLady

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Re: What are your Worst Fears?
« Reply #19 on: August 20, 2010, 12:30:20 AM »
My worst fear is losing my husband.  We will celebrate our 40th anniversary next May and have been together for 44 years.  He is my other half.  It's unimaginable that he would go before me.  My parents are dead.  My in-laws are dead.  My brother is dead.  I have one sister left from my "first" family and haven't seen her for 6 years since my Dad's funeral, due to economics.  (she's in NV, I'm in OK)  I want to see her so badly before something happens to either of us.

Second worst fear - anything happening to my grandchildren.

I really don't worry about me too much.  What will happen, will happen.

Sigh.

Hugs,

LeoLady

Kerrikins

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Re: What are your Worst Fears?
« Reply #20 on: August 20, 2010, 05:30:18 AM »
I have the fears of losing my children or Dh but besides that my worst fear right now is my disease becoming debilitating. I have 4 kids ages 13, 9, 4 & 2 and I don't want to miss out on their lives or my Dh's life or have my illness cause them to miss out on anything. I want to be able to be there for them and I don't want my kids to look back and remember me always being sick. At this point I am only occasionally laid up on really bad days but for the most part I am able to power through my fatigue and pain and lead an active life. I just wonder sometimes how much longer I can do it. My health is like a snowball, it was going really slowly downhill at first with only a few issues but now it is worse and picking up speed. :(

LizPetillo

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Re: What are your Worst Fears?
« Reply #21 on: August 20, 2010, 05:53:33 AM »
Getting THRUSH from this sjogrens.

During the past 4 months I was misdiagnosed with severe thrush.  They gave me all the antifungals.  I had very, very bad reactions to them all.  Then we find out I didn't have thrush at all. Now I know that people with Sjogrens get thrush a lot.  God help me if I have to try to take any of those meds again. 

I'd rather run my car into a tree and end it.  Really. 

kwolfsheimer

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Re: What are your Worst Fears?
« Reply #22 on: August 20, 2010, 06:20:39 AM »
I am not afraid of death.  I am afraid of getting old with this disease and all my other stuff because I don't think I can take care of myself.  I am fighting right now to work as long as I can.  I worry about getting my kids through college and since Social Security will be dried up and gone, I worry about having enough resources to get me through if I should make it to old age.  Like Kerrikins, I wish I had a bit more energy so I could be a better Mom and wife for the here and now.

aussie mum

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Re: What are your Worst Fears?
« Reply #23 on: August 20, 2010, 11:19:53 AM »
Navydad,

Thanks for your thoughts about my daughter yesterday, thankfully she is going well at the moment - more good days than bad - but as I'm her mum I still worry.

On reading what you are going through my daughter has got it pretty easy. I truly hope you find some answers soon.

Take Care
Aussie Mum

Daughter - SJS, Lupus, Underactive Thyroid, Wolff Parkinson White Syndrome & Insulin Resistance.

Me - Ankylosing Spondylitis, Total Thyroidectomy, Endometriosis, Adenomyosis, High Blood Pressure, Hiatus Hernia, Dry Eyes & Mouth, Stomach Issues, Enbrel, Thyroxine, Atacand, Pariet, Krill Oil, Vit D

season

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Re: What are your Worst Fears?
« Reply #24 on: August 20, 2010, 09:21:45 PM »
Fears? Oh there are many. Besides the usual health, financial, family issues, I think one of my greatest fears is to think what is going to become of
our country, America in the years to come.

Our country has changed dramatically in the past 10 years and it is scary to think where we may be headed.
 Starvation, homeless, no jobs, violence like we have never seen, severe weather changes, sickness, lack of clean water and I could go on and on.

eyeamdry

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Re: What are your Worst Fears?
« Reply #25 on: August 20, 2010, 09:36:20 PM »
i'M AFRAID THE CANCER WILL COME BACK.

Suzie

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Re: What are your Worst Fears?
« Reply #26 on: August 21, 2010, 01:55:52 AM »
kerrikins, I'm right with you.

My priority in life is to be a good mother. It's so hard to give my kids the attention and energy they need. And I always wanted to give them a better example of how to live a happy and fulfilling life than my mother gave me.

She never did anything, or went anywhere. Never socialised or took an active part in life. She never showed us that she enjoyed life or engaged positively with the outside world. And here I am. Unwillingly repeating her pattern.

When I can, I go out and see friends with the kids, and I try to hide my tiredness. To reach out and live. I never, ever promise my kids we'll do something "later". Who knows how awful I'll be feeling by then?

It's another Saturday with the kids stuck in front of the TV. Arguing. They fight over everything. I'm too tired to play with them. It's too hot to go outside. And now I want to put ear-plugs in and lie down in a cool, quiet room. Correction, I don't Want To. I simply have to.

What's my worst fear? Being a terrible mother.
I can't even think about our financial situation with me unable to work.

Suzie

littleme

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Re: What are your Worst Fears?
« Reply #27 on: August 21, 2010, 05:37:50 AM »
It seems like many of us have the same or about the same fears.

I feel like this I am a ticking time bomb sometimes.  I am afraid of when my symptoms are going to explode and really slow down my life.  Right now I try my best to push through it and hide a lot.

 I only rest when it is really bad.  I feel like I constantly am complaining about something not feeling right.

I fear losing my family to this.  My husband and I have always been very active, I fear I will frustrate him.  I fear my two little guys will find me boring or always sick b/c I can't do as much for them. 

I fear the future.  The unknown. 
Female. No diagnosis, plaquenil, prednisone (for flares), restasis, multivitamin, fish oil, vitamin d

Katybarstool

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Re: What are your Worst Fears?
« Reply #28 on: August 21, 2010, 02:53:44 PM »
My worst fear at the moment is that I need more surgery - and will lose my job because of my sickness record. My fear for the future is that I lose control of my life because of SJS.

Kathyx

Patze

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Re: What are your Worst Fears?
« Reply #29 on: August 21, 2010, 05:31:14 PM »
Sending you hugs my friend and I'll keep the fingers crossed that everything turns out well.


Patze
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