Dearest Navydad:
Again I must say, don't GO!
I've been thinking about you.
Having this terrible set of physical problems, with no diagnosis and no treatment is horrific.
And only you can decide how to proceed, that's clear.
I'm only beginning to have a tiny part of what you are suffering, so I cannot begin to speak to your suffering.
I am beginning to realize, however, having a firm diagnosis isn't going to make much difference. With the current level of medical knowledge, my condition can't be cured or even slowed, never mind stopped. All I can hope for is some relief from the symptoms.
I don't know how I"ll feel about all of this down the road. I hoped it would be a slow progression, but I can tell that already my hands and arms are becoming involved.
I do know that I want to make decisions about my future, myself. And I will.
I know most of all, in my heart of hearts, that sharing with others, reaching out to others and letting them comfort me, is the core of my life and well being.
And so, Navydad, I hope fervently that you will continue to share with me and others. Stay in touch. You are NOT a diagnosis or a disease or a treatment. You are a man, unique and interesting, and I hope you will continue to post here, and share with me and all of us.
Keep us posted.
Kisses
Carolina
