I guess I should start with Wednesday,, I had 18 tubes of blood taken, full body scan, EMG, a couple of autonomic test,, Qsart and another I dont recall,,, and I am sure I am missing a few in there,
Last night we got a call that they wanted more blood,, so in between appoitments today which was a MRI,, Fat aspiriration,, (fat cells taken from stomach),, I had to give some more blood,, then it was a sweat test, get covered with poweder and stick you ina hot booth to see where you sweat,, my hands and feet arent sweating,,
Tomorrow we see the eye doctors for a two hour eye test, then we meet with the neuros,, and possibiliy with a Rheummy,, I mighthave mentioned that the neuro thinks I should nothave been treated with rituxin unless there was overwhelming evidence of a small fibere neuropathy,, but I had to sign a release for them to send up the slides from the sural nerve biopsy,, they want me to have another lip biopsy,,, but not as extensive as one might get,, just a few cells,,,
My weight is down to 135 lb,, down from 160 just over a year ago,,, so I am praying that they find out why that is,, they also want the biopsy lsides from teh punch biopsy,, one thing I had to think about was something the neuro said,, that the place where they took the punch biopsy was taken might have been taken from a damaged area,, like a old wound or something ,, I know better,, my legs are always cold,,, So when we meet with them tomorrow,, I will repeat what i have said here,,,
My wife has ben a trooper,, going to Mayo daily,, dragging me to appoitments,, and still laughing at me for giving some women at a rest stop 40 bucks ,, she had a baby and was crying that she could not get her keys and purse out of her car and needed money for a key guy,,, I gave her my number,, and address,, but my wife thinks i;ll never see the money
