Author Topic: hi everyone  (Read 2342 times)

lovely.owly

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hi everyone
« on: March 30, 2010, 07:06:19 AM »
I am new here. I have some questions!

I am a 24 year old healthy female. For the past few years, I've had several infections in my Parotid glands (salivary glands). I saw an ENT and he said my blood test was "speckled" with nuclear antibodies. Now, he's referring me to a Rhuematologist because they think I may have Sjogren's syndrome or the early stages of it...However, I don't have a dry mouth...if anything, my Parotid glands produce too much saliva (it just slows down overnight) and my eyes aren't dry...dry mouth and eyes seem to be the main symptom of Sjogren's syndrome...also, they say Sjogren's syndrome runs in the family and NO ONE in my family has any history of any autoimmune disease...

Any ideas? Could it be Sjogren's syndrome or maybe something else?  ???
« Last Edit: March 30, 2010, 07:08:16 AM by lovely.owly »

harrigan

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Re: hi everyone
« Reply #1 on: March 30, 2010, 01:12:17 PM »
Welcome Owly - someone will hopefully be alomg who can explain more about the blood test results.  I just wanted to say hello, and hope it isn't the start of an AI.  However, if it does turn out that way, at least you are getting treated very early on, which is a great position to be in.  Hope you get some answers soon XX Ailsa
Female, 54
Diagnosed with Sjogrens March 09; Rheumatoid Arthritis February 2010
Meds: abatacept, Methotrexate injections , Folic Acid, Amitriptyline, Ozepramole, Tramacet, Glandosane & Viscotears.

Pisces24

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Re: hi everyone
« Reply #2 on: March 30, 2010, 04:41:14 PM »
There are a whole bunch of "symptoms" of Sjogrens. The dry eyes and mouth are just the obvious ones that the drs like. :) Sjogrens just doesn't fit the "textbook" definitions that the doctors like for diseases so it is hard to get them to diagnose it. Congrads on finding one that even knows what SJS is!

The only symptoms I had when I started my quest to get diagnosed were: odd bloodwork numbers, more of a problem with teeth cavities and 5-7 sinus/throat infections per year. My gp was bound and determined to get to the bottom of why my bloodwork was off so I started the "specialists rounds" and was finally diagnosed with SJS after about 6 years.at a teaching hospital when the immunologist I started to see had an aha moment & thought to blood test for it.

Never heard the term "early stages" of SJS. I thought it was like being PG - you either are or ain't.  :D   AND also SJS can just stay the same forever, come & go, or progress. The doctors just don't know. They say it is progressive but the RATE of progression is different in everyone. I figure I have been about the same for 10 years but the drs are monitoring me because of my weakened immune system. It is too easy for use to get sick.
Giood luck on your Quest!

Scottietottie

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Re: hi everyone
« Reply #3 on: March 30, 2010, 05:21:12 PM »
Hi lovely.owly  :)

Welcome to Sjogren's world. I'm not a doctor so I have no iudea about different causes of parotid infections or swellings but it sounds like you have a good doc. Seeing a rheumy certainly would do no harm and may give you some answers.

As Pisces says - Sjogren's is a very individual and unpredictable disease. I'm sure I had it way before the dry bit of it happened but it took me years to get a dx.

I hope you find you don't have it but if you do I hope you are one of the many with slight symptoms. If you have it, it makes sense to be monitored anyway.

I hope you get the answers you need soon.

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
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Never do tomorrow what you can put off till the day after tomorrow!

lovely.owly

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Re: hi everyone
« Reply #4 on: March 31, 2010, 04:33:34 PM »
Thank you for all of the information and responses :) I guess I will anxiously wait and see what the Rhuematologist has to say.....

lynnmarie219

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Re: hi everyone
« Reply #5 on: April 01, 2010, 07:13:23 PM »
Hi Owly,

Just want to add my welcome to you as well! Take your time and read all you can here and if you cant find the answers you are looking for...just ask....someone will always be along to help out. This is a friendly and safe place to be!

Good luck at your rheumy appt!

Pisces24

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Re: hi everyone
« Reply #6 on: April 02, 2010, 03:59:57 PM »
Have to comment on the Owly name.  When I was a kid and didn't feel good my dad used to say "you just feel owly huh?".  Its is kinda like being sore, frustrated, impatient and irratable all at the same time.