Author Topic: vit d  (Read 5377 times)

camj

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vit d
« on: January 17, 2010, 02:24:07 PM »
Has anyone improved their symptoms just by increasing their vit d to the optimal level?

Epson

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Re: vit d
« Reply #1 on: January 17, 2010, 03:10:43 PM »
No.

lynnmarie219

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Re: vit d
« Reply #2 on: January 17, 2010, 03:22:16 PM »
I know my docs have checked my levels and they were ok so no treatment was necessary for me......right now I just take a maintenance dose in my multi vitamin and calcium tablets.

Babs659

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Re: vit d
« Reply #3 on: January 17, 2010, 03:59:30 PM »
It's hard to tell.  My ferritin stores and Vit D were discovered at the same time as my SJS.  So I was put on vit D, Iron and Plaquenil all at the same time.

Patze

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Re: vit d
« Reply #4 on: January 17, 2010, 04:20:40 PM »
Hi Camj,

I've been on 50,000 units of vitamin D from once a month to once a week for several years now (I can't seem to maintain a steady level of it in my body - it's up, it's down, and it's all around! :D).  Have my symptoms improved while on it, sometimes it seems that I feel a bit better (not so achy/tired), but others, it feels like I got hit with the misery stick.  Ugh.  ::)

I have recently switched my thyroid med from a T4 only to a combo pill, and I'm waiting to see if that'll help with my absorption issues (so I can get rid of the vitamin D pill for once and all! :))

Now if something would get rid of the fibro symptoms, I would be a happy person!

Take care -

Patze
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Scottietottie

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Re: vit d
« Reply #5 on: January 17, 2010, 06:09:15 PM »
Hi Camj  :)

Yes - I have. It took me ages to get a doc to test my Vitamin D but when they did it was low. I've been taking supplements for about 6 months now. The pins and needles I woke up with every morning from feet to knees and from hands to elbows have gone.

Take care - Scottie  :)
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Joy Cox

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Re: vit d
« Reply #6 on: January 17, 2010, 06:48:41 PM »
Scottie, may I please ask how much Vit. D you are taking? And, is it daily?  

Am very interested in following this thread as I'm in the low range.

Do you have neuropathy issues?
« Last Edit: January 17, 2010, 06:51:31 PM by Joy Cox »

louise

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Re: vit d
« Reply #7 on: January 17, 2010, 07:06:53 PM »
Yes I think it helps a lot with my leg muscle pain.
primary sjogrens, adderall xr, diclofenac ,vitamin d3, percocet, b12,b6, omega3, ibuprofen, protonix, voltaren gel, lots of sugarless gum and candy.

Joe S.

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Re: vit d
« Reply #8 on: January 17, 2010, 07:10:50 PM »
I take a few thousand units of D3. It works better for me than D.
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eyeamdry

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Re: vit d
« Reply #9 on: January 17, 2010, 10:36:31 PM »
I've been low on testing a couple of times and put on 12 weeks therapy (don't ask--I forget).  Can't even say if it helped or not.  Lucy

wen.uk

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Re: vit d
« Reply #10 on: January 18, 2010, 07:16:37 AM »
Been on Vit D3 and calcium for a few months now for my osteoporosis, can't say that I've noticed any improvement in anything SjS related, but maybe it's still early days.
Wen x

Scottietottie

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Re: vit d
« Reply #11 on: January 18, 2010, 07:42:32 AM »
Scottie, may I please ask how much Vit. D you are taking? And, is it daily?  

Am very interested in following this thread as I'm in the low range.

Do you have neuropathy issues?

Hi  :)      My Vit D was low but not dangerously so. My doc prescribed tablets called Calceos - a mix of calcium and Vit D. I take 2 a day and as far as i can read, that's 1000mg calcium and 800 IU Vitamin D3 daily. When my Vit D got back to normal levels I asked if I should stop but I've been told just to keep taking them.

I have intermittent neuropathy rather than full time. A lot of my symptoms seem to be transient. Dryness and joint pain pretty constant. The soles of my feet 'burn' a lot and the Vit D hasn't helped that. I am having less pins and needles though and I feel as though my muscle tone is better.


Take Care - Scottie  :)
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harlin

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Re: vit d
« Reply #12 on: January 18, 2010, 11:31:25 AM »
My Vitamin D level was a 3 and they put me on 50,000 a day for 12 weeks then I take 1,000 a day I guess for ever. Can't tell any difference. I ask them to ck my iron level and my thyroid when I go in the first of Feb. We shall see
Harlin