Sorry Inga,, didnt mean to say Upbeat, I kinow how you feel,, I have never never never had a day where I actually felt like I was coming out of a flare,, its there always,, never goes away, I got a bunch of paperwork from the neuros yesterday,, they feel the SFN may be SS,, Lupus or systemic sclerosis, BUT,, they never did a good search for the cause of it, sometimes I wonder if its SS at all,, I am almost afraid to eat anything anymore,, the autonomic nonsense makes things rough,, I complained for months that my stomach was slowing down,, ah,, thats just irratable bowel,, ok,, Idiots,, my hands dont work well anymore, they feel like they been burned off,, I drop things constnatly,, I want to throw something though a window,, I am so P---ed that this thing is eating away at my nervous system,, I;m tired of calling doctors,, faxing paperwork to social security,, I am waiting to see if I;m going to get fired,, al because for the forst two and a half years i wasent taken seriously,, was even told that maybe a round of shock treatments might help,, WTF, ,, the EMG studies never showed anything,, the neuros in there naratives said they didnt do enough biopsy to determine the nerve lengh that was involded,, then why dont you do it,, there even looking for a occult cancer,, (parenteoplastic syndrome), its been a comedy,, I;ll give my GP credit,, he finnaly threw his hands up and said I have no idea whats going on,, that began my search,, I;m just tired,, tired of the day to day fight,, it is a struggle,, and its been just horrible watching my quality of life shrink to zero,,
as for the red dots, I got them on the pams of my hands and the soes of my feet,, hundreds of red dots,, after about two weeks they faded and my feet and hands peeled,, this happened before and the dermotologist had no clue then what it was,, why do we get the weirdst things going on with our bodys?,, Inga,, I feel for you,, I believe I am going through exactly what you are
