Hi everyone I am new here, and wondering if anyone can offer me some advice. I was diagnosed in July with SS. The Rheumatologist that diagnosed my wants me to start immediately on IV Cytoxin. After reading many of the stories on here I have not heard of too many people on it. I wanted to try the Plaquenil therapy and see how that worked but he said I just need to accept the Cytoxin or there is nothing he can do for me. I have had problems for several years - fatigue,joint pain, numbness, pins and needles, brain fog, forgetfulness. about a year ago my teeth got really bad and several just broke off, then in April 09 I had the worst acid reflux and dry throat and could barely swallow. My primary put me on steroids at the time and sent me to a GI. Thank god it has healed to the point that I can swallow soft food now, but still have reflux really bad. Does anyone know anything about the Cytoxin or have had it before and with what kind of results.
Thanks,
Patty
38 year old female
Primary SS