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Living With Sjogren's / Re: Panic attacks? How do you fight them?
« Last post by trejonina on Today at 02:20:50 PM »
Hi, google  1) Super Brain Yoga exercise . 2)youtube alternate nostril breathing . And :3) 8 breathing exercises to try when you feel anxious by Healthline. Learn and do them before the panic attack. Yoga has been around for thousands of years, it works.
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Living With Sjogren's / Endoscopic Irrigation Brings Long-term Oral Relief
« Last post by Maria3667 on October 30, 2020, 04:31:25 AM »
At last, some attainable long term relief for dry mouth sufferers  :)

Study was executed in my own backyard (and no one even told me!).

https://sjogrenssyndromenews.com/2020/10/12/endoscopic-irrigation-brings-long-term-oral-symptom-relief-sjogrens-patients-clinical-trial/
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Living With Sjogren's / Re: Electrical stimulation lacrimal gland
« Last post by Maria3667 on October 28, 2020, 06:31:12 AM »
Never mind the above!

Turns out a device called 'TrueTear' by Allergan, was approved by the FDA in 2017 - but despite being effective - production ceased due to high manufacturing costs!! ... What a bummer !!

Now it's inventor, Michael Ackermann, has set up another business venture, (Oyster Point), for a nasal spray that stimulates the same nerve as TrueTear.

ON A POSITIVE NOTE: At least some light has been shed on the circuitry behind dry eyes: stimulating the trigeminal nerve inside the nose can reverse dry eye symptoms. Actually, it might be the same malfunctioning nerve (or a branche off) which is causing dry mouth.

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Living With Sjogren's / Electrical stimulation lacrimal gland
« Last post by Maria3667 on October 28, 2020, 04:05:34 AM »
Hi everyone,

This study by Stanford University looks very promising! Schirmer test score increase of 125% !

https://www.medgadget.com/2015/12/eye-implant-producing-tears-fight-dry-eye-syndrome.html
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Living With Sjogren's / Re: TMJ after dental procedures
« Last post by meirish on October 27, 2020, 10:45:47 PM »
That is extremely interesting Scottie. Thanks. meirish
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Living With Sjogren's / Re: TMJ after dental procedures
« Last post by Scottietottie on October 27, 2020, 05:03:12 PM »
Hi  :)
 
My husband was bothered by TMJ. In his case it turned out his Vitamin D was low. He was prescribed a high dose of Vit D for 3 months. The TMJ cleared up and he also lost aches and pains in his hands that he had for awhile.

just a thought.

Take care - Scottie  :)
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Living With Sjogren's / Re: We were exposed to covid. Suggestions?
« Last post by Carolina on October 27, 2020, 05:52:03 AM »
Good news for you!  ;D

I hope your son is doing well, dee.

Love, Elaine
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Living With Sjogren's / Re: SalivaMax: my dentist recommended it.
« Last post by Carolina on October 27, 2020, 05:46:57 AM »
Thanks, Linda.

It's clear that it can't increase saliva production, and so far I don't see that it temporarily replaces saliva, either. 

But I'll keep trying the sample packets, I guess.  I do find the Xylimelts helpful.  Sugarfree gum helps, but I don't like chewing gum in public :-\

Elaine

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Living With Sjogren's / Re: SalivaMax: my dentist recommended it.
« Last post by Linda196 on October 27, 2020, 02:44:25 AM »
From what I've read about it, it isn't meant to increase saliva production, but to temporarily replace it.
Used as a rinse, it moisturizes the mucosa with an electrolyte solution similar to saliva, in other words, it relieves symptoms, but doesn't treat the condition.

The manufacturer does offer a patient assistance program, mentioned on their website
    forwardscience.com/salivamax   (edited to remove a sales site, I caught myself! LOL)
but I didn't find a link. You may have to search SalivaMax patient assistance


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Living With Sjogren's / Re: We were exposed to covid. Suggestions?
« Last post by meirish on October 26, 2020, 11:10:22 PM »
Dee, So many people are having more concerns than usual this year, but having a sick husband is really the hardest for any woman to deal with. This is a good place to "wail and moan" as we all understand. Even though we are separated by miles the concern we have for you is heartfelt by all. I will keep you in my thoughts and prayers. Please keep us updated on how you and your husband are getting along. meirish
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