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Sjogrens Topics => Living With Sjogren's => Topic started by: bluegardenia on November 01, 2020, 03:40:55 PM

Title: lactoferrine
Post by: bluegardenia on November 01, 2020, 03:40:55 PM
in Europe the new thing against virus is something called Lactoferrine. it comes from colostrum that is a part of  breast milk.Anybody heard of this?
Title: Re: lactoferrine
Post by: Maria3667 on November 02, 2020, 04:26:53 AM
Yes I've heard the buzz too!

Nowadays it's often made from a residue of cow's milk (bovine).

Did some research but I'm undecided if it actually does anything for us. A lady in another forum said she rubbed the powder on her gums and it improved salivation, but did nothing to relieve dry eyes. However, I don't know if she took the required 270 mg as reported beneficial in a study. The product is quite expensive.

Whole study is here (search for 'lactoferrin').
https://link.springer.com/article/10.1186/s12950-017-0174-3

Ciao!
Maria
Title: Re: lactoferrine
Post by: bluegardenia on November 02, 2020, 02:25:11 PM
I posted that not because they say its something for Sjogren but for Covid or other virus! what I am worried about is if this could be BAD for us because it improves  the defenses while we have already a system that reacts too much
Title: Re: lactoferrine
Post by: jazzlover on November 03, 2020, 08:48:13 PM
I've taken it before. It's in some probiotics.
Title: Re: lactoferrine
Post by: Maria3667 on November 04, 2020, 04:33:30 AM
I posted that not because they say its something for Sjogren but for Covid or other virus! what I am worried about is if this could be BAD for us because it improves  the defenses while we have already a system that reacts too much

Hi Blue,
Then wouldn't a possible vaccine against Covid-19 also be bad for us if it raises our immune response too much? ... I really don't know! Maybe @Linda can shed some light on this issue.
Title: Re: lactoferrine
Post by: Linda196 on November 05, 2020, 03:11:58 AM
There is a difference between "immune regulators" and "immune enhancers or boosters" and a big difference in individual response.

Regulators act to "level out" the immune response, make it more appropriate if you will, so that antibodies can still be formed against harmful organisms, but hopefully there is limited activity against benign or helpful organisms (like our own tissue)

Boosters do just that, boost the response to everything.

Each person with autoimmune disease responds to the regulators dependent on the actual cellular makeup of their disease, I know things like Echinacea are generally a problem for all AI sufferers, but some (like me) have issues with Vitamin C, too, so it's kind of trial and error as to how we will react to any immune modulating substance.

Vitamin D has been recommended as possible protection from COVID, citing deficiency in almost all tested cases, and it is also strongly recommended in AI.

Vaccines are another issue entirely. Their function is to activate against specific organisms, and produce antibodies against that one organism. There are some theories about certain immune mediated diseases like Sarcoidosis and Diabetes (which as yet have no unique identifying autoantibodies) being the result of a mis-reading of the organisms which cause Coxsacki virus antibodies, but as far as I'm aware that is still theoretical.

That probably makes the whole issue even more confusing, I'm sorry.
Title: Re: lactoferrine
Post by: Maria3667 on November 05, 2020, 02:22:52 PM
Hi Linda,

Thank you so much for trying to explain this complex matter to us. I think I get the hang of what you're saying - including the difficulty trying to predict personal outcomes due to individual responses.

You're right about Enchinacea - it always makes me I'll. Vit C is my friend (for now).

As to vit D, my rheumatologist recommends upping my dose, but each time I try my eyes become even drier.

I think you're suggesting a vaccine might be safe for us? ... With so much contradictory (pseudo)-evidence floating around the web, I hardly dare take stance.

Thank you for sharing your thoughts!