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Sjogrens Topics => Living With Sjogren's => Topic started by: Deseree on January 23, 2020, 10:37:58 PM

Title: Questions about relapsing/remitting symptoms
Post by: Deseree on January 23, 2020, 10:37:58 PM
Hi guys, it's been a while since I posted, mostly because I felt that being on these boards was making my anxiety worse, so I avoided them for a while. I have since seen my rheumatologist many times, and my bloodwork has been repeated. Interestingly,  with the exception of my very mildly elevated results on my first early-sjo test, everything since then has been negative. My doctor said that she doesn't always trust results when they are that borderline, but since I had such bad symptoms, she was reluctant to change my diagnosis. Also interestingly, my symptoms completely resolved for about one year, until today. My dryness came back suddenly and out of the blue while I was speaking on the phone today. After a year of being symptom free. Just curious, has anyone here had this kind of remission? Is it possible that this is something else like stress or anxiety? I was under the impression that Sjogren's almost always stays the same or gets worse. I'm very grateful for the relief I've had, but now I'm feeling the fear again as I wonder what the future holds.
Title: Re: Questions about relapsing/remitting symptoms
Post by: Joe S. on January 24, 2020, 03:54:09 PM
I was in remission on the most serious symptoms for some time. Back in December I came out of remission for 3 bad weeks. I am back in remission now.