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Sjogrens Topics => Living With Sjogren's => Topic started by: Deb 27 on March 17, 2019, 04:32:40 PM

Title: Facial rash
Post by: Deb 27 on March 17, 2019, 04:32:40 PM
Does anyone else get red rashes on their face? It kind of looks like a lupus rash but it's also on my forehead. What do you do for it? Thanks!
Title: Re: Facial rash
Post by: Carebear on March 17, 2019, 10:22:00 PM
Hi Deb,

I have a similar sounding rash.  Mine is rosacea.  It can spread across my nose, and on to my chin, cheeks and forehead.  When it's at it's worst it is so painful, feeling prickly and burning. 

As I type this I realize that since taking gabapentin my rosacea has cleared up.  There may be no connection though.
Title: Re: Facial rash
Post by: Joe S. on March 18, 2019, 01:50:32 PM
I am going to suggest that you see your rheumy. It could be lupus, or it could be something else.
Title: Re: Facial rash
Post by: Deb 27 on March 24, 2019, 04:12:25 PM
Thanks Joe and Carebear.  I am going to my rheumy in a week or so. I saw one Derm a few months ago that said it was auto immune. I went to the dermatologist last Friday and saw another NP and she thinks it is rosacea. I do not think it is rosacea, to be honest. I do not have fair skin or eyes.
Carebear, mine is not prickly, warm or burning. I am doubting the rosacea diagnosis. I wish it was rosacea and not auto immune! Mine seems to come and go. They gave me some meds for rosacea. We'll see how it goes! If it's not one thing, it's another!!!

Title: Re: Facial rash
Post by: Skylar on March 24, 2019, 06:11:06 PM
Deb, anyone can get rosacea - you don't have to be fair skinned. It's easier to see on light colored skin and more common but not limited to fair skin.

I've had that "butterfly" rash for most of my life - rheumy always watches it. I also was diagnosed with rosacea. It developed into a really embarrassing stage with lesions etc. Because I was doing research with the chairman of Dermatology for several years - they threw everything at me. I've had the laser treatment three times - each time the broken red blood vessels returned.

I was surprised that it completely cleared up when I changed my diet - a significant change - only eat whole plants now. I figured my cholesterol would drop but shocked that my rosacea cleared up. While there are several theories why people get rosacea, I think the basis of it is inflammation and when I reduced my overall inflammation, I put into remission rosacea along with fibromaylgia, pain from arthritis etc. It doesn't cure my autoimmune diseases, but it makes them easier to live with.

You mention your rash has come and gone - could your level of inflammation have changed due to medication or reduction of stress or some other event in your life?
Title: Re: Facial rash
Post by: SunshineDaydream on March 24, 2019, 08:47:55 PM
Last week my dermatologist gave me rosacea and eczema diagnoses. Itchy. Prescribed cream for it.
Title: Re: Facial rash
Post by: Deb 27 on March 25, 2019, 08:58:42 AM
Skylar, I have a very strange system. That rash can fluctuate in hours!!! It's very strange.
I am sure most of us with AI disease have inflammation. I also have a very strange system with some flaws in how I process folic acid and also medications. I think the rash on my forehead is different from the rash on my cheeks. I am going to ask my rheumy next week! I've only seen him once or twice so I am not sure about him. My sed rate had doubled and my CRP was up but he was not concerned..........

Sunshine, I hope the meds help your rosacea and eczema. Ugh, you got a double whammy!

Title: Re: Facial rash
Post by: eye2dry on March 25, 2019, 01:39:54 PM
I have had rosacea since 1995. I have used doxycycline and Metro gel. For the last 8 year's
I switched to better.

The rosacea "rash" changes on your face depending on external temps, sunlight, spicy food, emotions
exercise, etc.

It is mostly associated with people of European ancestory.

I read several articles through out the years and it is suspected of being in the immune disease category.
I have had laser treatments to decrease mine, especially chin and nose is the worst for me.

Unfortunately, I also have ocular rosacea as well.

It is annoying. Yes, to be sure check with your rhuemy on the lupus idea.

Title: Re: Facial rash
Post by: jazzlover on March 26, 2019, 08:28:17 PM
Google "mast cell activation syndrome" ... could very well be "flushing" from MCAS.

It would/could fluctuate with what you eat or take in pill form.
Title: Re: Facial rash
Post by: SjoGirl on April 11, 2019, 01:00:24 PM
I have Rosacea and have also had the butterfly rash of lupus though was never diagnosed with lupus. The two differ, the Rosacea comes and goes based on triggers, e.g., certain foods, heat, and sun exposure are my triggers. I have not had the lupus rash in many years and hope it does not crop up again, I have enough AIs and other issues.
Title: Re: Facial rash
Post by: Deb 27 on April 11, 2019, 02:44:48 PM
The rheumy said it looked like rosacea to him. The cream the dermatologist gave me seems to be working. My skin still feels funny though. It's always something but I was glad it wasn't a lupus rash!!!
Title: Re: Facial rash
Post by: susanep on April 11, 2019, 09:31:11 PM
I have the bad rashes, but on my forehead they are getting worse. Very red and deep looking, and if I don't keep something on them they get sore and scaly. I do have lupus. At their worst they are like disks in shape on my forehead, but the butterfly rash on the rest of my face. My dermatologist had me use Cere've cream for sun protection, and I use it in a big jar for a moisturizing cream at night. I only use glycerin soap.

Title: Re: Facial rash
Post by: irish on April 11, 2019, 10:15:51 PM
To see pictures of lupus rash and roseate do a search. Use the phrase images lupus rash and also images roseate rash. This is the really easy way to do a search on almost anything that would have pictures taken. The medical community is pretty good about taking pictures of just about any visible symptom so that others can use the images to h ell in diagnoses. Irish
Title: Re: Facial rash
Post by: sixty on April 12, 2019, 11:48:53 PM
I sometimes use makeup to cover up the rash if I have to go out.  I don't have lupus that I know of, but I do get the rosacea.  I can feel it starting when it comes, my face gets really hot and burns.  I carry a moist towlette with me to dab my cheeks thru the day.  It help a bit.  Any coolness helps.
Title: Re: Facial rash
Post by: SjoGirl on April 17, 2019, 01:37:30 PM
Deb I'm pleased to hear that the cream is working. Did your dermatologist also give you a list of possible triggers?

FYI that list is very long but my dermatologist said it's usually only a few things that cause Rosacea. One way to know if something is a trigger, according to him, is if you break out fairly soon after trying a certain food or being exposed to sunshine. He is right that the rash usually comes on quickly, though mine sometimes is most evident in the morning.

It is worth experimenting with things like dairy, sunshine/heat, etc. to learn what your triggers are. I've had to forego dairy products for the most part but I do have some parmesan cheese at times because I just love it and there really isn't a good non-dairy substitute.
Title: Re: Facial rash
Post by: Carebear on April 17, 2019, 03:57:46 PM
Hi Deb,

Mine often feels very dry and a weird kind of tightness.  I find that using gentle cleansers and moisturizers helps.  Don't use anything abrasive either.  Good luck on feeling better.
Title: Re: Facial rash
Post by: sixty on April 18, 2019, 11:46:54 PM
Also remember alcohol is a big reason for rosacea breakouts.
Title: Re: Facial rash
Post by: Kris29 on April 19, 2019, 06:35:55 AM
What great info! I haven't visited the forum in a while but came here today partially to ask about rashes. I'm having rash issues too. I don't know how the weather is where you live, but here the weather just warmed up. And I spent a lot of time working on yard stuff in the last couple of weeks...I hope the cream continues to give you relief!
Title: Re: Facial rash
Post by: Deb 27 on April 19, 2019, 04:19:38 PM
Sjogirl, I suspect dairy is a trigger for me as well. There might be others, but right now, it's much better because of the meds. I go back to the Dermatologist in a few weeks. We'll see if it comes back when I quit using the area. I don't want to use an antibiotic cream indefinitely.

Thank you for all of your replies!!!
Title: Re: Facial rash
Post by: Sharon on April 21, 2019, 02:40:01 PM
Hi, I'd like to add to this that I would have these rashes before I found my triggers (and now avoid them).
Chemicals are a trigger such as detergents and fragrances in soaps and creams.
The sun is a trigger for me as well.
Best of luck!