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Sjogrens Topics => Living With Sjogren's => Topic started by: Joe S. on January 28, 2016, 12:15:59 PM

Title: you know that you have sjogrens ......
Post by: Joe S. on January 28, 2016, 12:15:59 PM
When you lick an envelope to seal it shut, it pops back open and the glue is totally dry!

That was after a sip of water, too.
Title: Re: you know that you have sjogrens ......
Post by: eye2dry on January 28, 2016, 12:42:51 PM



You know you have Sjogrens when.................you open your mouth to

speak and it is glued shut d/t extreme dryness.


shelly
Title: Re: you know that you have sjogrens ......
Post by: Sharon on January 28, 2016, 01:33:28 PM
Ha ha...so true guys  :D :D :D
Title: Re: you know that you have sjogrens ......
Post by: Nymph on January 28, 2016, 03:18:53 PM
when half the weight of your purse is eyedrops, nasal spray, 5 kinds of lip balm, and pills!
Title: Re: you know that you have sjogrens ......
Post by: Joe S. on January 28, 2016, 03:22:47 PM
:) love em ;)
Title: Re: you know that you have sjogrens ......
Post by: irish on January 28, 2016, 11:13:03 PM
You know you have Sjogrens when you need to take that purse with you whenever you leave the house. You also have to have your sunscreen and sunglasses in case it is sunny. You also need to have a long sleeved shirt in the car at all times in case the sun is shining. How about a basket by the seat with all the survival stuff a Sjoggie needs.

Remember the good old days when you just grabbed your keys and bill fold and took off footloose and fancy free. Irish

Title: Re: you know that you have sjogrens ......
Post by: Seeker on January 29, 2016, 02:41:29 AM
You know that you have Sjogren's when, a bully kicks sand in your eyes, and when you look around there is no bully.
Title: Re: you know that you have sjogrens ......
Post by: ohiolady on January 29, 2016, 06:30:10 AM
Loved the purse one.  Our purses look like suitcases so they can hold everything. 

Anna
Title: Re: you know that you have sjogrens ......
Post by: SjoDry on January 29, 2016, 07:43:20 AM
Okay ya'll...

You know I can't see that topic without re-posting the video I made a few years back. For those of you newer folks...I noticed that so many Sjoggies were feeling down & depressed with so many challenges. With that in mind, I asked everyone to give me their best one liner...You Know You're A Sjoggie When.... I took all of those responses & made a very amateur video.

**Please note this is just a product of SjoDry's wacky sense of humor & an attempt to bring a smile to my fellow Sjoggie-Mates.

Enjoy...https://sjodry.wordpress.com/2013/03/01/you-know-youre-a-sjoggie-if-2/  If this link doesn't work, you can goggle: You Know You're A Sjoggie When...

SjoDry
Title: Re: you know that you have sjogrens ......
Post by: grammad97 on January 29, 2016, 11:14:18 AM
😊😊😊
Title: Re: you know that you have sjogrens ......
Post by: SjoGirl on January 29, 2016, 03:44:00 PM
And you cut your tongue in the process!
Title: Re: you know that you have sjogrens ......
Post by: Liz D. on January 29, 2016, 04:06:46 PM
These are great and so true. ????????????????

In my case, you know you have it when a 5 year old girl says, "you have weird teeth!" 

Thank goodness I have thick skin and love children and the honesty of kids.

Liz D.
Title: Re: you know that you have sjogrens ......
Post by: JennyWren on January 30, 2016, 07:50:27 AM
How about, You know you have sjogren's when you can chop an onion without crying......still hurts though x
Title: Re: you know that you have sjogrens ......
Post by: Joe S. on January 30, 2016, 12:42:50 PM
 :)
Title: Re: you know that you have sjogrens ......
Post by: Deb 27 on January 30, 2016, 01:34:21 PM
 Ditto with what Nymph said. Not only is my purse full of supplies, so is my house. I finally got tired of my house looking like a person in hospice and put all my pills in a pill box. ALso the pharmacy that is closest to use uses these extra large bottles even for 30 tiny pills so it takes up room in the medicine drawer and cabinet.

At least I finally found a shampoo and conditioner for very dry hair that works so now my bathroom isn't cluttered with all these unused bottles of shampoo/conditioner that didn't work. I even had a nice collection of small ones.

Oh and you panic if you don't have any water by your side at all times.
Title: Re: you know that you have sjogrens ......
Post by: Princess Tusi on February 07, 2016, 02:00:06 PM
When you can explain by rote how you're not dehydrated but still need your water bottle at all times

When your kids play 'guess the word Mummy's trying to think of'
Title: Re: you know that you have sjogrens ......
Post by: Lotus1 on February 07, 2016, 02:31:50 PM
you dive into a fresh piece of pineapple & your tongue gets very sore or bleeds, next dive for the chewing gum :(
Title: Re: you know that you have sjogrens ......
Post by: Kathy57 on February 07, 2016, 04:04:46 PM
When you are constantly clearing your throat or coughing and all your family members know it's you, no matter where you are at the Mall, grocery store, or the house. 

Good luck playing hide and go seek with the grandkids!😉

Kathy
Title: Re: you know that you have sjogrens ......
Post by: juliechurch on February 09, 2016, 02:42:03 AM
you know you have Sjogrens when you just step out the shower and you skin looks as if u never showerd
Title: Re: you know that you have sjogrens ......
Post by: A Mom on Spin on February 09, 2016, 06:22:12 AM
When you go to pick up your prescription refills and the pharmacy has a shopping cart ready for you!
Title: Re: you know that you have sjogrens ......
Post by: Joe S. on February 09, 2016, 06:51:25 AM
When you go to a family reunion and spend the time talking about non drying soaps.
Title: Re: you know that you have sjogrens ......
Post by: irish on February 09, 2016, 05:28:50 PM
You know you have Sjogrens when you don't bother to talk about it to anyone anymore. In other words you are just sick of the whole shooting match. Irish
Title: Re: you know that you have sjogrens ......
Post by: kimberly64 on February 09, 2016, 06:07:19 PM
Yep Irish exactly!  It much less stressful just to not have to deal with the skeptism, questions and pity!
Kimberly
Title: Re: you know that you have sjogrens ......
Post by: quietdynamics on February 10, 2016, 08:53:01 AM


.. when YOU are the adult and your bedtime is between 8:30 and 9   :(
Title: Re: you know that you have sjogrens ......
Post by: Judie P on February 10, 2016, 07:45:35 PM
You know you have Sjogren's when you take the time to build a fortress of information for your new GI doctor who wants to share "options" for a "not clean enough" colonoscopy in November 2015.  the information is just in case he doesn't know much about SJS.
Title: Re: you know that you have sjogrens ......
Post by: LizzieC on February 12, 2016, 03:00:15 AM
haha the sand one with the bully just killed me!!!! bahaha I'm so going through that with this lastest flare up!!!   :o :o ;D ;D ::) ::)
Title: Re: you know that you have sjogrens ......
Post by: SunshineDaydream on February 15, 2016, 12:17:42 PM
when you sound like a bowl of Rice Krispies after you wake up and start the day. Snap, crackle, pop.
Title: Re: you know that you have sjogrens ......
Post by: Scottietottie on February 15, 2016, 05:37:19 PM
When you have to use your finger, first thing when you wake up, to remove your tongue from the roof of your mouth!
Title: Re: you know that you have sjogrens ......
Post by: Critter Mama on March 16, 2016, 04:27:22 PM
I love them all. I'm a freak about my water bottle, especially on vacation I have to have it. I can do tap water for an emergency, but with inrercystial cystitis, it has to be a serious need cause the bladder pain is horrible. I have a night guard for TMJ and a botched sinus surgery left me with a chronically runny nose... Course with SS, it isn't always bad, but I tend to sleep with my mouth open, so I have to pry tongue and might guard loose. And then there's that constant urge to brush your teeth cause they get kind of icky...and the paranoia of that green cartoon dead fish bad breath... And I'm noticing more and more the fog and issues remembering words...Friday night card games with my 80 year old grandmother get interesting.
Title: Re: you know that you have sjogrens ......
Post by: Carebear on March 16, 2016, 05:28:51 PM
You know that you have Sjogrens's when...darn!  I forgot what I was going to say.   ;)
Title: Re: you know that you have sjogrens ......
Post by: irish on March 16, 2016, 05:44:56 PM
You know you have Sjogrens when you make a house move and find hand lotion, eye drops, Biotene mouth and nose gel, suntan lotion, chap stick, boxes Kleenex, OTC Zantac, saline nasal drops, oil ear cleaner and lubricant, etc in stashes around the house. Heaven forbid that I would run out of something in the middle of the night or a snowstorm. Apparently my Sjogrens fog made me forget that I had already stocked up. Don't have to shop for a long time. Irish
Title: Re: you know that you have sjogrens ......
Post by: Judie P on March 17, 2016, 11:58:48 AM
You know you have Sjogren's when you send an email to everyone about a very important attachment, and you find you never sent the attachment.  Did it three times yesterday!  Total Brain fog and fatigue!  LOL