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Sjogrens Topics => Living With Sjogren's => Topic started by: mambo on October 07, 2012, 09:45:52 PM

Title: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: mambo on October 07, 2012, 09:45:52 PM
My hands and lower arms would go numb while sleeping.  I also have carpal tunnel syndrome and felt that that was the reason for the numbness at night.  At least that's according to the neurologist, who told me to sleep with my arms straight and prescribed me wrist splints for sleeping.

Could the hands going to sleep be due to Sjogren's?  One reason I'm asking is that the CTS seems to only affect one hand.  How could it make both hands or arms to go numb? 

I also have neuropathy from Sjogren's as well.  Could the neuropathy be causing the numbness?  Anyone with Sjogren's who doesn't have CTS experience their hands/arms go numb at night (or during the day when napping)?  I can feel the hands stiffen and go numb, as I fall asleep.
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: slccom on October 07, 2012, 10:05:24 PM
My husband had tennis elbow, and he certainly wasn't playing tennis!  I noticed one night that in his pain he was clenching his fists and pulling his fists to his chest. He got on some good pain medication, that let him sleep better and the tendonitis went away.

Definitely use the splint. He started getting something like carpal tunnel, and started using the splint and that solved the problem. It was a good cue that he needed stronger pain medication, too.

If you have someone to observe you when you  sleep, and even take pictures of what you do with your hands and arms, that will give you some useful clues.
Sharon
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: eija on October 08, 2012, 12:13:30 AM
I've not been diagnosed with neuropathy or CTS but lately my hands have started to go numb while sleeping. At worst it wakes me up several times a night. It seems to happen when I sleep on my back and keep my arms up or rest them on my stomach. If they're along my sides on the mattress they don't go numb.
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: gurs on October 08, 2012, 04:58:02 AM
This happens to me all the time....I have neuropathy, but thinks it just the blood flow issue. I also have raynauds and POTS, so that kinda explains it. I have this all the time, but when im flaring, it gets worse at night especially. I have pain in my legs/calves too so bad...

Gursie
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Jellyb on October 08, 2012, 05:57:46 AM
Me too! Numb hands while I am sleeping. It takes a minute to wake them up when I need to reach for a sip of water. My doctor said to wear the splints she gave me but they are just too big and glunky
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Ark mom on October 08, 2012, 06:52:06 AM
I have this off and on, too, during flare ups or if I am retaining fluid around my period.  It stinks.  :(. It hurts!
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Whereismycake on October 08, 2012, 08:59:04 AM
I also get numb forearms and hands while Im sleeping. Sometimes only the last two or three fingers will go numb, or sometimes they are the only ones that aren't numb (if that makes sense) on both arms/hands.
It's painful and usually wakes me up. I have to shake them and massage them for ages until they come back.
I also get numb or heavy hand/s after doing a lot of writing, or using my hands for tasks (feels like I have been catching baseballs all day). Anyone else have this? Its driving me bonkers!!!
 :o
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: adinack74 on October 08, 2012, 09:02:04 AM
This happens to me too.  It also happens when I'm awake and sitting/laying in a position where my hands/arms are resting against something.  I am constantly repositioning my arms.  I don't have carpal tunnel, but am not far enough along in my diagnostic journey to know if I have anything else going on.

Adina
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: grammad97 on October 08, 2012, 09:55:49 AM
This just started happening to me a few months ago. I didn't know neuropathy was part of sjogrens until I read about it on another website. I have never seen it listed in the symptoms on the main medical info websites. I reported the info to my orthopedic doc a few weeks after surgery for trigger finger. He suggested a neurologist visit and an EMG test. I planned on telling my rheumatologist and primary next appointment. The ortho doc said its fixable like Carpal tunnel surgery and the EMG will let him know what area to perform surgery to alleviate the numbness/tingling.
It is quite painful and wakes me up every night. I have read comments from another group where folks talk about taking
 medication for the neuropathy.  Lyrics and neurontin are.             
mentioned a lot. What do you think about surgery for this? Do any of you take meds for it? What helps? Does this neuropathy happen all the time or just in a flare?
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: gardenlover on October 08, 2012, 11:43:03 AM
I used to get this all the time.  Sometimes it would freak me out because I knew I was touching an arm, but I couldn't feel it and knew I was in bed alone.  Anyway, it was like that until I was put on 60mg of Cymbalta.  Can't say enough about how much Cymbalta helped me.  Dries eyes a bit more (if that is even possible), but I can't be without it right now.
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Iris on October 08, 2012, 08:00:29 PM
My hands just started doing this about 2 months ago.. I haven't mentioned it to my doctor though.. I see my rheumy in a couple of weeks, maybe I should see what he says about it..
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Luna on October 08, 2012, 08:52:45 PM
I have had this for many years. Doctors said carpal tunnel.. Did surgery back in 2000 on right hand. No help at all. THen they said I didnt have carpal tunnel, then they said I have permenant carpal tunnel. Now they say I can still have carpal tunnel, but no explanation of why I get it on the other side also. It has become so bad, I dont have to lay for it to happen. Just lean on it Like another person in here said happends to them. I have not been diagnosed with neuropathy, even though I have symptoms. The doctors just dont seem to be interested in my numb arms and sometimes legs.. Its very frustrating.

Luna
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: irish on October 08, 2012, 08:54:54 PM
mambo, This is usually caused by pressure on the nerves in the wrist or elbow. I had this really bad many years ago and soon learned that it was from carpal tunnal. It got so bad that I had to have surgery.

Have you tried using a hand brace that you can buy in the Dr. Scholls department at Walmart. This is usually in the pharmacy area. I have had so many braces over the years. My left hand goes numb often so I wear a brace on it. I was told to have surgery many years ago and just haven't gotten bad enough to force me into it. Good luck. Irish
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: mambo on October 08, 2012, 09:43:21 PM
My question then is why would both my hands and arms go numb, when CTS supposedly only affects my right hand?  Based on posts here, I'm beginning to think it could be Sjogren-related. 

mambo, This is usually caused by pressure on the nerves in the wrist or elbow. I had this really bad many years ago and soon learned that it was from carpal tunnal. It got so bad that I had to have surgery.
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: SjoDry on October 09, 2012, 05:32:46 AM
I too, have this. It happens in both hands & arms up to the elbow. Of course it is random like all of the other crazy
symptoms that happen. At first I assumed I had slept on my arm during the night & put it to sleep, but realized it was happening when I would wake up flat on my back.
Apparently, this goes with the Sjogrens territory :-/
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Whereismycake on October 09, 2012, 07:08:50 AM

I can definitely tell the difference between numbness caused by nerve pressure or constriction and this one. Its in both arms/hands at the same time, regardless of sleep position and the tingling sensation is quite different from when you have a 'dead arm'. Mine often feels like the blood has gone cold then heavy. Sometimes mine comes on suddenly when Im feeling stressed or really tired. Ive also had this explained as a possible trapped nerve in the neck vertebrae, or bad sleeping position - but that just doesn't make sense in this instance.
Its a magical mystery tour every day, isn't it! ;)
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Joe S. on October 09, 2012, 07:38:35 AM
When I sleep on my bad side (Left) I have problems with this. I have my shoulder stretched out several time per year.
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Friedbrain on October 09, 2012, 10:34:30 AM
I've experienced this too!  I have low blood pressure which lowers even more at night.  I've wondered if, at times, I'm simply not circulating blood enough to oxygenate my limbs!  Right now, I even have low red blood cells, which compound the problem?  I don't know.  I *do* have daytime numbness sometimes, related to stress and/or cold; and then after working out, I've had episodes where my arm might even go numb (long story short, I now think that IS related to too low blood pressure).
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: stillinshockwithsjogrens on October 09, 2012, 11:00:22 AM
Friedbrain, you've got me wondering now...I wake up with my right hand numb most mornings.  Mentioned this to my Rheumy, who attributed the numbness to the position of my hand while sleeping.  It does seem that when I sleep on my back with my arms straight down, the numbness doesn't present itself, but that's not easy to do all night, every night!  I also have low BP (a low temperature too, normally 97) get cold easily, and am now curious as to whether there is a connection .... not circulating blood enough to oxygenate the limbs, hmmmm!
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Joe S. on October 09, 2012, 11:44:34 AM
Try sleeping in a recliner. I tuck in the blanket under my legs with my hands. This tucks in my hands at the same time. A neck pillow supports my neck.
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: eyeamdry on October 09, 2012, 10:09:51 PM
You can likely fix/help this by wearing wrist braces at night.  Maybe during the day if you need them.  I had carpal tunnel surgery on one arm/wrist just after I quit working a few years ago.  I even forget which hand it was. I now have "sleeping hands /wrists at night for both and it wakes me up.  I do have a couple of sets of wrist braces from "before" and I can tell you that they help. I won't bother getting another wrist done now that I'm no longer working. Can use the wrist braces when/if I have trouble.

Lucy
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: mambo on October 09, 2012, 11:33:28 PM
I have to say, this helps somewhat but not all the time.  My hands still go numb even straightened out.  I didn't bother getting a splint for my left hand.  Come to think of it, this started when I was testing ANA positive but before the onset of dry mouth, which came before dry eyes.  It started at the same time as my (1) skin drying, thinning and flaking; (2) neuropathy; and (3) constipation.  All this came before dry mouth and eyes. 

I really think these are symptoms which heralded Sjogren's.  Too bad, neuros and rheumies don't seem to know -- for someone with fairly serious Sjogren's and related autoimmunity, the drying out of internal organs and nerve-related disturbances can be significant.  They're usually attributed to something else, like diabetes or diet.  I know now it just can't be CTS since my left hand doesn't have CTS and it also goes numb half way down the elbow. 

You can likely fix/help this by wearing wrist braces at night.  Maybe during the day if you need them.  I had carpal tunnel surgery on one arm/wrist just after I quit working a few years ago.  I even forget which hand it was. I now have "sleeping hands /wrists at night for both and it wakes me up.  I do have a couple of sets of wrist braces from "before" and I can tell you that they help. I won't bother getting another wrist done now that I'm no longer working. Can use the wrist braces when/if I have trouble.

Lucy
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: irish on October 09, 2012, 11:59:21 PM
The bottom line is this: sjogrens is a connective tissue disease that will affect the tendons of the body. The one that is the most common is the wrist and then the elbow. The tendons swell and this puts pressure on the nerves. In carpal tunnal this go in and cut the sheath that holds all the nerves. This loosens the tissue relieving the pressure.

I have had both the carpal tunnal and the tennis elbow in both elbows. I have taken prednisone and at one time indocin for the tennis elbow. It was terrible painful. I also have problems at times with my achilles tendon and when I get up in the morning mmy heels will be so painful that I can't put weight on them and the pain goes up the back of the leg.

I have to move very slowly as if there is sudden stretching of this tight tissue the tendon can rupture. My son had this happen to him and it is excruciating pain. So yes, these issues can be caused by the autoimmune disease but they still need medical treatment and frequently surgical intervention.

These inflammed tendons are very, very common in people with autoimmune and the tissues need rest, gentle range of motion, medicaitons as ordered by the doctor and like I said often surgery.

When I had my problems I would awaken at night with excruciating pain in both shoulders, arms, down the arms into my hands and felt likt knives stuck between my fingers. It also was a burning pain and was almost intolerable at times. I would just roll with pain. At first I thought is was from pinched vertebra in my neck and I finally got into orthopedic doc who informed me that I needed surgery on my wrist. I really thought he was nuts but I did the surgery and I got better. I never would have guessed that I had such a bad case of carpal tunnal.

See an orthopedical surgeon and see what he has to say. The surgery takes about 30 minutes.Irish
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Friedbrain on October 10, 2012, 06:54:03 AM
(Giftedpooch, you sound like me.   I have Hashimoto's (autoimmune hypothyroid); even on replacement synthroid, though, I am still sensitive to the cold and my temp still runs low.)
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Navigator on October 10, 2012, 01:23:39 PM
Quick answer is yes it goes with SJS.  Sometimes once the plaquenil kicks in it goes away and becomes intermittent.  I only get it when I am having a relapse of symptoms.   Try to focus on minimizing inflammatory elements in your life to minimize relapses. Everyone does that differently.
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Navigator on October 10, 2012, 01:28:26 PM
Gifted Pooch

I have two of these pooches...and they are gifted as well...enjoy.

Cold extremities, low BP, fatigue? ...have you had your thyroid checked?  Our autoimmune diseases come in multiples.

I have all the above too.

I find overdoing exercise (for me) brings along flares, ocular migraines and faintness.....but I have lost 10 pounds this past year by cutting back on food and walking...a lot....which doesn't seem to bring on the above issues I guess because of the lower intensity. 
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: irish on October 10, 2012, 10:54:25 PM
I have to share something with you that really surprised me. My mother most likely had sjogrens that was diagnosed. I won't go into all her symptoms, but she had one that I ended up having and it blew my mind.

She used to have so much trouble with her bras fitting right and causing pressure and pain on her shoulders. I would see her putting all kinds of little attachments to relieve the pressure. It was a non-ending battle for her.

For years, starting in my late 30's, I started having the same problems. My way to deal with it was to take my hubby's handkerchiefs and fold them up and place them under the bra straps. This would relieve the pressure but it also was time consuming as I had to always fuss with them to make sure they were in the right place.

The pressure that I had on my shoulders caused the pain to go down my arms into my hands and was really miserable. Well, I had my carpal tunnal surgery and guess what disappeared??? You got it. THe pain down my shoulders to my hands. I have worn a brace on my left hand for years off and on and have sort of got that wrist to the point where I have not rushed to surgery. I was to have it done in 2009 but hubby had cancer and that needed to be attended to.

I know that if we change some of our activities and motions/pressure we can relieve things for awhile. The ibuprofen helps too. Sjogrens causes inflammatioin of the tendons and it is a well known fact. Do a search on google and see what you find. Irish
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: stillinshockwithsjogrens on October 10, 2012, 11:56:43 PM
Irish, I wasn't aware SJS causes tendon inflammation...that could explain my wrist/elbow pain and in my feet at certain times!  You're a wealth of information and experience here.  My Rheumy attributed the symptoms to osteo arthritis.

Navigator and Fried, I know SJS and Hashimoto's are very good friends; my thyroid has been tested and is normal, so no treatment has been prescribed for the low BP, temp, cold...I haven't yet experienced fatigue, thank goodness for small favors.

Navigator, two pooches?  Twice the fun!!!!!!  I have three = chaos.
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: mambo on October 11, 2012, 08:28:35 PM
I also know someone with RA whose hands go numb when she sleeps.  She has no CTS.  Tells you, it's the connective-tissue related autoimmune issues that seem to be at fault. 

My Rheumy attributed the symptoms to osteo arthritis.
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Doxie on October 12, 2012, 01:45:51 PM
I too have been having problems with my hands going numb and tingly during the day and especially at night.  I have been diagnosed with carpal tunnel, and they do say Sjogrens patients get CTS quite a bit.  Irish pointed out that Sjogrens attacks the tendons a lot which I didn't know, but it makes sense. 

My doc has recommended surgery for both hands for my CTS, and he doesn't understand why I haven't done it yet.  But my problem is, I also get very bad numbness and tingly hands on the pinky/ring side of the hand, and elbow pain.   This bothers me even more often than the thumb side.  So, though the nerve conduction study didn't verify any problems with the elbow nerve -  ulnar nerve,  I still think I have the cubical tunnel syndrome (CuTs).

It's really hard at night to sleep keeping your wrists straight and your elbows mostly straight.  Like someone else said, lying on my back with my arms straight can cause tingly and numbness too. So then I try to use pillows just right to help that. It is sooooo frustrating!

I can tell the difference between the CTS and the CuTs, and the neuropathy I have in my legs and feet/toes.

You know, they can make us zombies while sleeping. Let's see, CPAP, 2 elbow braces, 2 wrist braces,  and everything else that us Sjoggies deal with. And they ask us how we are sleeping?

It seems to me that the inflammation from sjs makes less room for tendons and nerves and things . . .
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: CMNK12 on October 12, 2012, 02:08:19 PM
HMMM. My whole arm goes to sleep at night and it does not matter the position it is in when it wants to do that. It is totally asleep and feels like it does not belong to me. Also my legs will bother me.... they have spasms so bad that my muscles are actually sore the next day.
My legs can feel like a bp cuff is up on them cutting the blood supply off at times too? Strange. My legs will then feel weak during the day and my arm.
  This is not all the time, just a flare up I guess. No rhyme or reason to it. Just something I have learned to hate at night when it comes. Does this sound familiar??
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Luna on October 20, 2012, 03:41:51 PM
When I sleep on my bad side (Left) I have problems with this. I have my shoulder stretched out several time per year.

 Dear Joe, my left side is my bad side too. Why is this?  What is it about the left side?

Luna
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Belsey1 on October 20, 2012, 07:18:39 PM
This happens to me a lot and it seems to be happening more and more.  My son told me to sleep hugging a pillow.  I don't know why, but it does seem to help at least until I drop the pillow in my sleep.
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: irish on October 20, 2012, 09:58:57 PM
The bottom line is that carpal tunnal is very common in people with sjogrens because of the inflammation of the tendons. I had the pinky finger pain also with my carpal tunnal. The carpal tunnal doesn't just affect the thumb.

There is a sheath in the wrist that contains all the nerves and the doc cuts it to relieve the pressure. When I had that done the pain in all my fingers left as did the pain in my shoulder into my back. It is very weird the way this spreads so but remember that nerves are very interesting tissue. They are big gossips and can spread a lot of pain---just like bad news. Irish
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: mambo on October 21, 2012, 08:17:54 PM
Irish, CTS usually affects your thumb, index and ring fingers, not your pinky.  That's confirmed in my diagnosis and my acquaintances who used to do heavy data entry or word processing back in the 90s.  That's also the opinion of two neurologists that I saw:  I have no pain in my pinky, only the first 3 fingers. 

It's very possible that the inflamed tendons caused by Sjogren's and other connective tissue autoimmune conditions can instigate the numbness at night.  In fact, that is the most sensible answer to the numbness problem at night, as I've heard from those who don't have Sjogren's but RA who report numbness at night.  The symptoms are identical: numbness of both hands, not just one hand, and down the elbow in some.  Mine is half way down the elbow.  These are caused by autoimmune conditions. 

Why am I so certain?  Because for the last 2 weeks, I've been on LDN therapy and my numbness is gone.  I even tried to instigate it by sleeping on my stomach and intentionally bending my elbows and wrist.  Nothing.  I no longer have numbness ever since I started my LDN therapy at a very low dose of 0.5mg.  I still have other symptoms and some symptoms have gotten worse.  So LDN may not be a solution for everything Sjogren's.  But one thing LDN did address was the numbness.  For 2 years prior to this, my hands went numb.  Now, at a very tiny LDN dose, I'm numbness-free.  What do I make of it?  Hand numbness has nothing to do with CTS; it has to do with autoimmunity and Sjogren's.

The bottom line is that carpal tunnal is very common in people with sjogrens because of the inflammation of the tendons. I had the pinky finger pain also with my carpal tunnal. The carpal tunnal doesn't just affect the thumb.

There is a sheath in the wrist that contains all the nerves and the doc cuts it to relieve the pressure. When I had that done the pain in all my fingers left as did the pain in my shoulder into my back. It is very weird the way this spreads so but remember that nerves are very interesting tissue. They are big gossips and can spread a lot of pain---just like bad news. Irish
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Friedbrain on October 22, 2012, 07:13:20 AM
Fwiw, cortisol, which has anti-inflammatory properties, is lowest in the evening and at night.  This may have something to do with increased inflammation.  I know for me, my symptoms are always worse in the evening/at night (and the few times I risked increasing my cortef-supplemental steroids I am on for adrenal insufficiency (AI)-because I was so achy, it helped).  Now that I have an endo who's pushing for me to try to wean off the cortef to see if I still need it for AI, my other docs want me to start up a specific med to prevent/address inflammation.  (which is why I'm now here....finally starting to address the autoimmune component of my problems head on)
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: irish on October 22, 2012, 01:45:21 PM
mambo, I am not going to start world war 3 over this, but after living to soon ag 70 years and working about 40 years as a Registered nurse I can offer the very real experience that anything can and does happen. I had CTS and nerve pain that was relieved by the surgery. That happened to me and it was real. Haven't had it again since the surgery.

The medical world doesn't go by the book. I had one doc tell me that if it did he wouldn't have any patients. Thanks. Irish
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: shellthebell on October 23, 2012, 01:41:46 PM
My arms fall asleep sometimes at night. I wake up and cannot even use them, they just flop around.  But weirdly they "wake up" after awhile without getting pins and needles (unlike when I sit on my foot and it falls asleep). I have other weird nerve issues caused by the Sjogren's, so who knows... All the symptoms that can be caused by autoimmune issues boggle my brain.  :o
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Joe S. on October 23, 2012, 04:01:42 PM
@Luna, for me it relates back to an auto accident in 1983 with severe neck injury. The muscles still respond with a splinting action that limits blood flow to the right hemisphere of my brain. It can trigger TIA's. The accident terminated energy flow through the outer meridian of my left side. Energy flow was restarted when my old chiro electrically retriggered the meridian. I have had trouble with my left side  since the accident in 1983.
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Violet4 on October 25, 2012, 08:47:11 AM
I had this problem too!  Then a rheum discovered that I have a B-12 deficiency.  My GI dr switched me to B-12 injections instead of the pills.  Once I started getting the B-12 injections, no more pain and numbness in my hands, wrists, arms.  All the carpal tunnel type symptoms are gone.  Now that my levels are up a bit, I get one injection a month.  I have a friend who is a nurse and she does it for me.  The little vial of B-12 is under $3.  I can always tell if I'm a little late for that month's injection because I start to have those same kinds of symptoms.
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: meow on October 25, 2012, 11:30:08 AM
One of my earliest symptoms was hands tingling in the morning... the plaquenil helped with that. Then when they began hurting instead, the MTX took care of it.
So, yeah. definitely a possibility.
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: mambo on October 26, 2012, 05:54:47 PM
With supplementation, my B12 went from 550 to 1,600.  My symptoms did not alleviate after increasing my B12.  What I can tell you though is that when I do lapse and do not control my blood sugar, the neuropathy seems to pack an extra punch.  If my BG goes over 200, I can immediately feel it.  Usually, stinging sensations in my feet but then the neuropathy of my fingers.

I had this problem too!  Then a rheum discovered that I have a B-12 deficiency.  My GI dr switched me to B-12 injections instead of the pills. 
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Tash on October 26, 2012, 11:46:41 PM
My hands also go numb when I sleep at night, I often wake with pins and needles in them and have to shake them out.  The other morning my one wrist was so limp I couldn't make it move and that gave me a big fright.  My hands and feet tingle quite a bit, all through the day.
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: grammad97 on October 28, 2012, 04:30:22 PM
My doc just started me on a month of prednisone.  40mg a day for a week with a titrate down each week of 10mg. Mg neuropathy has gone away since the first dose on Thursday of this week.

Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Rachel F. on October 30, 2012, 05:35:34 AM
My hands and up to elbow become prickly while I am sleeping duirng a flare. :)
Either side.
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: adaubrey on October 30, 2012, 08:25:28 AM
me too.
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Dee on October 30, 2012, 12:02:41 PM
When I had a bad run with carpal tunnel several years ago I found wearing the wrist and elbow braces at night helped alleviate the symptoms.  Eventually I stopped wearing the wrist brace because it bothered me and just wore the elbow brace until it cleared up which I think was about 6 to 8 or 10 weeks total.
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Navigator on October 30, 2012, 01:33:55 PM
Yes this is SJS related.  It is a form of peripheral neuropathy. I get it mostly during flares.  It can also present as a forearm cramp.
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: adaubrey on October 30, 2012, 02:26:44 PM
I know people have explained this before, but how can neuropothy be one of the main symptoms? I have slightly dry eyes and mouth and dry skin, but the muscle soreness and neuropothy is what led me to the doctors.
All that come up in all the tests is antibodies for SJ.
It's hard to understand....
Mine is primarly on the right side of my body too.
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: lori on October 30, 2012, 04:35:18 PM
intersting ... dr just called with my labs- i had requested myb vitmine levels get checked.... b 12 and b6 too high...

ok so i started looking up syptoms and tingling in hands and feet and nueropathy can be result of too mych b.

was on double dose of a b complex per holistic dr. - i am gonna stop the b complex and pray it goes away...

anyone know that if this hands falling asleep and burning in toes stiuff is reversible if the culprit is stopped????

Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: Blove on October 30, 2012, 04:54:54 PM
Wow!! Thanks for posting this question!!

This happens to me too! I had no idea it could be Sjogrens, since everything that happens to me is new I'll add it to my list.

Thanks!
Blove
Title: Re: Hands Going Numb While Sleeping: Could This Also be Sjogren's?
Post by: astarah on October 30, 2012, 05:58:39 PM
I also get numb forearms and hands while Im sleeping. Sometimes only the last two or three fingers will go numb, or sometimes they are the only ones that aren't numb (if that makes sense) on both arms/hands.
It's painful and usually wakes me up. I have to shake them and massage them for ages until they come back.
I also get numb or heavy hand/s after doing a lot of writing, or using my hands for tasks (feels like I have been catching baseballs all day). Anyone else have this? Its driving me bonkers!!!
 :o

Sorry, but just noticed this. If your last two fingers are going numb, it might actually be a pinched nerve in your spine. If you have any upper back problems, it's a decent possibility.