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Sjogrens Topics => Living With Sjogren's => Topic started by: sass on August 21, 2012, 07:02:27 PM

Title: i am back in the hospital again.
Post by: sass on August 21, 2012, 07:02:27 PM
I am still in an ER room waiting
G on a room.  major breathing-lung problems.....sass
Title: Re: i am back in the hospital again.
Post by: iraisin on August 21, 2012, 07:05:49 PM
Stay strong girl!

Loving you. Praying for you. Knowing He will take care of you!
Title: Re: i am back in the hospital again.
Post by: Carolina on August 21, 2012, 07:16:39 PM
Dear sass,

I hope you get the relief you need.

Hugs

Elaine
Title: Re: i am back in the hospital again.
Post by: lolo1979 on August 21, 2012, 07:20:32 PM
Oh no Sass!  stay strong, be calm and make those docs take good care of you. I'm praying for you to feel better soon!!!!!
Title: Re: i am back in the hospital again.
Post by: DesignerS on August 21, 2012, 07:52:46 PM
Sass, Praying for God's peace to surround you and take away any fear! One day at a time, you can do this:)

Designer
Title: Re: i am back in the hospital again.
Post by: season on August 21, 2012, 08:13:23 PM
I hope all goes well and you get the care that you need to take care of your lungs
Title: Re: i am back in the hospital again.
Post by: Sleepy In Seattle on August 21, 2012, 08:31:44 PM
Hugs....love....XXOO....every good wish possible flying to you from here.....
Title: Re: i am back in the hospital again.
Post by: 4Kids on August 21, 2012, 08:33:55 PM
Thinking of you.
Title: Re: i am back in the hospital again.
Post by: irish on August 21, 2012, 08:47:29 PM
sass, Hope all is going well. My prayers are with you. Irish
Title: Re: i am back in the hospital again.
Post by: Cricket on August 21, 2012, 10:07:59 PM
Sass prayers are with you and hugs and love!!  Cricket~
Title: Re: i am back in the hospital again.
Post by: sass on August 21, 2012, 10:48:38 PM
Thank you everyone for your thoughts and well wishes.  It lifts a persons spirits when you have so many friends out there pulling and cheering for you. 
They decided to put me in a regular room instead of ICU..YAY for that.  Running tons of tests...again...Pnemonia-yes confirmed..Suspected Bacterial Infection in Lungs-yes...Somewhere along the way the Bactrim that was supposed to have been ordered for a preventative was not done.. So it seems I have picked up several bugs along the way. 
Pushing Antibiotics, Meds, and Breathing treatments.  Waiting on results of other testing and radiographs.  May possibly have to have my lungs rinsed tomorrow! hmmmmmmmm...rinsing lungs with fluids.....drowning...does not sound cohesive...hmmm...who has ever had that done???   please for any experiences 0n it?~sass~
Title: Re: i am back in the hospital again.
Post by: Piebird on August 22, 2012, 02:13:26 AM
*hugs*
Title: Re: i am back in the hospital again.
Post by: gardenlover on August 22, 2012, 04:10:02 AM
Sorry to hear you are back in hospital. I don't have any experience with those lung issues...yet.  I'll be thinking about you!
Title: Re: i am back in the hospital again.
Post by: Jenny on August 22, 2012, 04:57:08 AM
My prayers are with you  for a speedy recovery
Title: Re: i am back in the hospital again.
Post by: Gayle on August 22, 2012, 04:58:38 AM
Oh Sass!!
Sending prayers, hugs and prayers... no idea about the lung washing... hmmm... hope you are feeling better soon!!!!!!
Title: Re: i am back in the hospital again.
Post by: sass on August 22, 2012, 05:04:45 AM
huge chest and pains this morning while drawing blood and took 20 mins for the 12 yr old dr to get in here,,ekg appears fine,,gave nitro and mophine.

Still a lot of wheezing. antibiotics on boaard.  now  i am starving!
Title: Re: i am back in the hospital again.
Post by: iraisin on August 22, 2012, 05:23:38 AM
I did some googling on the lung rinse thing. As far as I have been able to find - it is administered with a nebulizer. Didn't see anything about duration or liquid makeup/type, but did learn it is a treatment for pneumonia.

Title: Re: i am back in the hospital again.
Post by: AAACGRL on August 22, 2012, 05:44:01 AM
Sass, I think of ya often. Even though I'm not on here a whole lot. I hope you get some relief soon!  HUGS!!!!!
Title: Re: i am back in the hospital again.
Post by: gmomjuju on August 22, 2012, 06:12:18 AM
Prayers for you!

Judy
Title: Re: i am back in the hospital again.
Post by: angels04 on August 22, 2012, 06:53:04 AM
Hi Sass
so sorry to hear you are in the hospital!
Hugs and prayers sent your way
as far as the lung "washing"..I believe they put you to sleep and flush out your lungs with saline...no you dont drown LOL they suction the fluids out...its a kinda in and out thing like washing out a bottle...it will help flush out some of the bacteria.
A friend of mine had it done when she had pneumonia that didnt respond to antibiotics well enough.
Best wishes and please keep us informed when you feel up to it!
 
Title: Re: i am back in the hospital again.
Post by: Nymph on August 22, 2012, 07:35:49 AM
 :o  Yikes! But it does sound like you will surely make it since you're hungry.  :D  I hope that these doctors take you seriously now! Praying for you during this madness.
Title: Re: i am back in the hospital again.
Post by: CMNK12 on August 22, 2012, 07:50:12 AM
Dearest Sass,
   So sorry that you are in the hospital but it sounds like that is where you need to be. My prayers are always with you. May God bless you and keep you. CK
Title: Re: i am back in the hospital again.
Post by: genko_b on August 22, 2012, 08:18:32 AM
Praying for you and hoping you will be better soon.

Take care,

Genko
Title: Re: i am back in the hospital again.
Post by: jazzlover on August 22, 2012, 09:16:04 AM
PRAYING for you!!!
Title: Re: i am back in the hospital again.
Post by: mshistory on August 22, 2012, 09:47:04 AM
Sass, sending you many gentle hugs and prayers - the rinsing lungs sounds scary, but remember - before we're born, we "breathe" amniotic fluid regularly in preparation for breathing air so I'm sure they'll have a way to supply your body with oxygen while they work on getting your lungs functioning again.

You'll be in my thoughts and please let us know how you're doing when you can!
Title: Re: i am back in the hospital again.
Post by: Dee on August 22, 2012, 11:17:26 AM
Huge Hug
Title: Re: i am back in the hospital again.
Post by: Cheryl on August 22, 2012, 01:11:08 PM
Sass, I'm sorry that you are back in the hospital!  I hope the antibiotics clear things up and you'll breathe/feel better fast.
Hugs and prayers,
Cheryl
Title: Re: i am back in the hospital again.
Post by: Katybarstool on August 22, 2012, 01:13:45 PM
Sass

Sending positive vibes and prayers.

Kathyx
Title: Re: i am back in the hospital again.
Post by: mebog on August 22, 2012, 01:34:42 PM
God Bless YOU, Sass,  I hope you will be better soon.  I'm Praying for you.
Title: Re: i am back in the hospital again.
Post by: slccom on August 22, 2012, 02:39:10 PM
Oh, Sass, I'm so sorry. Glad about the ICU part, but so sorry you are having problems again. Big hugs to you! Sharon
Title: Re: i am back in the hospital again.
Post by: topping21 on August 22, 2012, 02:49:48 PM
Prayers on there way to you....
Title: Re: i am back in the hospital again.
Post by: Diane63 on August 22, 2012, 03:15:57 PM
So sorry, Sass!  Good energy, Light and prayers your way from Ohio.  Hang in there.  Must be scary, but it sounds like you might be making a little headway - being hungry is good!  Do keep us posted as you are able.

Diane
Title: Re: i am back in the hospital again.
Post by: MissyLouWho? on August 22, 2012, 04:31:03 PM
Much love to you sass!
Title: Re: i am back in the hospital again.
Post by: sass on August 22, 2012, 05:13:08 PM
okay, here is what I got so far from the doctors.  First, they are growing a culture from the gunk I have spit up...I am sorrry, yuk, but will take several days.  blood work has been slow in happening, because My blood clots to quickly before testing,  They drew it the last time and ran it immed and it appears to be fine with no enymes showing any indication of heart attack, but because I had the chest pain and the vertigo they are going to do some further testing.
Vaslvagal , Echo, EKG, CT of lungs,  to be tomorrow.  Rheumy will be in here sometime in the a.m.  to re-evaluate everything and I am HOPING i MAY GET A deduction in Prednisone, thoug I doubt it..but a girl can wish!   I

I have a strep variety of pnemonia and chronic bronchotis..."not good" on top of this other disease!!!  So, have been told mo talking, save my  energy, lay in bed and do nothiing, unless I wamt ICU  and they don't let me have all my elelctronics, so quiet I will be.

Still haveing and incredible time of breathing.  Will give you guys an updeat tomorrow,,changimg my mask for my CPACP again and maybe it will help ,maybe sleep sooner.. although aharing your 24-7 entire time in the same exact room has something to be desire.

updates tomorrow......~sass~
Title: Re: i am back in the hospital again.
Post by: DesignerS on August 22, 2012, 05:33:21 PM
Many many Hugs to you Sass:) No talking....just with your fingers. I will be praying for you, chin up!

Designer
Title: Re: i am back in the hospital again.
Post by: Nancy60 on August 22, 2012, 05:51:46 PM
Hang in there Sass, and stay strong!  Praying for a speedy recovery for you and that you start feeling better soon!

Nancy
Title: Re: i am back in the hospital again.
Post by: Cricket on August 22, 2012, 06:13:26 PM
Prayers, prayers and more prayers are heavenbound for you from me and my family.

Just know we are praying and love you.
Cricket~
Title: Re: i am back in the hospital again.
Post by: jazzlover on August 22, 2012, 06:55:09 PM
Still praying!
Title: Re: i am back in the hospital again.
Post by: Tinker on August 22, 2012, 07:32:11 PM
Sass, sorry you are having such a tough time of it.  I can sure appreciate your desire to stay out of ICU.  I don't like being in the hospital not one little bit.

Sending you big breaths of fresh air and big hugs (gentle ones) to get you well asap.   :) :)

Twelve year old doctor?  ha still laughing!  It's true!
Title: Re: i am back in the hospital again.
Post by: sass on August 22, 2012, 08:36:50 PM
I sware (southern swear) ya'll, It was like Doogey Houser walked into the room...this kid was still wiping the sleepy out of his eyes...and i think i caught a sneak of a peak of his sponge bob underwear thru his white scrubs.  He was ummm,,Ms H and where does it hurt,,umm my chest doogey!  Does it burn like heartburn...no sir it hurts like a pain in my chest and jaw.  where exac- tly..IN MY CHEST!!!    so Doogey concurred with the RN and decided to run some enzymes never to be seen from again.  McDonald's Breakfast date and day doctor showed up!  Poor kid looked scared to death...I had started hurting when the where having a really hardtime drawing some labs and the blood began clotting/  after about 10 minutes of hurting I asked where the doc on call was and they said he was on the floor and on the way.   well after 15 mins I was ,get him now please...and when he walked in, I actually felt sorry for him, with that dear caught in the headlight look!   poor doogey..
Title: Re: i am back in the hospital again.
Post by: irish on August 22, 2012, 08:40:31 PM
Gang, I think we can continue praying for sass, but I think we had better say a prayer for "doogey" also, Irish
Title: Re: i am back in the hospital again.
Post by: sass on August 22, 2012, 09:34:51 PM
love you too Irish!  remember I can no longer talk and am confined to bed,  I was just sneaking around movingy my  IV pole and the dang new heart/o2 pulse alarm went blaring off..had to dive back into the bed before it woke up hubby!   heartrate was up to 132,,,so now it is down to 90, so maybe I can finish moving my CPAP around.  Between it, the new magic alarm on my finger attached to a cord and a maching that setsOFF  alarms. amd Iv on the other arm..oxygen tettered to my CPAP,,,gee whiz it is enough to make me crazier.                             
Plus, we are on the old MASH set, as the  helicopters  set down right outside our window.  Whirlllll...Wait I Hear Radar and HOT lips..now that would have been a pair there!..hahahalololol    shhhh~sass~
Title: Re: i am back in the hospital again.
Post by: Piebird on August 22, 2012, 09:43:35 PM
OMG Sass I love your sense of humour. You are a true role model !!!!

I am sending love and positive thoughts.

Watch out for ferret face and be nice to Mr. Howser.

                                                       - Piebird
Title: Re: i am back in the hospital again.
Post by: Cricket on August 22, 2012, 09:56:14 PM
I ditto what pie and Irish said!!!  Cricket
Title: Re: i am back in the hospital again.
Post by: sass on August 23, 2012, 12:19:20 AM
Ok  seriously, I am friends with Neil Patrick on Pinterest and Facebook! And Shortly afterwards, Sarah Palin started following me!  I hob nob with celebrities!  but i must admit he is brilliant!     And like me, he is so fu nn ee!!!
Title: Re: i am back in the hospital again.
Post by: engy on August 23, 2012, 02:47:12 AM
Sass,

You are in my prayers & thoughts today you spunky gal!

Listen to Doogie and rest and snuggle with Radars teddy bear.

Blessings, Carie
Title: Re: i am back in the hospital again.
Post by: mshistory on August 23, 2012, 04:08:12 AM
Oh, poor Doogie  ;D You're going to give him some real-life lessons he didn't learn in medical school  8)

Title: Re: i am back in the hospital again.
Post by: sass on August 23, 2012, 04:36:05 AM
oops not chronic bronchotis, but acute bronchotis...I knew if I have it, then it would be a cute little thing.   

The new o2/hr alarm system only went of once last night, which was great, because I slept more thru the night witht the new nasal pillow mask on than ever before. 

I also hooked up a continous subliminal sleep mp3 player thru my ear phones that plays water softly rollling over rocks in a stream,,,have no idea what it says subliminally,but has sure helped...mp3 downloaded it from amazon..hope it is not telling me to streak naked down the halls when My Mr Bow Tie Rheumy arrives this a.m..now wouldn't that be a hoot..That would sure earn me that rest alone....in a rubber room...ahhhhhhh....~sass~
Title: Re: i am back in the hospital again.
Post by: iraisin on August 23, 2012, 04:39:30 AM
How on earth did you get sleep listening to water running. I would have been up and down peeing all night!!!

So glad you're getting what you need there - and really glad you're getting some sleep too. That's been an issue for a while.
Title: Re: i am back in the hospital again.
Post by: Reanne on August 23, 2012, 05:14:17 AM
Thinking of you sass.  Hopefully your rheumy will have a plan when he arrives today.  Take care.
Title: Re: i am back in the hospital again.
Post by: sktaylor on August 23, 2012, 05:50:55 AM
Sass,
I am so sorry to here you are in the hospital. I so enjoy reading all you posts. You are in my thoughts and prayers.
Title: Re: i am back in the hospital again.
Post by: Cricket on August 23, 2012, 06:01:01 AM
Sass

So happy you got some sleep, it will help with all those tests you have today!  Try and rest as much as you can so you get better.  Did your dad get moved?

Still praying!
Cricket~
Title: Re: i am back in the hospital again.
Post by: Tinker on August 23, 2012, 07:57:36 AM
Sass, you are too funny!  Aren't you glad you have us as a detraction from what is going on? 

Still, the mother in me wants you to take it easy.  And the mother in you feels sorry for doogie.  lol

You can use this experience as a teaching moment for doogie.  Be gentle but firm.  lol
Title: Re: i am back in the hospital again.
Post by: Ceceraven on August 23, 2012, 10:52:11 AM

                    sass,  I just finished reading the over 50 posts to your thread  :).  I,m wrapping all of the prayers and hugs into a beautiful well wreath so you can wrap yourself in it when needed.  Can you feel the warmth?

                    Oh yeah here is a little fairy dust ----------------- just because  :).


                                           Be very kind to yourself,   Ceceraven
Title: Re: i am back in the hospital again.
Post by: DesignerS on August 23, 2012, 06:01:01 PM
Still praying for you Sass:) I am glad to hear your sense of humor is intact;) Keep hanging in there and you will be home soon!!

Designer
Title: Re: i am back in the hospital again.
Post by: artsyamerican on August 23, 2012, 06:17:25 PM
Sass - you are so funny and so darn amazing! I need one of your "characters" needs to be the father on the Courtship of Eddies Father! LOL....seek him out....; )
Title: Re: i am back in the hospital again.
Post by: susanep on August 23, 2012, 06:17:38 PM
Sass also still praying for you. We all do need our sense of humor. I don't know what I would do now without one.

susanep :)
Title: Re: i am back in the hospital again.
Post by: jazzlover on August 23, 2012, 06:37:37 PM
Hope tomorrow is a better day, Sass!! Have they ever considered putting you on a blood thinner?? That thick blood is scary!!!

prayers continue!
Title: Re: i am back in the hospital again.
Post by: shellthebell on August 23, 2012, 08:03:24 PM
I will keep you in my prayers that you begin to feel better soon.

Hugs to you,
Shell
Title: Re: i am back in the hospital again.
Post by: Gayle on August 24, 2012, 02:24:19 AM
Sass! I hope today is your turning point and you are doing better!!!! Keep getting sleep and you will pass this time better!!!
Hugs and prayers!!
Title: Re: i am back in the hospital again.
Post by: sass on August 24, 2012, 03:22:44 AM
sorry blood thinners totally out of question due to that bleed out over the arteriogram...that one almost killed me..the thick blood, well part allergy to the heparin they spray in the vials( or something they spray in) and it should be ran immed.  and then I have one copy of Factor Liden V..you will have to google that ...too long here.  Then the bleed out happened about 5 hours after the arteriogram..everybody gone and I felt wet right as I was falling asleep . finally found nurses button and they slammed dunked me into the wall to stop the bleeding ( actually i was in the bed)  and they moved a vertabrae over, but saved my life.  so all's fair in love and war! 

Gayle, sleep in the hospital, with your husband in a plastic recliner moaning, bless his heart.all dayand night..e hates the indoors and does not mind with his Fierce Leo Attitude to let you know it......repeatedly.....sleep????surely you jest!?!?!?!??

A Father for Eddie??Is this a play??  Well, let me tell you bout a good friend....Dr Doogey House!  now that would be a character!!!!!   give it a think two!!!!  ~sass~   now what was this thread over....oh me....lol  saiting on  test results.
Title: Re: i am back in the hospital again.
Post by: Cricket on August 24, 2012, 05:49:10 AM
Sass

Your sense of humor sounds in tac!  Praying still, got to go got killer headache, love ya!

Cricket
Title: Re: i am back in the hospital again.
Post by: sass on August 24, 2012, 08:14:04 AM
I have a bit of a headache myself today too.  IV changes, Breathing treatments, tubes, lubes, need a shower, bed change, nurses and doctors and some on call and some not.. Feeling better in some ways and not in others.  Slept on and off but really feeling tired and exhausted today.  Craig wants to be released and hoping doctors will say so.. i would rather stay Monday.  Don't like the hospital, but 2.5 hours ER trip is a bit uncomfortable.  Do Not Want To Rush It....what to do, make hubby more comfortable and tough it up and listen to him hurt and moan or just listen to myself and tell the doctor so????  oh i am such a door mat!  let headache go away first and still get those other test results in too. ~sass~
Title: Re: i am back in the hospital again.
Post by: Cricket on August 24, 2012, 08:56:00 AM
Sass

Listen to your inner voice, you are the one going through all the pain. STAY!! 
What if he went home and got rest and came back ?  My dh hates hospitals too and he would drive me crazy to stay there.

Hope our headaches go away.  Cricket
Title: Re: i am back in the hospital again.
Post by: DesignerS on August 24, 2012, 09:27:24 AM
Sass, if you are not comfortable leaving, then do NOT leave! By Monday hopefully you will feel much better and able to make the drive.

Designer
Title: Re: i am back in the hospital again.
Post by: Piebird on August 24, 2012, 01:05:01 PM
I agree. Stay as long as you can and rest. Send hubby home for the night.
Title: Re: i am back in the hospital again.
Post by: sass on August 24, 2012, 04:18:30 PM
oh how i wish...had to start a new thread.... they made decision for me...still in hospital