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Sjogrens Topics => Living With Sjogren's => Topic started by: Net on July 08, 2012, 01:13:44 AM

Title: osteoarthritis of the feet questions...
Post by: Net on July 08, 2012, 01:13:44 AM
Anyone suffering from osteoarthritis and/or erosive osteoarthritis of the feet?
I am supposed to keep my Dr. updated, seems especially my right foot has had lots of arthritic changes in the past 6  months. Left foot and hands are slowly starting. I am going on 46 yrs old. I have sjogrens, chiari 1 malformation, chronic sinusitis. Just had to get gallbladder out and had a bad flare of arthritis during that inflammmatory episode. 1 month later back to work but foot is 'doing me in' especially at bedtime.
He is on my agenda to call on Monday, been suffering the last two nights unable to sleep due to throbbing big toe joint and now it seems small toe too and shooting up to my knee. I am on predisone currently for sinus issues, 30 mg, plaquinel 400 mg, etodolac 500 mg 2x, arthritis tylenol, pain relieving cream, and now snuck some ibuprofen at 3 am even though that I'm not supposed to take. Last time he tried tylenol with codeine so I could sleep at least. Days are ok, burning, shoe breaks, but it's these darn nights. I've had one joint injection in big toe joint 1 month ago and seemed to help but I guess not too good if it's back in full force already on predisone too. :(
Dr. talked of doing a mri to check for erosion. Don't know if that is just an answer for him or if there are other meds to try.
Any input from anyone dealing with this would be great.
Thanks _Net
Title: Re: osteoarthritis of the feet questions...
Post by: Linda196 on July 08, 2012, 03:41:30 AM
I'm sorry You're going through this, but I would caution you about the ibuprophen in combination with another NSAID like etodolac. It's not just a matter of doubling up on medication, two NSAIDS taken together tend to have a compounding effect on possible adverse reactions.

I've had small joint osteo/inflammatory arthritis for many years. Oddly enough, it wasn't terrible when I was working and on my feet for 12 hour shifts, but recently the joints of the 2-4 toe in both feet and the 4+5 joint in both hands have broken down, with erosion causing changes in angulation and swelling.  During the 30 odd years this has been building up I've taken just about every NSAID and COX2I out there, along with narcotic and non-narcotic pain meds, and now take a combo of Prednisone, Plaquenil and Methotrexate, with acetaminophen and codeine when needed.

To be honest, the best pain reduction I've found is from supportive custom orthotics, foot soaks and reflexology/massage. I also meditate and use biofeedback mechanisms taught to me by my pain management doctor. I've found I simply can't sleep with anything on my feet, so my splints don't help me to sleep, but before bedtime I wear the splints if I'm just relaxing, then soak my feet in and epsom salt bath with lavender essential oil, wrap them in a warm moist towel until it no longer feels warm, then head for bed. If it's chilly in my room (which I prefer) I sometimes warm the sheets at the foot of the bed with a hot pad, before getting in, but I take the pad out before I go to sleep.

I hope you can find some relief, foot pain ranks up there with tooth pain in intensity  :(
Title: Re: osteoarthritis of the feet questions...
Post by: Net on July 08, 2012, 05:40:28 AM
Thanks Linda for the inputs.  Yes, the ibuprofen was out of desperation last night at  3 a.m.  but finally after 2 benedryl to sleep and icepacks wrapped around by foot with blankets and a somewhat bent leg elevation  I finally got a few hours sleep again. I had thought about the hot bath and heating pad as a next resort like you said.
Sometimes it seems so amazing that a foot can hurt so bad and just have a few swellon joints.  I'll keep the reflexology and massage before bedtime in mind. Maybe I'm just doing too much before bed too like walking the dog earlier or just chasing the kids around.
Doc is on my agenda though Monday and last time the tylenol codeine worked for that getting to sleep/pain relief.
I have heard about the Methotrexate(spelling) but will have to see what doc says and side effects. I do a lot of bursts of pred in winter for sinus issues but usually my summers are better and I of course know how pred can effect of bodies. Usually when I'm on it I 'do' feel really good so I 'am' surprised that it is not helping but maybe since I take it before 3 pm.
Better get to work....just glad I got a few zzzzzzzzzzzz's.
Thanks again for advice :)   Net
Title: Re: osteoarthritis of the feet questions...
Post by: artistangie on July 08, 2012, 06:29:00 AM
oddly, my toes are hurting... bad enough to make walking unbearable and it started yesterday.

 my husband is bewildered and i can tell he believes me but at the same time finds it hard to believe yanno what i mean? 
Title: Re: osteoarthritis of the feet questions...
Post by: Net on July 08, 2012, 03:08:31 PM
I like your quote artistangie.....Sometimes people say that I'm glowing and I always say "cuz when I feel good I really appreciate feeling good!!"  And even though my foot is burning and throbbing and kept me up all night again, at least my gallbladder and sjogren arthritis are so much better!
Kids called me after work to meet them at Grammas and swim, sound like good therapy to me and soak up some of the vitamin D.
Hoping for a better nights sleep and calling Rheumy tomorrrow.
Title: Re: osteoarthritis of the feet questions...
Post by: Madison Granny on July 08, 2012, 05:01:41 PM
I have osteoarthiritis in all my toes except both big ones.  Tylenol helps a little bit.  I find IcyHot rubbed in right before I go to sleeps helps a lot more.  I can not take Advil or Aleve or any medicine prescribed for arthiritis because of kidney disease.  There are lots of medicines doctors can prescibed to help with the pain.
Title: Re: osteoarthritis of the feet questions...
Post by: gold55 on July 08, 2012, 09:28:22 PM
Hi Net, my foot pain buddy.....big toe joints are my area....also, my right hand is starting and a bit in the left hand.  I must say that my right big toe joint has been brewing for 10 years but when the left joint started I knew I had to see a doc!  I believe mine is almost bone on bone in the right joint.....my rheumie said surgery is inevitable! 

Not too much has helped me by mouth except indocin took the inflammation down in a couple days.  Since then I've tried Mobic and it's OK.....I think Voltaren gel has helped me but you have to remember to not take Ibuprofen or others if you're using the Voltaren gel and vice versa.

Hot baths help my feet and body to unstiffen......also, with the burning feet and so said "nerve pain" taking Effexor has greatly helped.  MY doctor describes it like Cymbalta but with much less drying effects.  I have an RX for neurontin but I was reluctant to try it.   Since my big flare when I got diagnosed my arthritis and other aches and pains seem to be worse every day....before I had aches and pains but I managed ....  now, it seems as if I have "inflammatory types of pain in muscles, tendons and joints"....so far fingers, hands and big toe joints have been the worst.  I've got a new thing in my left forearm that seems like a long tendon going up to the wrist....very very painful one morning and each time I move my hand in a circle it rubs on something else in my forearm.....my rheumie didn't do anything about it!  I suppose I'll be getting yearly xrays to check to see how much cartlidge I'm losing in my toes and fingers.

Hope you get better.  I do seem to be suffering more in this heat than I did in our winter months?!!
I'll be thinking of you.
Jill
Title: Re: osteoarthritis of the feet questions...
Post by: eye2dry on July 09, 2012, 06:42:02 AM
My early first symptoms of joint pain included my feet..mainly 2-5th toes..not great toe. It hurt to put my feet down when getting out of bed in the am. and after 5 min of hobbling it went away. Then after a 9-10 hour shift at work..driving home my toes would hurt and burn.

My rheumy had my feet xrayed and no erosive changes were seen. According to what I have read up on SJS.... foot/toe pain is a symptom of it. My rhuemy also says I have RA.

How in the world can my dr. tell what is causing this? SJS? RA? Osteo?
Even with Plaquenil and while on MTX I still got it.

Surprsingly it mostly occurs whil inactive.

eyye2dry
Title: Re: osteoarthritis of the feet questions...
Post by: gold55 on July 09, 2012, 07:57:10 AM
I agree eye2dry....mine are worse when inactive which I thought was a sign of osteoarthritis....RA usually hurts no matter if inactive or active??  I do have bone spurs and changes in the big toe joints however, they have not termed it erosive but, I would call it that!  No changes in my fingers yet!  My rheumie is now questioning whether I have some form of inflammatory arthritis....duhhhhh, Sjogrens is what I'd say!!!
Title: Re: osteoarthritis of the feet questions...
Post by: artsyamerican on July 09, 2012, 08:08:23 AM
I went through the whole plantar fascitis (sp?) years ago.  Here lately my ankles have been killing me.  They feel like they are going to give out at any moment. Ugh.
Title: Re: osteoarthritis of the feet questions...
Post by: Carolina on July 09, 2012, 08:47:10 AM
Dearest angel Net, and others:

I have severe osteoarthritis of my feet.  Not erosive, however.

My toes are almost fused from arthritis.  I have huge bumps on the first joint of both big toes, but they rise straight up, not to the side, which is quite unusual.

I have arthritis even in one of the ligaments that runs on the side, producing a bump on the outside edge of each foot, at the arch.  The worst pain in OA is  1)when the nodes/bumps/growths are first forming, and 2) whenever you have any other inflammation (flu, cold, infection, whatever).


Then all OA sites are set off throbbing and stabbing and burning.....or all three at once.

I also have the joy of peripheral neuropathy in my feet and legs.  So my feet are rather like heavy numb clubs at the end of my legs, but not numb enough to avoid the pain, of course.  The numbness is mostly on the surface.

I wish I could be more cheerful about this, Net.  Finding ways to avoid any illness or inflammation, and methods for dealing with pain, those are my solutions.

I can't take any opiate pain relievers, so getting to sleep is often almost impossible.

I am going to ask my family physician for an RX for a sleep medicine, for those occasions.  When Benedryl just isn't enough.  Cymbalta and Aleve do help, most of the time.   But when the pain is off and running, they are left at the gate, I'm afraid.

(http://i1135.photobucket.com/albums/m639/Elaine_Dittmer/GetAttachmentaspx.jpeg)

Good luck!

And keep us posted.

Oh for Plantars fascitas, which is horrible!, cortisone injections, and then wearing the right shoes helped me a lot.

Hugs

Elaine
Title: Re: osteoarthritis of the feet questions...
Post by: Net on July 09, 2012, 09:52:50 AM
Carolina...that kinda seems like the outlook for foot arthritis doesn't it? Good luck to us all right?  My rheumy got me in this Wed at 2:00 to check things out  and hopefully some hopeful suggestions and or at least something to help me sleep through the throbbing. Last night was better. I got out this massaging ball thing and massaged my foot all over especially around joints and I took my etodolac closer to bedtime and slept with foot on a pillow. Not so throbbing but pain is up into my knee today and almost a numbness feeling with it. 2 days off work so hopefully that will help. Thanks for all your advices!
Title: Re: osteoarthritis of the feet questions...
Post by: gold55 on July 09, 2012, 01:45:14 PM
Carolina,
I have those big toe joint bumps just how you explained them.....going up and not to the side.  My right toe joint bump is bigger but I've had issues with that joint for at least 10 years.  My left to joint has just started but has a nice bump starting.  I had to go up a shoe size to avoid shoes rubbing on those bumps and I can't wear any hard tight shoes that cross those bumps or I'm in pain!!!!  I'm assuming this is part of SJS however, how do we really know that it's osteoarthritis and that we would have developed this whether we had SJS or not??  That's my big question that neither one of my rheumies can answer!!!! 
Title: Re: osteoarthritis of the feet questions...
Post by: Cricket on July 09, 2012, 02:20:20 PM
Just a thought, as I do not suffer same thing, but how about a paraffin foot spa. It makes ny hands and feet feel great.  It is not expensive, can get at bed, bath and beyond.

Praying for all you ladies your feet, feel better!
Title: Re: osteoarthritis of the feet questions...
Post by: Net on July 09, 2012, 03:02:55 PM
I did get a foot spa thing about a month or 2 ago and it seemed to help to fall asleep but then it was that middle of the night waking, I actually was getting up at 3a.m there for a while to take hot baths just to sleep. But, yes, keeps handing the tips out, I will try anything/well...almost anything these days. :)
Title: Re: osteoarthritis of the feet questions...
Post by: Net on July 12, 2012, 12:01:57 AM
Had Rheumy appt today, xray of foot and gout test.  Probably hear back tomorrow. Got Vicadin for pm's when foot is bad, already tonite. Had 2 days off work but my 1 8hr shift did it in again. Finally going to bed, and throbbing is better. Seems driving the car is getting painful too, like the joint doesn't want to bend and shoots up to my knee and even hamstring.
Gonna try ordering a sleeve like splint for toe but Rheumy thinks a referral to foot Dr. and possible joint type surgery is inevitable. will keep you posted, seems so extreme but I suppose xray will probably open my eyes as to why it is so painful. Night...zzzzzzzzzzzzzz
Title: Re: osteoarthritis of the feet questions...
Post by: gold55 on July 12, 2012, 07:54:48 AM
Net,
I bought the orthopedic inserts ($300.00) that keep the big toes from bending.  I really can't wear any shoes for any length of time except my KSwiss tennis shoes.  I have to wear shoes that have more of a "rocker movement" instead of bending the joint every time I walk.  My rheumie did say that my right toe joint is almost bone on bone so I will have to get surgery at some point.   I don't wear the inserts daily.....I do well in my tennis shoes but I will use them when I start treadmilling again.....I keep saying this and haven't started!  I had to give up any kind of lifted heels a long time ago but luckily my job only requires clean tennis or nursing shoes.  When everything flared up and sent me to the doctor (the snynovial sacks around the joints were red and inflamed) I used Indocin and they were relieved in 3 days.  I haven't had a flareup like that in a year (knock on bones!).  We have Hangar orthopedics out here and that's where I got my inserts.  Being that you are on your feet a lot you may want to try this. 
Title: Re: osteoarthritis of the feet questions...
Post by: gold55 on July 14, 2012, 07:19:01 AM
Hope things are improving for you Net!  Foot pain SUCKS!!
Title: Re: osteoarthritis of the feet questions...
Post by: slccom on July 14, 2012, 02:23:41 PM
Net, it might be time to get hand controls for your car, preferably BEFORE you get into a crash due to uncooperative feet. I drive a friend's van with my feet, and she has hand controls. It won't keep anyone else from driving it.

Having a scooter or electric wheelchair to use on bad days is not "giving in" or somehow embarrassing. It says to others, "I can do what I need to when I need to do it because I am smart enough to get the assistive technology that I need."
Sharon
Title: Re: osteoarthritis of the feet questions...
Post by: Net on July 14, 2012, 08:13:08 PM
Hi gold55, slccom and all....
No things are not improving. My nights appear to be getting worse. Last night I tried 2 vicaden and wrapping my foot tight, massage, finally resorted to icepacking my right foot like a sandwich and wrapping it up. Basically at night it goes into a throbbing by the big toejoint and across the foot and some kind of nerve pain all the way up to my knee and even toward the hamstring.
I did hear that my gout test was normal. But haven't heard back on the foot xray. Rheumy is on my agenda again to call on Monday, guess I better get that referral to the podiatrist. I ordered the bunion compression sling through footsmart that Rheumy suggested but of course won't be here for about 5 days.
My days are ok, I just keep busy walking and wearing my tennishoes and it basically is just hot and tight feeling and pain up leg is just kinda always there now I guess.
Sucky being since my Gallbladder removal I am feeling so good but at least the sjogrens arthritis seems better. Never a dull moment huh?
I'll keep puttering along,working to pay the bills, raising our 3 great girls, and take one day at a time...:)
Title: Re: osteoarthritis of the feet questions...
Post by: gold55 on July 14, 2012, 08:21:33 PM
So sorry Net.  I can totally relate to the foot thing and the feeling of nerve pain across the top of the foot but I can't relate to that leg pain!!!  Ouch that seems horrible.  With all the nerve pain I seem to have or experienced I just got back my nerve conduction study and it really doesn't report anything bad except some entrapment in my wrist areas, less where I had carpal tunnel surgery.  So, I say, where is this nerve pain coming from???
Hope the bunyion compression helps??  I'm not sure if you need a foot doc.....your rheumie should be able to tell you if this is osteo or SJS altho my rheumies have yet to tell me that my foot problems are SJS ..... many people on here have the same foot problems and they have SJS so it looks to me to be a definite SJS thing!!!  Ahhhhhh will we ever get definitive answers??
Title: Re: osteoarthritis of the feet questions...
Post by: Net on July 14, 2012, 08:36:42 PM
Yes, the world of sjogrens sure seems to be a lot of figuring ourselves out doesn't it? 
I think my dad takes a nerve pain pill, does anyone else have any luck? I did ask my Rheumy but I think that was the medicine he worried about the effect on my stomach along with my other meds. He hasn't exactly said it but it seems that since my gallbladder removal he seems to be watching stomach issues more. Sjogren related...the gallbladder stopping working? who knows huh?
Hoping to sleep tonite, I have my plan of sandwiching my foot in ice. Obviously the vicaden doesn't work for this pain??because it is nerve???
Sure glad my antidepressants are working and I'm having a good attitude about all of this.
Slccom...you said about the hands free driving, wow, that seems so extreme to even think of that but I suppose things will be inevitable.
Thanks everyone for all your inputs....Keep throwing them at me....:)
Title: Re: osteoarthritis of the feet questions...
Post by: gold55 on July 15, 2012, 07:45:44 AM
Let us know the results of your foot xrays.  Mine told me a lot and made me less worried about all of my toes.  For now, the problems are isolated in my big toe joints with no signs of inflammatory arthritis.......sure feels like inflammatory arthritis when it kicks up!!!
Title: Re: osteoarthritis of the feet questions...
Post by: jazzlover on July 15, 2012, 11:18:32 AM
Yes, the paraffin spa is good. Sometimes my back pain is so bad that I can't "handle" the spa thing. UGH.

I have plantar's too and neuropathy. It's killing my life! I hope to see a neurologist soon, as I have bad neck and back pain that may be affecting my feet.

I just began getting a nodule on my second toe. What's up with that??

Net.. Re: nerve pain meds:

Lyrica made my pain worse and neurontin made my feet and legs swell up.
Title: Re: osteoarthritis of the feet questions...
Post by: gold55 on July 15, 2012, 11:59:38 AM
I'm glad I didn't try either lyrica or neurontin....altho I had an RX for the latter! 
Title: Re: osteoarthritis of the feet questions...
Post by: gold55 on July 15, 2012, 12:01:55 PM
Does anyone here take Plaquenil and still have the terrible foot, toe joint and hand pain??  If this hand and foot arthritis is part of SJS then I would think Plaquenil would help?!
Title: Re: osteoarthritis of the feet questions...
Post by: Net on July 15, 2012, 01:00:29 PM
I take Plaquinel for 4 yrs now I think, 400 mg.  also etodalac 500 mg 1 or 2 x day.
P.s. How do you put on the bottom of your posts your diagnosis and meds on?  I like to look at that but I don't know how to update my profile to say that.-thanks
Title: Re: osteoarthritis of the feet questions...
Post by: gold55 on July 15, 2012, 02:44:40 PM
Just go into your "forum profile" and under "signature" add all your meds.
Did I mention that I use Voltaren gel on those bumps on my toe joints and it really numbs the pain out!
Title: Re: osteoarthritis of the feet questions...
Post by: Net on July 15, 2012, 04:36:52 PM
I'll have to google the volt. gel, is it a prescription or overthe counter? Thanks for the inputs...Net
Title: Re: osteoarthritis of the feet questions...
Post by: jazzlover on July 15, 2012, 05:02:27 PM
Voltaren is a prescription. I tried to take it, but it affected my stomach just like ibuprofen does. It was also affecting my heart. So be careful.
Title: Re: osteoarthritis of the feet questions...
Post by: eye2dry on July 15, 2012, 06:00:10 PM
Gold55.....
yes, I take Plaquenil 400mg/day and I too still experience the toe pain...not the great toe but the others...mostly afflicted to right foot.

It's the worst after sitting down for awhile and getting up in morning.....strange being on my feet at work keeps it from hurting and the drive home it is really acting up.

eye2dry
Title: Re: osteoarthritis of the feet questions...
Post by: Net on July 15, 2012, 06:06:55 PM
My Rheumy probably would say no the vol. gel since he's watching my stomach so much. 
My feet have  given my issues for the past 3 yrs with sjogrens , especially flareups around February or March where I could barely walk on them in the middle of the night or morning or after work. But now it seems the big toe joint is doing some joint changes, I guess I'll see what the xray says. It's almost like it is lower than my other toes now and to pull it up hurts the joint. At least the joint inject. worked for a month but I guess he doesn't want to give  me another. Cross my fingers, I'm gonna just try the icing for sleeping tonite.
Title: Re: osteoarthritis of the feet questions...
Post by: gold55 on July 15, 2012, 06:13:51 PM
@eye2dry.....your feet sound like mine only my pain is in the big toe joints like Net's.  I definitely feel better using them and at the end of the day I can feel the stiffness and pain coming.  I'm really sad that the feet don't seem to do better with Plaquenil!  That's really disappointing :(

@Net.....yes, as Jazz says it is prescription and you have to be careful NOT to be taking any other NSAIDS when you are using it.  It's either/or.  So when I don't take Mobic or Ibuprofen, I use the Voltaren gel.  It depends on what kind of a day I'm having.  When my toes were bothering me and my left forearm/wrist was stinging, I used Voltaren gel on both and it really helped during work and at night.  When I've used it  at night my toes aren't stiff in the morning.  As others have said we're all individual so you have to try it to see....it has not made me sick to my stomach.....you use a very tiny amount on the areas.  When I had right occipital neuralgia, I had to take Voltaren by mouth for about 3 months.  It really worked along with physical therapy and rest.  So, I knew the gel would not bother my stomach.  They come in huge tubes and I got 5 tubes for $60.00 copay so you can figure what one or two tubes would cost if you have insurance.  I like to rotate from pills to gel because I don't want to always be popping the pills however, the medicine gets into your body via the skin so I guess it's all the same......I have become worried about ruining my tummy! 
Title: Re: osteoarthritis of the feet questions...
Post by: Net on July 15, 2012, 09:25:21 PM
yes, the right foot is the worse for me too ..eye2dry..It feels hot and burning when up and about and then the nights get worse....do you have any wierd nails on that foot also?  My r foot has 3 nails that grow really thick and the ends of my toes are super cracked and dry.  I went through this nail thing with my fingernails a few years ago when  I was in a bad flare( very achey and feet pain  for  along time....) and then when I started feeling better wallah...my nails got better and have been ever since.  But the toe nails have looked pretty bad for about 1 1/2 yrs now.
Title: Re: osteoarthritis of the feet questions...
Post by: Net on July 16, 2012, 12:29:01 PM
Called Doc's nurse to get something instead of vicaden, seems I still get migraines from that like I used to. Although last night I slept really good and only iced my foot a bit. Maybe it was just a bad flareup, cross my toes :)  I did have 2 days off, so back to work today.
Nurse said the xray said mild to modest arthritis is the toe joint but I don't think she said anything else, so that's good news :)
Title: Re: osteoarthritis of the feet questions...
Post by: Katybarstool on July 16, 2012, 01:36:05 PM
Net

A lot of people find it drying, but I take 25 mgs amitriptyline for my feet. I have arthritis in my feet, and also some kind of neuropathy, and it was so painful before I started taking this drug. It's so much better now. I also have to wear the orthotics, otherwise I get shin splint like pain, which is horrible, but my feet are flat, so the orthotics help my posture, which reduces the pain.

I hope you get some relief soon.

Kathyx
Title: Re: osteoarthritis of the feet questions...
Post by: Net on July 16, 2012, 09:41:26 PM
My 10 yr old takes amitriptilyne for migraine prevention. Isn't it also an antidepressant and /or an antiseizure medicine?
Had a really good day on my feet but I do have tyl/cod now for bedtime. My Pharmacist said that the reason I get migraine from vidadin is actually a medical term or condition , so no more of that for me. I hadn't tried it in about 5 years so I guess I thought maybe it was all in my head so to speak since I took it after my brain/neck surgery and got migraines then.
Nite all....
Title: Re: osteoarthritis of the feet questions...
Post by: Carolina on July 17, 2012, 08:11:22 AM
The thing about osteoarthritis, of any part of your body, is that it isn't an autoimmune condition, and it isn't even technically an inflammatory disease.

So no chemo or immune suppressing medication will help it.

Sorry.

Nothing can help or stop the progress of the disease, actually.

Only pain medications, sometimes surgery, and avoiding any condition which causes inflammation (like the flu) which then sets off the pain in all affected joints.

It is the bane of my life, and along with my peripheral neuropathy is the most disabling for me.

I wish you all the best.

Hugs

Elaine

Xrays can show whether or not the condition is osteo or rheumatoid arthritis, and whether or not the osteo is also erosive.

It is all confusing!

http://osteoarthritis.about.com/od/osteoarthritissymptoms/a/erosive_OA.htm

Erosive osteoarthritis is considered a subtype of osteoarthritis. Erosive osteoarthritis is sometimes referred to as inflammatory osteoarthritis, which seems like a contradictory term to many people who believe osteoarthritis is not associated with inflammation.

•Does Inflammation Play a Role in Osteoarthritis?


Initially, symptoms of erosive osteoarthritis may be confused with rheumatoid arthritis or psoriatic arthritis. Erosive osteoarthritis is primarily characterized by erosions of cartilage in the hands. Middle-aged or post-menopausal women are most commonly affected. Studies have shown evidence of erosions in other joints too but the severe, aggressive type of hand disease associated with erosive osteoarthritis defines the disease.
Title: Re: osteoarthritis of the feet questions...
Post by: Net on July 17, 2012, 09:54:28 AM
yah, what I've been googling isn't too promising...especially erosive osteo-that seems to be kinda quick progressing.  To have sjogrens and osteo together doesn't seem too wonderful. Being almost 46 I was comparing my arthritis with my sisters motherinlaw who is near 70. Just plain old 2 tylenol helps her when she hurts.  I had 2 good nites of sleep now so I am hoping I was in a bad flare, I usually am ok w/ some vague pain been when it keeps you a awake it's so bad that bites! Will keep you all posted and please keep in touch too! :)
Title: Re: osteoarthritis of the feet questions...
Post by: Net on July 17, 2012, 09:35:19 PM
Carolina...Well got my xray report  and is showing mild osteoarthritis of the first mtp joint. So I'm taking it as good news that it is not showing erosion on the xray or any joint problems. Boy, for how it had been hurting I'd hate to think of how your severe osteo hurts especially if mine is mild. :(
So far having a better week but am ready to go to bed after a very hard day on my feet so we'll see how things feel tonite. I am thankful to have  tyl/cod as a backup now.
Title: Re: osteoarthritis of the feet questions...
Post by: gold55 on July 18, 2012, 12:35:10 PM
Hi,
I've got the same thing that Net is suffering from only my flareup was last year which also yielded a tentative diagnosis for SJS.  I have the osteo in the big toe joints and starting in the right hand.  Do you find that taking chondroiton/glucosomine may benefit future damage?  I've been taking those Joint Juice shots for a year.  There are some with MSM included but I didn't know if it was safe to take MSM.  They say it helps inflammation but of course it's not FDA approved.  Does anyone have any experience with the Chondroiton/Glucosamine and MSM?
Title: Re: osteoarthritis of the feet questions...
Post by: slccom on July 18, 2012, 04:32:31 PM
I find glucosamine/chondroitin to be very helpful for me. I ran out and forgot to put it back in my pills, and realized that I was hurting more. So I added it back in  and it really helps. There are others for whom it does nothing. The MSM helps reduce inflammation in some people. You really just need to run the experiment. My husband gets no benefit.
Sharon
Title: Re: osteoarthritis of the feet questions...
Post by: jazzlover on July 18, 2012, 06:16:22 PM
FDA?? Lord, I'd be dead already if I waited for the FDA to approve NATURAL substances!!!!

I've been taking glucosamine, chondroitin and MSM for about 8-10 yrs. Can't do without it.
Title: Re: osteoarthritis of the feet questions...
Post by: Carolina on July 18, 2012, 06:51:38 PM
I took Glucosamine/Chondroitan for about 10 years.  My Rheumy said 'it can't hurt'.   I stopped about 5 or 6 years ago.  It wasn't making
any noticeable difference.

But after this long I realize that some things work for some people, some thing don't work, and some things are impossible for some people to tolerate!

It's a case of trial and error, for sure.

With some of the errors being very costly in many ways!

Yes, the pain is very serious, to say the least.  If I hear one more time  "It's ONLY arthritis due to your age" I swear I will kill someone!

Yes, it IS arthritis.

And doctors say ONLY ARTHRITIS cause they can't do a thing for you.  It's like saying "It's only a VIRUS". 

Viruses can kill you!   And arthritis can cripple you and make you wish you WERE DEAD.   Well almost, for sure.

ONLY is the word doctors use cause they can't do anything, so they dismiss the problem.

Sigh.

I know they do their best, but they know very little, really, of what is out there in the big world of things that go wrong.

Well, we do what we can.

And keep smiling.

And keep each other posted.

Hugs

Elaine

Title: Re: osteoarthritis of the feet questions...
Post by: gold55 on July 19, 2012, 06:30:27 AM
I wonder if Plaquenil has ever been tried for Osteo?  It seems as though its mainly for rheumatic diseases.

OSTEO sucks Carolina!!! 
Title: Re: osteoarthritis of the feet questions...
Post by: Net on July 19, 2012, 08:21:09 AM
Surprisingly 'my' Rheumy was a bit sympathetic when he actually told me that I kinda get the raw end of the deal with having sjogrens 'and' osteoarthritis. In a later appt I asked if this was a bit young to be having all these osteo issues then he just kinda said 'sometimes those are just the cards we are dealt with in life'.....I wasn't exactly asking for sympathy I just kinda wondering 'why' at 46 I'm comparing my hands and feet to a friend that is in her 70's. But I guess I didn't really get an answer. 
But as always, I am thankful for the times when I feel good, which actually my feet are letting me sleep again...yeah!!
For those of you with pain all the time, wow, I sympathize with you because not being able to sleep especially from pain is not fun at all.
I have a coworker who decided to have a knee surgery just because she can't kneel on it. She has no pain at night, no pain when walking or sitting. I think she is nuts...I would just be happy not kneeling on it be thankful you don't have chronice pain. Why mess with it and wonder what's next.
I am thankful that my foot is so far just a mild osteo because the thought of having to make a surgical decision I am not ready for. And like I said, thank goodness mine seems to have subsided...taking the good when it comes :)
Title: Re: osteoarthritis of the feet questions...
Post by: jazzlover on July 19, 2012, 02:11:58 PM

I have a coworker who decided to have a knee surgery just because she can't kneel on it. She has no pain at night, no pain when walking or sitting. I think she is nuts...I would just be happy not kneeling on it be thankful you don't have chronice pain. Why mess with it and wonder what's next.

-
My SIL jumped into hip surgery WAY TOO SOON. She was not having that much pain... only affected her sleep occasionally and she walked just fine. She says now that the DRs lied to her about it all. Took her one year to recover. Now she has even more issues... like with her back and knee.
Title: Re: osteoarthritis of the feet questions...
Post by: nanamaryj on July 29, 2012, 08:47:25 PM
I was wondering if anyone else had osteo in their feet like I do.  Mine is not in the toe joints though.  It is on the top of my foot.  I have a large nodule that swells and hurts so bad that at times I can't walk at all.  It has been in my right foot for a couple of years.  Now it is starting in my left one.  Thankfully that one is not bad yet.  Both hands have osteo also, along with my knees, hips, back, and left shoulder.  I have forgotten what it is like not to feel pain.  Anyone else have it on the top of their foot like that?
Title: Re: osteoarthritis of the feet questions...
Post by: gold55 on July 30, 2012, 03:17:09 AM
This is what Elaine Moore writes in her article about SJS:
While most patients with Sjogren's syndrome have symptoms limited to sicca syndrome, a subset of patients may develop extraglandular symptoms, that is, symptoms not related to the glands. These symptoms include fatigue, rash, cutaneous vasculitis, Raynaud's phenomenon, arthralgia (joint pain), myalgia (muscle pain), myositis (muscle inflammation), frank arthritis, and a particular form of erosive or aggressive osteoarthritis affecting the hands and feet. [/u]

Jill
Title: Re: osteoarthritis of the feet questions...
Post by: Katybarstool on July 30, 2012, 12:48:03 PM
I have osteo arthritis in my hands and feet. My rheumatologist called it nodular arthritis of the menopause. Interestingly, he had the same condition :o - said he had inherited it from his mum.

Kathyx
Title: Re: osteoarthritis of the feet questions...
Post by: Net on July 30, 2012, 09:11:07 PM
nanamaryj- the big joint on both my feet have nodules on top. Now mine seem better, still there, just not so painful.
Now my right hand thumb joint closest to my wrist is very painful and inflamed, almost like it jumped to a new joint, I hate to think what is next but like gold55 said about the article that it seems to be feet and hands and erosive? I'm going on 46 next week and have seen lots of changes in the past  8 mos with my toe and thumb joints so I can almost guess that it is erosive. I am supposed to keep Rheumy up to date cuz I did call him about my thumb now to keep him informed. I have the bad habit of trying to figure things out myself and I told my Rheumy I will try to keep him informed more as I have probs.    I do have to say that even though the thumb hurts and is bothersome at least I can sleep compared to the foot arthritis. :)
Title: Re: osteoarthritis of the feet questions...
Post by: susanep on July 31, 2012, 12:45:36 AM
My dad and brother both had pain in their big toes, and diagnosed with Gout. They have to take the gout meds the rest of their life. It's inflammatory, and arthritic.

My dad's feet are so bad, he has toes on top of other toes from the arthritis. This stuff is bad.

susanep :)
Title: Re: osteoarthritis of the feet questions...
Post by: gold55 on April 06, 2014, 10:05:43 AM
Net, I remember when all of your foot symptoms flared up and I could really identify with that!  I felt so bad for you and as Carolina said....the initial flare up of osteo is the bad one....the rest of them aren't as bad in most cases.   I hope you have your feet and hands under control now.  It sure seems that SJS and Osteo have to be related.  They say we are supposed to have the rheumatic type of arthritis however, it seems that almost everyone diagnosed with SJS has Osteo!  I wish there were a study about this.  I could only find that article I quoted from Elaine Moore.
Title: Re: osteoarthritis of the feet questions...
Post by: slccom on April 06, 2014, 06:07:27 PM
I realized that my left big toe was fighting the tucked-in sheets all night. I started leaving them loose, and the pain in that joint is gone now.

Sharon
Title: Re: osteoarthritis of the feet questions...
Post by: gold55 on April 06, 2014, 07:32:09 PM
Sharon,
Does the arthrotec seem to help you?  thanks, Jill
Title: Re: osteoarthritis of the feet questions...
Post by: slccom on April 06, 2014, 08:43:07 PM
Yes, but I switched to generic diclofenac because I inherited my grandmother's cast iron stomach to go with her arthritis. (She used to take 30 aspirin a day for her RH!). The other half of Arthrotec is to help the stomach. Arthrotec is really expensive, and you should ask your doc about taking omeprozole with the diclofenac.

I loved Vioxx, as it was wonderful when diclofenac quit working. But it works again now. If it quits working, I'll have to try another anti-inflammatory.

Do loosen your bedding and see if that helps, too.
Sharon
Title: Re: osteoarthritis of the feet questions...
Post by: Net on June 17, 2014, 10:28:06 PM
Feet hanging in there....started meloxicam in January and gabapentin about a month later. Immunologist is having me do azithromiacin monthly as an anti inflammatory treatment to get off so much predisone for sinus probs. he was worried some of my foot deformity was due to predisone but had a good 8 year later bone density scan. Yea to that but started a post tonite that I have to have my large colon removed next week.....oh another path in the road.....please send prayers and positive vibes....Net
Title: Re: osteoarthritis of the feet questions...
Post by: Carolina on June 18, 2014, 06:11:50 AM
Heavens, Net, you are having the epitome of my saying:  "It's always something....and then it's something else!"

Your entire large intestine?  I will look for that post.

We must learn something along the lines of coping skills (for me is relaxation and meditation, deep breathing and focussing my mind away from pain and sorrow) in order to deal with life.  But I have to say that you are having a 'perfect storm' of pain and sorrow.

Know that our prayers and thoughts and love are with you.  Please keep us posted.

Hugs, Elaine


Title: Re: osteoarthritis of the feet questions...
Post by: Net on June 20, 2014, 06:00:28 AM
Thanks Carolina!   My neighbor next door offered an essential oil aroma therapy today and Monday to me as a gift to help me relax.....couldn't hurt I told her...lol....but now I do worry that it isnt too strong smelling that a get a migraine from it...lol..always something!
My arthritic feet especially left are pretty Wierd lately cuz I got a steroid back injection to add on to my issues...and boy he hit the nerve! Excruciating! But after I was quite numb and my toes half are too yet!