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Sjogrens Topics => Living With Sjogren's => Topic started by: Daisy1234 on September 22, 2011, 10:33:10 PM

Title: Getting Weaker after Each Chemo Session
Post by: Daisy1234 on September 22, 2011, 10:33:10 PM
Hi everyone:

As some of you are aware, I am currently undergoing chemotherapy for MALT Non-Hodgkins Lymphoma caused by my severe Sjogrens.  I'm on a R-CVP protocol which inclues Rituxan, Cyclophosphamide (Ctoxyan), Vincristine and Prednisone (100 mg for 5 days then reduced to my regular 10mg daily maintenance dose) as well as IV Benadryl and IV Saline.

After each round, just had my 3rd one yesterday, I've definitely become weaker and weaker and am not bouncing back very well.  I just saw my Rheumy earlier this week and she was expecting me to have started to experience lessening of my Sjogren's symptoms after 2 rounds of the Rituxan, I'm getting 600mg of Rituxan at each chemo session.  I find that when I come off the 100mg of prednisone, I also experience quite the crash as well and my Sjs symptoms increase back to their usual levels.  Also neither the pred nor the Rituxan is helping with my eyes at all which are 0 and 0 on the schrimers and dry as a bone.  So in a nutshell, I personally haven't noticed any improvement with the rituxan, but perhaps its too early to tell?

I have 5 more sessions of the R-CVP protocol chemotherapy to go, then I'll be on a new regime of IV Rituxan and Benadryl and Saline for about another 18 months. 

I just hope that I can manage this, as I'm getting less and less strong as each infusion occurs.  Also I've developed alot of peripheral neuropathy that I wasn't experiencing before due to the side-effects of the Vincristine which may be permanent or at least will last for a year after the chemo is stopped.  The Onocologist reduced the amount of Vincristine for yesterday's chemo session, but I was still awoken many times last night and tonight with knife like shots of pain in both feet so perhaps more adjustment needs to happen next time.

Oh well, no one ever said that cancer treatment was going to be fun.

Daisy
Title: Re: Getting Weaker after Each Chemo Session
Post by: stephL on September 23, 2011, 03:01:11 AM
Daisy, what are you doing for the pain? And are your family and friends being supportive?
Title: Re: Getting Weaker after Each Chemo Session
Post by: Joe S. on September 23, 2011, 03:21:59 AM
I am sorry to hear how negatively this is affecting you. My good thoughts are sent to you. It is my hope that you recover faster and respond better than the doctors expect.
Title: Re: Getting Weaker after Each Chemo Session
Post by: engy on September 23, 2011, 03:23:52 AM
Daisy, I'm sorry this is so difficult. I think about you daily. I'm sending prayers & hugs

It stinks that you have another issue now with the neuropathy but maybe it won't last so try not to worry. You need to save the strength you have.

One thing I do that maybe you would like to try is to lay with your back flat, close your eyes & take slow deeep breaths to go to a safe place. When you are there pile up any worries, fears, doubts, anxiety, anger, etc. that may be in you. I visualize myself doing this. Sometimes I'm peeling layers & other times I have to unravel it like a sweater from me because its woven itself within. Once I feel as though I have piled it all up I remove the pile. Do this however you want (sometimes I'm creative & sometimes i get help). After the pile is gone, check to see if there is more there.  Sometimes I need to pile twice. Once the piles are removed take deep breaths & Imagine a color or colors that remind you of energy. Pull those colors through your whole body starting at the top of your head & feel the color's vibration going all the way to your cells as the color goes down to your toes. Then slowly open your eyes.

That usually helps me feel a little less "weighed" down when I get rid of those feeling that can be so heavy & energyzapping.

Hope it helps some. I don't have any other advice right now & hope you don't think it's silly but I thought it couldn't hurt to try.

Take care, Carie
Title: Re: Getting Weaker after Each Chemo Session
Post by: mshistory on September 23, 2011, 04:46:03 AM
I am sending you many positive thoughts and hopes that you will soon start feeling better.
Title: Re: Getting Weaker after Each Chemo Session
Post by: anita on September 23, 2011, 04:56:26 AM
I have read on the neuro forum that cytoxan can also cause peripheral neuropathy...and yes, it can be permanent.

I thought the Rituxan was primarily for extraglandular problems, so I don't know if you'll get dry eye benefits.  Sounds like you have bigger problems then dry eyes anyway.   We'll keep our fingers crossed that it helps you all the way around.
Title: Re: Getting Weaker after Each Chemo Session
Post by: gurs on September 23, 2011, 05:13:32 AM
I had a few rounds of Rituxan, and never noticed that it helped with the overall dryness. I think I had less flaring and prob does good to keep things from getting worse, but didnt really notice anything different. I havent gotten any rituxan in the last 1.5 years, and have been super sick, so not sure if the rituxan actually helped or not. I wish you could get a break from all the dryness from all your medications and treatments, I cant even imagine what you are going through. I heard Drinking Penta water helps alot?

Oh, I remember about the prednisone crash too..I had to stay on some medrol for along time to help. I still cant wean off the medrol.
I think my neuropathy got worse too after some of the meds and treatments I had. Hopefully, this will go away. Your on alot of toxic stuff
right now and your body is just going nuts. When its all done, you should be feeling better. Thoughts are with you!

Gursie
Title: Re: Getting Weaker after Each Chemo Session
Post by: Daisy1234 on September 23, 2011, 05:35:37 AM
Thank you all so very much for your care and concern and many helpful suggestions.  I have been struggling so with this cancer treatment and have been having more than usual issues because I am not allowed to follow my regular routine for certain procedures that treat some of my more daunting Sjs aspects.  For example I normally get cortizone injections in my SI joints at this time and have been told to forego that until the chemo is over due to the high risk of infection.  Also have been told I am not allowed to have my usual Botox shots injected into my esophagus and pylorus under Endoscopy also due to infection so my Gastroparesis is flaring.  I am also still very very dry and having some nasty lung issues again but will see my Respirologist in another week or so.

For those of you who asked about my emotional support system, I am surely one of the lucky ones.
I am very blessed in having an extremely supportive husband who is there with me at every chemo treatment and will drop whatever he's doing at a moments notice if I say that I need help.  My family and close friends have also been very kind to me.  They are all such lovely people, and I treasure them greatly.

And for all of you, my wonderful Sjogren's family, I turn very often to you all for your so insightful and caring suggestions, so many of which I take to heart and I find great comfort and solace in this very special community. 

It helps me so very much to communicate with others who understand exactly the challenges and trials that this much misunderstood disease throws at us all.

With many grateful hugs,
Daisy
Title: Re: Getting Weaker after Each Chemo Session
Post by: ohiolady on September 23, 2011, 07:01:22 AM
Daisy,

You know I just hate that you hve to suffer so much with this treatment.  I am just hoping and praying you get through this and the cancer will be in remission and your Sjogrens symptoms are lessened.  It sure can get discouraging when you are facing such an aggressive treatment and not seeing any concrete improvements.

Take care of yourself, Daisy.  And, please know we all care and here for you.

Anna
Title: Re: Getting Weaker after Each Chemo Session
Post by: genko_b on September 23, 2011, 10:59:43 AM
Hi Daisy:

Just wanted to let you know that my brother-in-law underwent the same R-CVP protocol for MALT Non-Hodgkins lymphoma. He was a very healthy person going into the treatment - no underlying Sjogren's or anything - and the treatment knocked him absolutely flat. He was so weak he thought it would do him in. In fact, at one point he asked that the treatment be stopped for a while so he could recoup his strength a bit. Both he and his wife are in the medical field and yet did not expect the treatment to be so harsh in its effect.

I can only imagine how difficult it is for you in these circumstances. It's great that you have lots of support. In the end, that is what makes the difference. We will be rooting for you to get through this and regain your strength.

Take care,

Genko
Title: Re: Getting Weaker after Each Chemo Session
Post by: lindaneall on September 23, 2011, 11:09:01 AM
Daisy, my heart sunk when I read the title of your post.  You are always so upbeat and I am just so sorry to hear that this chemo is wiping you out so badly. You certainly are on some heavy duty meds.  I just wanted to tell you that I am praying for you and hoping that you will notice some improvement soon after the grueling regimen you are on. 

Sending lots of love and hugs :)

Linda
Title: Re: Getting Weaker after Each Chemo Session
Post by: A66eyroad on September 23, 2011, 11:10:38 AM
I'm so sorry, Daisy, that you're having to go through such a rough chemo. Know you're in my heart and in my prayers.
Title: Re: Getting Weaker after Each Chemo Session
Post by: cat on September 23, 2011, 12:03:02 PM
Hi Daisy
I also hope you will be feeling better soon and wish you the best outcome from your treatments.
 
Hang in there you're a fighter.
Cat
Title: Re: Getting Weaker after Each Chemo Session
Post by: Katybarstool on September 23, 2011, 01:11:08 PM
Daisy

You really are having a rough time just now, but it is heartening to know that you have such a wonderful support network of family and friends.

Will be thinking about you, and remembering you in my prayers.

Kathyx
Title: Re: Getting Weaker after Each Chemo Session
Post by: mebog on September 23, 2011, 01:36:18 PM
Hi Daisy,  I don't post often but I want you to know you are in my prayers.

Sending you HUGS and Good Wishes.

mebog
Title: Re: Getting Weaker after Each Chemo Session
Post by: gurs on September 23, 2011, 01:42:35 PM
Hang in there girl!!! will take some time, but you will get through this...sure you will feel better too!

Gursie
Title: Re: Getting Weaker after Each Chemo Session
Post by: Carebear on September 23, 2011, 01:54:51 PM
Hi Daisy,

I'm so sorry to hear that you are feeling worse these days.  I hope things turn around for you very soon.  :)
Title: Re: Getting Weaker after Each Chemo Session
Post by: Meld256 on September 23, 2011, 01:58:46 PM
Our dear Daisy,

I'm glad you posted. I was just going to ask you yesterday when the next round was and how you were doing.

I'm so sorry these rounds are so difficult on you. So tough to deal with when you cannot follow your usual regime for treating the Sjogrens at the same time.  I hope the appointment with the Respirologist will bring some help to some of the lung issues.

That's wonderful that you have such a good support system with your husband, family and friends. I can imagine you've been a great support for them at any time needed; now it's your turn to let them pamper you.  ;) You've certainly been an encouraging blessing to all of us.

You are in my thoughts and prayers daily. 
Many gentle hugs to you.
Melinda
Title: Re: Getting Weaker after Each Chemo Session
Post by: susan on September 23, 2011, 03:11:07 PM

I am always so impressed with your attitude about your illness and treatment----it is inspirational.

I wish the best outcome possible for you!
Title: Re: Getting Weaker after Each Chemo Session
Post by: Cheryl on September 23, 2011, 03:32:24 PM
Daisy,
I'm sorry that your chemo treatments are affecting you so badly.   Let's hope that it is zapping the lymphoma with as much gusto!  3 down, 5 to go - you are almost 1/2 way there now. 

Will your prednisone dosage be tapered soon?  I wonder if that is what is making your eyes drier (it does that to mine.)

Hang in there, Daisy!  We are all hoping to hear better news from you very soon.

Hugs and prayers,
Cheryl
Title: Re: Getting Weaker after Each Chemo Session
Post by: Bucky on September 23, 2011, 04:20:16 PM
(((Daisy))) - I'm sorry your chemo treatments are so rough.  It's such a grueling regimen to knock that cancer out of your body.

I remember my sister saying how weak she was after her chemo treatments.  There was nothing she could do, but rest.

I'm glad that your husband is able to go with you to your chemo treatments.  :)

After I read this thread, and while typing this response, I went to the basement where I had just taken my summer silk flowers and snipped off one of the daisy's I have and brought it upstairs and have it sitting next to my computer.  Every day I will see this daisy and think of you.   ;D

I wish there was something I could do to help you.

Thank you for letting us share this journey with you - we're here to listen and offer our support to you as you courageously kick the *$%# (insert your own word) out of that cancer!!   ;)

Here's a little something I found that might bring a smile to your face:  "I got the bill for my surgery.  Now I know what those doctors were wearing masks for. "
 ~James H. Boren

Sending prayers and a hug to you Daisy.

Bucky



Title: Re: Getting Weaker after Each Chemo Session
Post by: elliea on September 23, 2011, 07:57:58 PM
Hi Daisy-I finished R-CVP for the follicular NHlymphoma in my lacrimal gland in May. It took about 2 months to get rid of the side effects.I did notice that the Rituxan helped with the joint pain but didn't really help my eyes. After chemo side effects wore off,I had a Sjogren's flare. The rheumy put me on Pred for 3 weeks to help me get through the busiest time at work. My eye doctor told me not to use anymore Restasis because it has some mild immune suppressing qualities and since the Lymphoma was in my eye,he said not to use it. He did say,though that the Restasis did not cause the Lymphoma. I had permanent plugs put in and they help quite a bit. In November ,I start 2 years of R maintenance(1x week for 4 weeks every 6 months for 2 years).
So, I really feel for you-you are not alone.I have had Lymphoma for 11 years(probably longer for the SS tho dx'd a year ago). We can and will get through this! I know it.!! PM or e-mail me whenever you want.
Good luck.
Hugs,
Lesley ;)
Title: Re: Getting Weaker after Each Chemo Session
Post by: season on September 23, 2011, 09:45:05 PM
so sorry you are having such a rough time. Take care of yourself and I wish you the best.
Title: Re: Getting Weaker after Each Chemo Session
Post by: susanep on September 24, 2011, 12:27:37 AM
Daisy I said a prayer for you to feel better soon, and I am so glad you have a wonderful supportive family. That means a lot in times like these.

I will keep you in my prayers. Hang in there which I know you are. You are an inspiration to others who may have to go through similar things ahead.

susanep
hugs
Title: Re: Getting Weaker after Each Chemo Session
Post by: shevonne on September 24, 2011, 01:38:26 AM
Daisy, I think of you often.  Im sorry that you are going through this but I know you will get through it.  Hang in there, I will be praying for you!
Title: Re: Getting Weaker after Each Chemo Session
Post by: Daisy1234 on September 24, 2011, 12:53:39 PM
Oh thank you all for your wonderful and so kind thoughts! 
You have given me such gifts in the many special words written that have touched my heart and buoyed my spirits.   

Although I would prefer to send each of you individually a special thank you, my strength does not permit that currently even though I would so wish to. 

I have not shared until right now what the full story is with the Non-Hodgkins (NHL) MALT Lymphoma I am battling, but I have been diagnosed with Stage III NHL MALT Lymphoma, which in general terms means I have it in more than one place in my body simultaneously and on both sides of my body.  The 5 CT scans indicated that I have it in my lungs, both left and right sides of Inguinal area and on my left clavacle area.  I was also exhibiting all of the "B" symptoms which are considered classic of a more advanced stage of NHL.

Let me just say that there is still plenty of hope for successful treatment and that the cancer will respond and be in remission.  The Oncologist has also discussed the possibility of transitioning to R-CHOP protocol after the R-CVP if things are not as successful as they would like.

Life is still very very good and as I said earlier, and I am so blessed by the richness of love and happiness in my circle of family and close friends.  You have all grown into part of my extended family and I am sending you all the warmest of gentle embraces reserved only for those who are very special to me.

Daisy
Title: Re: Getting Weaker after Each Chemo Session
Post by: Katybarstool on September 24, 2011, 01:09:32 PM
Daisy

Thank you for sharing this information with us. I will add you to our prayer list at church tomorrow. 

God bless.
Kathyx
Title: Re: Getting Weaker after Each Chemo Session
Post by: Carebear on September 24, 2011, 03:17:24 PM
Daisy,

A hug right back at you!   ;D
Title: Re: Getting Weaker after Each Chemo Session
Post by: irish on September 24, 2011, 09:30:23 PM
Daisy, You continue to be a real trouper with this fight you have on your hands. I will continue to keep you in my thoughts and prayers. It was nice of you to explain more about your lymphoma. One thing about the lymphomas is that they can confuse a person to death. There are so many kinds of them and so much information. Keep on keeping on, girl. Irish ;D
Title: Re: Getting Weaker after Each Chemo Session
Post by: Chickpea on September 25, 2011, 04:30:24 PM
Dear Daisy

Thank you so much for sharing this with us.  I had a very small taste of what you're experiencing when I had Cytoxan last year, and that med alone was enough to knock me down flat. 

It took months to get my strength back but what helped me is what seems to be helping you - a caring husband (although I think we have different ones!  At least I hope so!!); wonderful friends; a love of life that can't be dimmed; and a level of acceptance.  That doesn't mean being passive, just working with what we're given.

Please, please don't ask too much of yourself.  Allow yourself to rest, rest, rest.  Eat your favourite foods even if only a little mouthful.  Watch lots of old films.  Listen to the music you loved when you were a teenager.  Be as kind to yourself as you would be to someone else.

I share your feelings about the wonderful people here.  Late at night when I was at my sickest I would imagine the globe with Sjoggies at all points, knowing that someone somewhere was awake at every hour.  It was very comforting!

Sending lots of gentle hugs - Chickpea

Title: Re: Getting Weaker after Each Chemo Session
Post by: sewandsew on September 25, 2011, 04:59:56 PM
I am sending you HELP:

Hugs    Encouragement   Love   Prayers
Title: Re: Getting Weaker after Each Chemo Session
Post by: stephL on September 26, 2011, 11:14:15 AM
Daisy, I wish I could come up with some brilliant good wishes to cheer you and give you strength. It's brain fog giving me writer's block, I guess. All I can say is thank you for having the courage to share your story with us. A lot of people read here and I'm sure you've touched lives and you may never know about it. Take good care of yourself, keep fighting, and remember we are here for you.
Title: Re: Getting Weaker after Each Chemo Session
Post by: 4Kids on September 26, 2011, 02:26:34 PM
I think of you all the time, Daisy. I pray for you, and you inspire me.

Fighting cancer is incredibly hard. I saw that watching my Mom. Your words speak to your strength.

All my best wishes,

Jackie
Title: Re: Getting Weaker after Each Chemo Session
Post by: jstroble on September 26, 2011, 02:54:46 PM


Thinking of you and sending healing thoughts your way. 

Joyce
Title: Re: Getting Weaker after Each Chemo Session
Post by: Bucky on October 19, 2011, 02:21:07 PM
Hi Daisy - how are you?  Been thinking about you.

Hugs,
Bucky
Title: Re: Getting Weaker after Each Chemo Session
Post by: Narablueeyes on October 19, 2011, 04:10:41 PM
Positive, healing thoughts coming your way.
Title: Re: Getting Weaker after Each Chemo Session
Post by: Carebear on October 19, 2011, 04:31:55 PM
Daisy,

I think about you every time I'm in my garden...looking at MY daisies.  ;) 
Title: Re: Getting Weaker after Each Chemo Session
Post by: kellyptyler on October 19, 2011, 05:37:38 PM
I will be praying for you daily. Hang in there.
Title: Re: Getting Weaker after Each Chemo Session
Post by: Carolina on October 19, 2011, 06:05:46 PM
Daisy dear,

Thinking of you, with tears.

The thing about chemo is that if it makes you very very sick that means it is killing the cancer cells.

If it doesn't, it means your body is resisting the chemo, so the cancer cells are protected.

It is a hard fact, but true.

at least with most chemos.   I pray that your very horror is part of your recovery.

I also pray to hear from you when you are ready to write to us again.

Hugs

Elaine
Title: Re: Getting Weaker after Each Chemo Session
Post by: Chickpea on October 20, 2011, 03:33:32 AM
Dearest Daisy

You've been on my mind.  I hope that you're feeling all the love and concern coming from everyone here.

Sending gentle hugs - Chickpea
Title: Re: Getting Weaker after Each Chemo Session
Post by: gurs on October 20, 2011, 04:24:18 AM
Daisy,

Hang in there girl!!! your are a true warrior...look at what your dealing with..Cancer and Autoimmune..cant get much worse than that...
BUT..think when your treatment is done, your body will heal, and you will feel so much better in the long run.

I cant even imagine. I thought just my little Rituxan was bad???? your an inspiration.

Gursie

Title: Re: Getting Weaker after Each Chemo Session
Post by: Surroundedbylove on October 20, 2011, 04:51:27 AM
I am new to this forum but I wanted to reach out to you as a fellow member who has traveled the cancer journey.

I have chemo induced peripheral neuropathy and it was improved by the electrically enhanced acupuncture.  Admittedly it took about 18 months post-chemo (the neuropathy causing chemo (I had two chemos)) for it to get to it's best because it can take up to two years for nerves to regenerate.  I don't know if that is an option for you but you might want to ask about it.  Also, gabapentin helped the neuropathy in the meantime as well.

Chemo is rough - no doubt about it.  My SJS symptoms minimized about 2-3 months into chemo but the chemo itself was really, really rough (but worth it).

Best of luck to you.

SBL
Title: Re: Getting Weaker after Each Chemo Session
Post by: Daisy1234 on October 20, 2011, 06:03:16 AM
Hello my dear dear friends:

How lovely it is to know that so many of you are thinking of me and wishing me well! 

I've just had the 4th of 8 rounds of chemo last week and have been struggling quite a bit with the side-effects.  Chemo is not easy as many of you have seen with your special loved ones or even have experienced first hand. (Surroundedbylove having to do chemo twice!!!!) 

However, there is a light at the end of the tunnel as I'm halfway done my R-CVP chemo treatments now and after number 8 I will only have to do 2 more years of Rituxan maintenance to complete this cancer treatment which hopefully will be much easier than what I'm enduring now.  I am also very lucky that my only job is to focus on fighting this cancer and regaining my strength once it is done.

Thank you all so very much for your touching posts of caring, I really don't know what I'd do without you all.

with grateful hugs,
Daisy
Title: Re: Getting Weaker after Each Chemo Session
Post by: irish on October 20, 2011, 07:18:31 PM
Daisy, I am glad that you were able to post. We all needed to hear from you. YOu sound better than I thought you would. Thank goodness your only job is to cope with this beast for now.

Know that I am thinking of you and sending up prayers to keep you strong through this ordeal and healthy when it is over. Just noticed your little ditty about God and your toes. Hugs Irish ;D
Title: Re: Getting Weaker after Each Chemo Session
Post by: season on October 20, 2011, 08:58:06 PM
wishing you well. Take care of yourself.
Title: Re: Getting Weaker after Each Chemo Session
Post by: Bucky on October 21, 2011, 02:51:02 PM
It's good to hear from you Daisy.   :)

I'm sorry your chemo treatments are so brutal and hard on you.   :(  However, I hope you continue to keep your upbeat attitude and outlook.

Always keeping you in thought and prayers (and by my computer  ;) ).

Take care friend.

Bucky
Title: Re: Getting Weaker after Each Chemo Session
Post by: susanep on October 21, 2011, 07:45:50 PM
I hope you get through this soon. You are still in my prayers. You are loved here by all.

susanep  :)
Title: Re: Getting Weaker after Each Chemo Session
Post by: Katybarstool on October 26, 2011, 12:47:20 PM
Daisy, it's wonderful to see you posting again. I think of you and your journey often, and pray for you too.

Hugs
Kathyx
Title: Re: Getting Weaker after Each Chemo Session
Post by: Chickpea on October 27, 2011, 02:49:09 PM
Daisy - how good to hear from you!  As you say, you're half way there and each day, each hour, each minute takes you closer.

Thinking of you - Chickpea
Title: Re: Getting Weaker after Each Chemo Session
Post by: Daisy1234 on October 27, 2011, 05:32:26 PM
Thank you my dear dear ones. 
This is my "good" week before my next chemo infusion so I'm able to get up and slowly move around again which is just lovely.  I seem to be spending 2 weeks out of the 21 day chemo cycle in bed and the last week before my infusion I start to recover and move around and then notice how dirty the house has become since I last cleaned it LOL. 

Ah life is still very very wonderful, and I am getting a whole new appreciation for those people who are bedridden or severely mobility impaired.  It is always good to walk a mile in the shoes of others every now and then.  It helps keep one's focus on what is truly important in life!

Daisy
Title: Re: Getting Weaker after Each Chemo Session
Post by: 4Kids on October 27, 2011, 05:52:56 PM
You need to stamp your words of wisdom on my forehead, Daisy. ASAP!

*hugs*
Title: Re: Getting Weaker after Each Chemo Session
Post by: Meld256 on October 27, 2011, 08:12:07 PM
Dear Daisy,

I'm also glad to see you posting.  It's nice to know this is your "good" week.  You have one of the most uplifting spirits.
Maybe we can spread your wonderful outlook on life around to us all.  ;)  Enjoy your week and I will keep you in my prayers,

Melinda
Title: Re: Getting Weaker after Each Chemo Session
Post by: Virgi on October 27, 2011, 09:48:15 PM
My heart goes out to you -
I complain of the Methotrexate weekly and Gabapentin- Cant imagine how you?re feeling.
Keep the strength -

Sending you some comfort and strenght,

Virgi
Title: Re: Getting Weaker after Each Chemo Session
Post by: Katybarstool on October 30, 2011, 01:06:19 PM
Daisy,

I'm so pleased you have some god times between your treatments. Sending you lots of hugs and positive vibes for the next round.

God bless
Kathyx
Title: Re: Getting Weaker after Each Chemo Session
Post by: harrigan on October 30, 2011, 01:23:09 PM
Thinking of you Daisy.  Hope you have enjoyed some better days between treatments and daring to hope that the next one may be a little easier.  Take care  xx Ailsa
Title: Re: Getting Weaker after Each Chemo Session
Post by: gold55 on October 30, 2011, 03:06:25 PM
Prayers are sent your way Daisy.  May you heal and feel much love throughout the remainder of this painful journey.  Rest and take care. xxoo
Title: Re: Getting Weaker after Each Chemo Session
Post by: irish on October 30, 2011, 09:58:37 PM
Prayers continue for your ability to make it through this ordeal. What a journey you have had. Will hope and pray that you will be feeling somewhat better for the holidays.

THey say that with suffering comes understanding and much wisdom. You must understand a whole lot more than you did when you started this journey. We know that you had wisdom before but it must be positively oozing out of your pores by now. Hang in there girl. Know that we all care. Irish ;D
Title: Re: Getting Weaker after Each Chemo Session
Post by: Virgi on November 07, 2011, 02:30:13 PM

Ah life is still very very wonderful, and I am getting a whole new appreciation for those people who are bedridden or severely mobility impaired.  It is always good to walk a mile in the shoes of others every now and then.  It helps keep one's focus on what is truly important in life!

Daisy

Absolutely beautiful - thank you for the reminder
Title: Re: Getting Weaker after Each Chemo Session
Post by: Bucky on November 19, 2011, 03:17:43 PM
Daisy - been looking at "my daisy" and wondering how you are feeling these days? 

Sending hugs,
Bucky

Title: Re: Getting Weaker after Each Chemo Session
Post by: susanep on November 19, 2011, 03:37:14 PM
Still thinking of you Daisy, and praying your days get easier. You do radiate such a special spirit to all of us.

susanep  :)
Title: Re: Getting Weaker after Each Chemo Session
Post by: kwolfsheimer on November 19, 2011, 04:16:33 PM
Daisy,

I am sorry to hear about this.  I hope that you are holding your own and that things are getting better. Much love and positive thoughts are directed your way.  Take it easy!!

Kelly