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Sjogrens Topics => Living With Sjogren's => Topic started by: Vasha on April 07, 2010, 03:29:39 PM

Title: Lip Biopsy Healing Process
Post by: Vasha on April 07, 2010, 03:29:39 PM
Hi Everyone,

I just got home from having my lip biopsy, and I wondered how long the healing process was for you?  The doctor said the pain shouldn't be very bad, and they give no pain medication for afterwards, but I know myself better than they do.  I have a difficult time with pain now.  I am taking some of the pain medication that I have on hand.

Please let me know what your experience with healing after this procedure has been.  I am already in pain with my teeth and jaw aching more than my lip now, since the numbing medication probably hasn't completely worn off, and this is after taking oxycodone.

Dr. Birnbaum called me on Monday and said he believes my diagnosis is primary SJS based on the test results so far, and he expects the lip biopsy will confirm the diagnosis.  He also says I have the antibodies for celiac, anti-smooth muscle, and autoimmune hepatitis.  I already was being treated for Hasimoto's and Fibromyalgia, so these things just add to my list.

Please share . . . Vasha (and tell me how to create a permanent signature with diagnosis list for posting!!)
Title: Re: Lip Biopsy Healing Process
Post by: Sheltiemom on April 07, 2010, 05:02:01 PM
Hi, Vasha -

So sorry to read that you now having another illness (SjS) to add to your list.  As to the lip biopsy healing process, yesterday was the second week out since the procedure and it's no more than a distant memory.  Discomfort afterwards was not bad, had no pain meds either given or on hand but don't think I needed any.  By day eight, the four stitches were out, no pain whatsoever and I was eating like a horse - actually catching up because for seven days had eaten only basically non-chewable foods like soup, yogurt, pudding, applesauce, mashed banana, mashed peach chunks, baby food veggies and chicken.

Hope you heal quickly and well,

Sheltiemom
Title: Re: Lip Biopsy Healing Process
Post by: Patze on April 07, 2010, 05:20:42 PM
Hi Vasha,

Most folks have very little problem with healing, and such.  Please remember that everyone is so different, so what happened after mine probably won't happen to you (I had silk stitches, so not a good thing for me).

Take it easy, use ice if you need it, and hang in there, it will get better (I was told to take OTC Tylenol for the pain, and that was that).

Take care of yourself -

Patze
Title: Re: Lip Biopsy Healing Process
Post by: Vasha on April 08, 2010, 11:58:28 PM
Thanks for the replies everyone.  I was doing fine the first night, and I worked the next day.  Of course, me being me, my pain issues just won't follow the rules, and by evening two, the whole right side of my jaw, lip, head, and neck muscles are in so much pain I just can't stand it.  There is no sign of infection,  but the swelling is very tight and tender.  I actually have the most pain in my teeth and jaw from where they stretched my lips and cheek to pull them away from my teeth and jaw during the procedure.  I think they stretched the nerves which is not good for me . . .

Even the Oxycodone I have on hand isn't touching this pain, and last nightit made me really nauseas as well.  HAs anyone had a simmilar experience?  How lomg did it take to heal?  If it is still not better tomorrow and I can't work, I will have to call the surgeon.

Thanks as always, Vasha
Title: Re: Lip Biopsy Healing Process
Post by: harrigan on April 09, 2010, 12:36:22 AM
I've not had a lip biopsy but had an infection in my jaw once following an extraction and the pain was as you describe it.  You have my sympathy Vasha - it is truly awful.  I got Tramadol from the DR in the end and was climbing the walls in the last hour before the next dose.  I also needed double antibiotics - one was metronidazole and it made me feel sick but within 2 days I was sane again, and better after 5 days.  Hope you can see the surgeon and get sorted with the right stuff to get rid of this for you - what a shame after feeling ok the first night too.  Thinking of you XX Ailsa
Title: Re: Lip Biopsy Healing Process
Post by: sleeeepy on April 09, 2010, 02:27:27 AM
Hi Vasha, I had the lip biopsy done this past October and what worked for me was ICE and lots of it!!  The ice packs numbed the area enough to relieve swelling and cut the pain level.  I used ice for at least 4 days.  Not fun I know, but it helped.  Take care...... Mary
Title: Re: Lip Biopsy Healing Process
Post by: Patze on April 09, 2010, 04:17:47 AM
I'm sorry that you're having a lot of problems with it, and Sleeeeepy is right, ice, ice, and more ice if you can; that's the only thing that kept me sane.  I used ice a lot for about a week before the swelling started going down, and like I mentioned before, I had silk stitches so everything kept getting caught in them (they were in for three weeks).

Yep, had the jaw and sinus pain from this (the whole face seemed to hurt), and it started to get better when the swelling went down.  The first day or two is usually the worst, and hopefully the pain and swelling will ease up for you soon.

Hang in there, I know it's hard....


Patze
Title: Re: Lip Biopsy Healing Process
Post by: Beta on April 09, 2010, 05:16:19 AM
I done my lip biopsy 6 months ago and my lower lip is still numb. It was painful, swolen and I remember eating lots of ice cream. Few stitches came out by them selves, I wasn't panicked because it looked OK when I checked in the mirror .

The worst were taking out other stitches left. I would not do it again.
Title: Re: Lip Biopsy Healing Process
Post by: Shashi11962 on April 13, 2010, 07:37:23 PM
I done my lip biopsy 6 months ago and my lower lip is still numb. It was painful, swolen and I remember eating lots of ice cream. Few stitches came out by them selves, I wasn't panicked because it looked OK when I checked in the mirror .

The worst were taking out other stitches left. I would not do it again.


Beta, I had a lipoma (fatty tumor) removed from my lip 30 years ago, and my lip is still numb! I haven't had my lip biopsy yet (May 25), but from reading here, it doesn't sound like too much fun. I'm planning to go to work for 4.5 hours the evening after my biopsy.  (I'm a college instructor.) Is this unrealistic?
Title: Re: Lip Biopsy Healing Process
Post by: Beta on April 14, 2010, 12:24:05 AM
Hi Shashi ,

In my opinion, it may be unrealistic. In my case anaesthetic stopped working after few hours and I was in lots of pain, I could not talk much and eat properly for 8 days minimum.

That is only my experience. Everyone is different, methods of lip biopsy may also be different, good luck to you!
Title: Re: Lip Biopsy Healing Process
Post by: Suzie on April 15, 2010, 07:42:15 AM
I'm having my lip biopsy next week. The doc told me it's nothing, just a little pin prick.
I'm guessing he hasn't had it done himself... :o

Suzie

Title: Re: Lip Biopsy Healing Process
Post by: bloodless on April 15, 2010, 09:00:06 AM
Suzie,
Don't get to anxious. My lip biopsy was a breeze. I didn't have any real pain and healed real fast. The only negative thing I can say about my lip biopsy is it left a small numb spot. It's slowly fading away. It's been a two years and I just have a tiny numb spot now.
Title: Re: Lip Biopsy Healing Process
Post by: Vasha on April 16, 2010, 06:28:06 PM
Update****

It has been 9 days now, and the world is a much better place.  All of the stitches are out.  The truly terrible pain only lasted for the first 5 days, and then it was managable.  Now, I feel normal, except for a small lump of swelling that still needs to go down.  My doctor thought the test would be the determining factor in a SJS diagnosis for me, and the preliminary report does not have that result, but he likes to review all of the test results himself before making a determination.  I am glad I had the test, but it was not pleasant.

Vasha
Title: Re: Lip Biopsy Healing Process
Post by: beautifulkrissy026 on April 17, 2010, 10:36:42 AM
Vasha,
I hope you get the answers you need from your test. It's not pleasant going through something like that and then still not getting any answers.  Good Luck!
Kristine
Title: Re: Lip Biopsy Healing Process
Post by: ashler on December 01, 2014, 01:51:21 AM
Lip biopsy was done 3 weeks ago and still does not heal. It was better a week later, but today I noticed a redish area around the biopsy (it was also red a day after the biopsy) and a white spot (probably infection) where the biopsy was done. I will go tomorrow with the oral surgeon but if you have any suggestions in the meantime let me know. Thanks.
Title: Re: Lip Biopsy Healing Process
Post by: oliverid5 on December 01, 2014, 08:04:40 AM
I had my lip biopsy done on 11/10/2014.  I couldn't eat solid food (like chicken, beef, etc.) for a week and even then had to stick in small bite-sized pieces.  After about a week that was fine, but still a bit sore.  Now at 12/01/2014, I have no pain at the site, but I still have profound numbness and a little nodule at the biopsy site, which the oral surgeon told me could take up to a year to resolve.  No big deal, especially knowing the that biopsy confirmed my diagnosis of Sjogren's.
Title: Re: Lip Biopsy Healing Process
Post by: ashler on December 01, 2014, 10:04:16 AM
I had my lip biopsy done on 11/10/2014.  I couldn't eat solid food (like chicken, beef, etc.) for a week and even then had to stick in small bite-sized pieces.  After about a week that was fine, but still a bit sore.  Now at 12/01/2014, I have no pain at the site, but I still have profound numbness and a little nodule at the biopsy site, which the oral surgeon told me could take up to a year to resolve.  No big deal, especially knowing the that biopsy confirmed my diagnosis of Sjogren's.

yes, I also have that node at the biopsy site. but I also have an infection there which I shouldn't have 3 weeks after surgery. will go tomorrow to check what is this.

thanks.
Title: Re: Lip Biopsy Healing Process
Post by: SjoGirl on December 01, 2014, 05:12:08 PM
As someone noted, we're all different. The person who did my biopsy was learning, no numbing my lip before she started, stiches became ingrown, etc. so I was miserable. It took about six months to heal.

I will never have another one because my rheumy said it really wasn't necessary given my symptoms. I will say that I did finally heal and have no permanent problems as a result of the biopsy (which was negative).

Hopefully you will heal quickly and well.
Title: Re: Lip Biopsy Healing Process
Post by: ashler on December 04, 2014, 03:14:46 AM
today I went with the oral surgeon because there's a node/cyst in the biopsy area. the doctor said it's indeed a cyst (I think the word he used was "Mucous Cyst") and that it will have to be removed. in other words I will have another surgery next week :(

does this happened to any of you? all this seems to be a nightmare.
Title: Re: Lip Biopsy Healing Process
Post by: ashler on December 04, 2014, 06:51:29 AM
anyone?
Title: Re: Lip Biopsy Healing Process
Post by: oliverid5 on December 04, 2014, 07:48:52 AM
Mine seems to get smaller each day.  It is definitely not infected by any means.  Sorry you have to go through this.
Title: Re: Lip Biopsy Healing Process
Post by: ashler on December 04, 2014, 09:32:36 AM
Mine seems to get smaller each day.  It is definitely not infected by any means.  Sorry you have to go through this.

but now they want to surgically remove that "cyst". is this normal after a biopsy? anyone went through a similar experience? I can't believe I need to go through a biopsy again.