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Sjogrens Topics => Living With Sjogren's => Topic started by: Patze on December 27, 2009, 05:03:23 PM

Title: Red Spots....go away!
Post by: Patze on December 27, 2009, 05:03:23 PM
Hi all,

Let's see, on the never ending cycle of newly developing symptoms or two.  ::)  The rheumy has been asking if I've developed a rash on my legs (around my ankles), and I've not so far (guess he's looking for a vasculitis rash, but he hasn't said though).  BUT I have several flat bright red spots on the trunk of my body, and I can't find anything in the old topics that resembles this, but want to see if anyone else seems to have run into something similar.

They seem to be inviting some of their relatives to hang out on my skin too, they're not painful, but seem to be multiplying (most are fairly small, and one is quite large).  I've had one for almost seven years, and the large one for about three years now (the other five are all within the last couple of months).  If they keep this rate up, I'm charging them suckers some rent!  ;D

Thanks for reading, and have a great night -

Patze
Title: Re: Red Spots....go away!
Post by: Jules48cats on December 27, 2009, 05:08:45 PM
Patze
No but I have White spots on my ankles and feet.
Jules
Title: Re: Red Spots....go away!
Post by: roetta on December 27, 2009, 07:34:13 PM
I have a vasculitis rash on my arms and face. Nothing on my ankles though.
Title: Re: Red Spots....go away!
Post by: dkpowell on December 28, 2009, 09:19:51 AM
My Dr says these are called hemangiomas - they are harmeless, but can be removed by laser if you want to. He says they tend to be inherited - don't really know if they are related to SJS. I ahve had them for years - my stomach is covered with them - looks like they had a party. I have a few on my arms/legs, but not like the tummy!
Debora
Title: Re: Red Spots....go away!
Post by: inga on December 28, 2009, 09:31:20 AM
Angiomas come on with aging.  Telangelectasia can occur with several conditions.  If you have a + Scl, or +ANA with nucleolar pattern or mixed nucleolar pattern, then it is more diagnostic.  I would bring them to the attention of your rheumatologist.
Title: Re: Red Spots....go away!
Post by: twilite on December 28, 2009, 04:06:32 PM
I have had these uggleyyyy red spots forever!  I notied them really multiplying about 10 years ago - GP said don't worry about them,  My Mother's Mom had them also.  No one else in my family has them.

A few located on arms and legs .  Loaded on trunk of body.  I now own them ;)

Twilite
Title: Re: Red Spots....go away!
Post by: Patze on December 28, 2009, 05:00:33 PM
Thanks much for all your answers! 

I thought it might be anglomas, but I already have a couple of them, and these new ones look a bit different (I also have telangelectasias (Rosacea), and it's not that either).  What can I say?  I'm a bit of a red road map in progress.  ;) ;D

Since they are pretty much in the tummy region (and I've had a lot of problems with the digestive system lately), I figure that that might have something to do with it.  I'll see the gastro in a couple of weeks, and I'll run it by him and see what he thinks.

Take care -

Patze
Title: Re: Red Spots....go away!
Post by: Carly on December 28, 2009, 05:38:29 PM
Hello, I am new here, have been chasing down a diagnosis for about 10 years.

(primary SLE, secondary Sjogrens or the reverse depending which is flairing more at that
doctor visiit)

My red spots are flat, shiny, red and do not itch.  they start at one place and
spead out over time. like first my torso then my right arm then my left arm and
starts slowing down when it gets to the right leg.

I also have Grave's disease, which sounds bad but is just an immune thing.
My dermy prescribed some good stuff in a tube.  It clears it up within a week
and if I stay out of the sun and don't overheat they stay away awhile

perhaps you could ask one of your doctors if it would also clear up or at least
slow down some of their march to the next limb

any way, I look forward to talking with you all!
Title: Re: Red Spots....go away!
Post by: Patze on December 29, 2009, 05:37:55 PM
Again, welcome and I'll see what the dermatologist has to see as this is not the only issue I need to talk to him about.  Doesn't it always seem that you'll need to see the doctor for several issues every time instead of the usual one or two items?  ::)

I'm on the other side of the spectrum from you with Hashimoto's, so I know what a pain the old thyroid can cause.

Do you remember what your dermy prescribed by chance?

Hang in there -

Patze
Title: Re: Red Spots....go away!
Post by: lynnmarie219 on December 29, 2009, 07:06:25 PM
Hey Patze...if you get any inkling of an answer as to what this could be...please let us know! Don't want you going speckled on us!  ;)
Title: Re: Red Spots....go away!
Post by: Patze on December 30, 2009, 01:58:31 AM
Now speckled might just be an interesting thing, don't you think?  ;) ;D


Patze
Title: Re: Red Spots....go away!
Post by: lynnmarie219 on December 30, 2009, 07:08:52 PM
There's probably lots of words the docs would call you in addition to speckled....(http://www.freesmileys.org/smileys/smiley-laughing021.gif) (http://www.freesmileys.org/smileys.php)
Title: Re: Red Spots....go away!
Post by: Patze on December 31, 2009, 02:41:01 AM
You're silly!  ;D 

Have a great day now!


Patze
Title: Re: Red Spots....go away!
Post by: Patze on January 23, 2010, 08:57:10 AM
Okay, a bit of an update...  The spots wound up going across the stomach, hung out for a few days (resting I think  ???), and mostly disappeared.  Ah, got to love this mess!  ;) :D  And the dermatologist was of no help, ugh.


Patze
Title: Re: Red Spots....go away!
Post by: Cheryl on January 23, 2010, 09:28:41 AM
Patze,
I was going to suggest that you connect the dots and make a picture.   Guess it's too late for that now.
Cheryl
Title: Re: Red Spots....go away!
Post by: Patze on January 23, 2010, 06:10:28 PM
I tried Cheryl, but the pin just would not mark that well, oh well, maybe next time.  (http://www.freesmileys.org/smileys/smiley-chores046.gif) (http://www.freesmileys.org/smileys.php)


Patze
Title: Re: Red Spots....go away!
Post by: navydad on January 23, 2010, 06:28:16 PM
Mast cell disease,, ?
Title: Re: Red Spots....go away!
Post by: Patze on January 24, 2010, 06:49:55 AM
Hi Navydad,

That's interesting, hummm, it would explain some things!  I'll have to talk to the rheumy soon, and ask him.

Thanks much for the heads up!


Patze