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#91
Living With Sjogren's / Re: Do you drink alcohol?
Last post by Nomad - July 01, 2024, 06:14:58 AM
VERY VERY little.
But the other day was our anniversary. I had one glass of wine. Felt like crud. I'm in my sixties. It might be time to change that very very little to NO.
#92
Living With Sjogren's / Re: How to research medical co...
Last post by Nomad - July 01, 2024, 06:13:37 AM
Thank you.
#93
Living With Sjogren's / Re: hand tendons
Last post by Carebear - June 25, 2024, 10:49:25 PM
Oh boy. I have it. First in my right hand and now in my left.

My right hand is so bad now that it is looking like a claw. I drop things constantly and can'topen doors as an example. Today I started getting terrible muscle spasms causing my hand to close up tight. Yeah!

Now that it has started in my left hand I'm going to my new family doctor to get some help.

Last specialist I saw told me the only treatment was to inject a special enzyme into the thick cord that develops on the palm. It's supposed to break down the cord. But he said it wasn't bad enough then. I think that's changed.

Linda,as always,you amaze me. I have never been told it was autoimmune. My vitamin D is good but I will ask my family doctor to check it annually.

I hope I didn't scare you bluegardenia. It has taken ten years to get to this point.  And I'm sure it's different from everyone.
#94
Living With Sjogren's / Re: OT but health related.
Last post by Scottietottie - June 25, 2024, 07:36:18 AM
Hi  :)

So sorry to hear about your husband's cancer. I heard about someone else with some renal cysts recently. Her doctor said they'd monitor them - but she hasn't heard how or when. sounds benign from what I've read but occasionally they can interrupt urine flow making UTIs more likely.

I will ask the GP about them this week as the UTI has returned. Not as bad as before but showing up as infection on the dip sticks. Phoned today but was too late. Will phone earlier tomorrow.

Thanks for the reply
Take care - Scottie  :)
#95
Living With Sjogren's / Re: OT but health related.
Last post by Kathy57 - June 24, 2024, 07:18:09 PM
Scottie,

My husband has had multiple CT scans as he is battling cancer.  He has a couple of benign renal cysts that show up on all his CT's.  The doctors aren't concerned about them at all. It's more like they mention them but no treatment and no concern shown about them. 

I think they may be more common than we think.  I hope this helps.

Kathy
#96
Living With Sjogren's / Re: Eyelid twitching
Last post by araminta - June 22, 2024, 06:35:51 AM
Thank you Pudmott, and you're right, I too have had the eyelid twitch when I was especially tired or stressed.   However this time I'm not unusually tired or stressed, it's been happening over several days, and I have slight soreness around the eye and in the jaw.   Am wondering if it's related to the trigeminal nerve.   And I'm guessing Sjogrens can affect nerves all over the body.

I'll wait a few days and see if it goes away, if not I'll try to talk to my GP.   (Try being the operative word!   The NHS here being on its knees).
#97
Living With Sjogren's / Re: Eyelid twitching
Last post by Pudmott - June 22, 2024, 04:57:30 AM
Eye lid twitching is usually a stress response. When I am super stressed and run down my left eyelid constantly twitches. If you google it, it will give you some info
#98
Living With Sjogren's / Re: Guess who's back!.....back...
Last post by Pudmott - June 22, 2024, 04:55:43 AM
Thanks guys. It's good to be back. Just spent a few days in hospital cause my body decided to go waaaaay too acidic. Not a trip to be recommended. Thank fully after about 10 litres of IV fluid I'm ok now but super fatigued. Hope you're all doing OK
#99
Living With Sjogren's / Re: hand tendons
Last post by felpeyu2 - June 21, 2024, 09:03:12 AM
Hi. In March I wrote in this forum about what I thought could be trigger finger. Right now my fingers are normal but I have in my right hand a lump in the middle of the palm under the ring finger. Sometimes I have pain in this lump. My doctor saw me and told me that at that moment there wasn't any important damage in the tissue.

I know that this is not the same problem as yours, but perhaps related to it in the sense that there is a certain involvement of the tendons or the sheath of tendons in these type of diseases.



#100
Living With Sjogren's / Eyelid twitching
Last post by araminta - June 21, 2024, 04:27:51 AM
I've had this for a few days, it gets set off when I use eye drops or if for some reason I close my eyes tightly.   It's irritating and embarrassing, though probably not as noticeable as it feels.  The affected eye is slightly watery.   Can this be a Sjogrens thing?