I hadn't heard of it either, and went to the site, particularly interested in the "research" tab. There do appear to have been some scientific studies, on a very limited basis (200 patients) and only over a 2 year period, without double blind or placebo studies, but the results given look promising.
In medical research terminology, the results at this point would still be labelled "anecdotal" but it may be something that will get some scientific interest and start a new line of research. One thing I found interesting is that the same combination of herbs with a couple of additions , is marketed as Segratax, a treatment for gastroparesis!
Thanks for volunteering to be our test subjects, Luana and Melina! Just remember that, with the extreme individuality of SjS symptoms, what works for one may not for another.