Lupus vs. Sjogren's?
? on: Today at 05:23:15 PM ?
Can anyone tell me what the main differences are in these two? I am sort of driving myself crazy here. I am waiting on all my bloodwork to come back, but when I saw the rheumatologist she said she thinks I have sjogren's and antiphospholipid syndrome. For the past 15 years I have convinced myself I have lupus, along with some doctors who thought so as well (but negative ANA). Now I have a positive ANA 1:2560 homogeneous.
My symptoms are as follows:
Starting about 13 years ago, extreme joint pain and muscle weakness (flares and remissions), various rashes including one doctor who thought I had malar rash, dizziness, mouth/nose sores, blood pressure beginning to creep up, extreme fatigue, anxiety, abnormal lung function test
About 3-4 years ago, all above including borderline high blood pressure, abnormal EKG, ankle swelling
Around 2 years ago, all above including dry mouth/eyes, painful intercourse, high blood pressure treated with meds, on and off elevated liver enzymes, on and off nausea
I had vitiligo when I was younger and have an aunt who died from compications of lupus at 19yo. I just feel like for all those years my symptoms seemed more in line with lupus and just in the past 2 years did the dry mouth/eyes etc start.
What are the main differences in symptoms and can a doctor confidently diagnose one over the other?
hmn pertinent question 'what are the main differences in symptoms?' Let's c, as sjs is supposedly a disease of moisture producing glands is it safe to start there? Can sjs cause glom'nephritis, demylination, stroke, pericarditis? etc? (btw u can have the dry eyes dry mouth thing with sle and systemic sclerosis, so, like wow, how confusing... )
Rheumatic diseases can evolve over the years u may start out with lupus move onto crest be a confirmed sjs then get hit by a bus one day. Drag, that. I like the definition that auto immunity is a condition, a state of being, and that as u progress thru life so does your condition.
Because many of these ai diseases r each called 'the great mimicker' the ability to distinguish the one from the other remains difficult. I suppose if one were so inclined u could use ancient technology like Venn diagrams listing all possible lupus maladies and another with sjs afflictions and c where/if they overlap...
Safe to say tho something somewhere is being immortalized, apoptosis is not functioning properly. Drag, that. Maybe the definition of one's disease depends what is discovered at the time of the blood draw?
Over the years Ive seen discoid lupus, sle, crest, osteo necrosis. osteoarthritis, sjs diagnosis's. It used to seem like a big lump of shet thrown my way but that's not the way i c it 2day. I'm just following Darwin and evolving... heehee (also i take more
interest and find loads more entertainment in noting the smaller more obscure things that might distinguish between the diseases, hemoptysis, palmar erythema, enlarged adenoids, reactive lymphocytes, raji cells, complement depletion, transient and not so
transient visual issues, nailfold and fingertip oddities, and usually end up wondering if i can trade any of this crap off for just a day or two when i used to have it all... damned martinis make me all maudelin and wishful hehe