Author Topic: Jennas big sis goes to Dupont tomorrow  (Read 10182 times)

jonnell

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Jennas big sis goes to Dupont tomorrow
« on: May 06, 2009, 03:56:39 PM »
Hi everyone wanted to let you know Im making another trip to Dupont tomorrow not for Jenna but for her big 16 year old sis who we found out this weekend has severe scolosis of the spine.  She is to old for the brace and they think surgery might be necessary.  I wondered if any of you have any experience with this.    She is in alot of pain and now the lower back is swelling.  We have a appointment with a orthopedic doctor so we will see what happens    Hugs and Kisses   Jonnell and Jenna

Scottietottie

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Re: Jennas big sis goes to Dupont tomorrow
« Reply #1 on: May 06, 2009, 04:24:11 PM »
Hi Jonnell  :)

My - you are having your problems aren't you!!

I have no personal/family exxperience of scoliosis but I'm a youth worker and a 15 year old I used to work with had an operation for it. The operation sounded horrendous as it involved a metal rod being inserted down the length of her spine. So saying - this amazing young woman was out and about within days of being discharged from the hospital. She was adamant it was not going to impinge on her social life. She showed us her back when it was still stitched up. It looked painful but she considered it bearable. Maybe it felt better than it had before - I don't know.
Anyway - it healed well. She's the life and soul of any party. Friends a plenty and a special boyfriend and wonderful posture!

Good luck with the appointment.

Take care - Scottie  :)
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Never do tomorrow what you can put off till the day after tomorrow!

jonnell

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Re: Jennas big sis goes to Dupont tomorrow
« Reply #2 on: May 06, 2009, 04:45:57 PM »
Scottie,  Yea and Kathryn was always the healthy one never anything wrong.  She has been complaining of back pain for awhile but we thought it was from the back pack she was carrying in school.  I thought they were suppose to screen for that in school.  Oh well hopefully its not as bad as the peditrician said  Im praying.   Hugs and Kissess  Jonnell and Jenna

lynnmarie219

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Re: Jennas big sis goes to Dupont tomorrow
« Reply #3 on: May 06, 2009, 04:58:53 PM »
I hope its not as bad too and that she doesn't need to have surgery! Maybe they will order some physical therapy or other treatment plan for her to try first.

I have scoliosis in my back as well but not to the extent that I would ever need surgery...I go to the chiropractor for monthly adjustments and it helps me with the pain.



KYMOM

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Re: Jennas big sis goes to Dupont tomorrow
« Reply #4 on: May 06, 2009, 06:35:27 PM »
Jonnell,  Good luck with the appt for Kathryn tomorrow.  Sorry that this was brought on your family with everything else that you are going through.  Let us know what the doc says.  Roxanne

irish

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Re: Jennas big sis goes to Dupont tomorrow
« Reply #5 on: May 06, 2009, 08:37:20 PM »
Jonnell, Yes, they are supposed to screen for scoliosis in school. However, there are so many ways that the bones can tip, etc that many times the hand down the spine routine doesn't show any evidence. It takes the Cat Scans, etc to show up the areas.

I took some pediatric nurses training many(and I mean many) years ago at one of our state hospitals that specializes in orthopedic surgery for the kids. It is amazing how fast these kids snap back from the surgery. One of my friends has a daughter who had to have the surgery and it was invasive but she did very well and doesn't havae all the pain. Generally, if the surgery isn't done the curvature just gets worse and can really make daily activities of living hard. Good lyck with your daughter. Irish ;D

wednesday mc haggis

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Re: Jennas big sis goes to Dupont tomorrow
« Reply #6 on: May 07, 2009, 01:25:43 AM »
jonnell

so sorry all this is happening to your family, one thing after another.

I agree with irish, i worked 6 months in  in orthopaedics,during my training,  and kids ang young ppl seem to bounce back in remarkable ways, the surgery seems to make quality of life post op so much better, and in cases i seen which i know wasnt that many was very successful.

  thought with you all for the trip to dupont, and love and light you you all

T x

Katybarstool

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Re: Jennas big sis goes to Dupont tomorrow
« Reply #7 on: May 07, 2009, 02:23:21 AM »
Hi Jonnell

Let me just add my good wishes for a successful trip to Dupont with Kathryn.

Kathyx

jonnell

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Re: Jennas big sis goes to Dupont tomorrow
« Reply #8 on: May 07, 2009, 03:28:35 AM »
Thank all of you for the well wishes  it makes me feel so much better.  Love to you all     Jonnell and Jenna

Chickpea

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Re: Jennas big sis goes to Dupont tomorrow
« Reply #9 on: May 07, 2009, 06:37:24 AM »
Hi Jonnell

Wow - something else for your dear family to deal with!  I'm glad we're able to offer some support and love.

Thinking of you - Chickpea

ps how are YOU feeling about this latest crisis?  Are you getting enough rest?  Eating well and sleeping?  I'm worried about you.

missyb

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Re: Jennas big sis goes to Dupont tomorrow
« Reply #10 on: May 07, 2009, 08:13:52 AM »
hope it's going ok for you all, and hope you all stay away from the Dr's soon :)

kim31072

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Re: Jennas big sis goes to Dupont tomorrow
« Reply #11 on: May 07, 2009, 08:27:36 AM »
My daughter was diagnosed with scoliosis last fall(she was 8 then)her curve is at 16 degrees now...we monitor her every 6 months to make sure the curve is not progressing.If it starts when she hits puberty they will brace her.If your daughter is still in puberty or growing she is still a candidate to brace.It will not correct the curve that is allready there only stop its further progression.

Surgery is an option but depends on how much more growing is left..they wont do it when more height is expected as that can cause further damage.The fusion helps to prevent further curvature...sometimes a brace can help there are many stories of adults wearing them  http://www.spine-health.com/conditions/scoliosis/scoliosis-surgery  . If the curvature continues without intervention it can cause heart and lung issues.


I hope you get a good ortho dr(find one that specializes in scoliosis)and she hears some good news today and gets help with the pain.The one thing I hate is the drs say its not painful until its a bad case but all the stories/testimonials I have read from people that have it say they always remember it hurting even when the dr said it shouldnt.I worry for my daughter and hope that she never has to experience it.

Take care

Kim

« Last Edit: May 07, 2009, 10:49:34 AM by kim31072 »

harrigan

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Re: Jennas big sis goes to Dupont tomorrow
« Reply #12 on: May 07, 2009, 09:50:25 AM »
Oh Jonnell - when it rains, it's a monsoon for some people!  Sorry you are all having so much to deal with right now.  Really hope Kathryn gets some excellent treatment and care.  As Chickpea says, hope you are finding the time and space to look after yourself too.  It's hard with so many people depending on you.  Thinking of you XX Ailsa
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lighthouse33

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Re: Jennas big sis goes to Dupont tomorrow
« Reply #13 on: May 07, 2009, 03:35:10 PM »
I don't know if you would want to travel to North Carolina but Dr. Hey is well know here.  He does the scolosis surgery.  Here is a link to his website.  He has a blog and patient profiles etc.:

https://www.heyclinic.com/index.asp

He did surgery on my dad earlier this year for cervical spondloytic myelopathy.  The surgery was successful, but it will take up to a year for the numbness to disappear from his hands.  Then we will see if he will ever play golf or carve again.  If there was too much nerve damage then the numbness etc. could be permanent.  We are hoping for the best.

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jonnell

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Re: Jennas big sis goes to Dupont tomorrow
« Reply #14 on: May 08, 2009, 03:35:17 AM »
Well some good news for a change.  Kat doesnt have scolosis(got to love our local peditrician)  She has a condition with her back from poor posture and strain on her back from bookbags etc in school it causes her to have pain and has a hump on her back so they referred her for physical therapy to strengthen her muscles in her back.  I dont know if any of you have ever experienced this.  Thank you all for your well wishes and prayers.   Hugs and Kisses  Jonnell Jenna and Kat