Author Topic: No hair loss so far.......my experience  (Read 2857 times)

eyeamdry

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No hair loss so far.......my experience
« on: January 17, 2007, 08:40:10 AM »
Hi all,
I remember back to August when I was told I'd be put on methotrexate and hair loss was a possibility.  Having thin, fine hair already......this made me a bit queasy.  However, I was so sick, I was ready to take anything!  I've been on methotrexate since September 1--that's 4 1/2 months and I've experienced no hair loss.  I also take folic acid daily and this may be to prevent that problem.  For others reading this, who are afraid of hair loss, well I haven't had any so far.  I suspect it would have started by now.

I also have been on plaquenil for 6 weeks now and also was concerned this might start hair loss.  So far, so good.  This was not a real biggie when I was so sick, but no one wants to lose their hair.  I'm glad I didn't rush out to buy a wig.  Just thought I'd throw in a good report while it's on my mind. 
Lucy

chele

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Re: No hair loss so far.......my experience
« Reply #1 on: January 17, 2007, 08:47:30 AM »
Hi Lucy

Just wanted to thank you for your post.  I see both my docs these next two days.  Hoping they will put me on some meds but I am also worring about hair loss.  Like you, my hair is thinning - again.  You gave me some info and hope to just go on with what I need to do.

Thanks!  :)

Chele

dbab

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Re: No hair loss so far.......my experience
« Reply #2 on: January 17, 2007, 08:52:54 AM »
Thanks for that post eyeamdry.  I just started Plaquenil and that was one of my concerns also.  It kind of gives me hope that I may dodge that bullet too since I have enough hair loss already.

Pooh

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Re: No hair loss so far.......my experience
« Reply #3 on: January 17, 2007, 10:10:55 AM »
Remember folks, Not All People React to medications the same.  Some will notice a loss of hair, some will not.  Some will have more loss than others.  Some won't have any loss at all. 

When I took Plaquenil the first time, I lost handfuls all at once, then it stopped and I haven't lost any since.  I still have a head full of hair.  Only two thin places at my peak.  Nothing noticeable. 

Please don't worry about your hair, just get relief from your pain, the rest will take care of itself. 

Hugs and God Bless,
Pooh

Rach

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Re: No hair loss so far.......my experience
« Reply #4 on: January 17, 2007, 04:16:09 PM »
Hi Lucy  :)

I don't take methotrexate, but my mom has been on it- off & on for years. she's actually on it more than off, but she's had very little hair loss and she's 76 years young!

I'm glad to hear happy news!

Rachael
« Last Edit: January 17, 2007, 06:52:13 PM by Rach »

eyeamdry

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Re: No hair loss so far.......my experience
« Reply #5 on: January 17, 2007, 04:53:31 PM »
Folks, my only reason for posting was for lurkers and/or newbies to possibly alleviate fears they may have of losing hair from taking these meds.   I see where on occasion people have been reluctant to go on meds for fear of losing hair.

I am not "worrying" about losing my hair now.....or later....I'm not trying to cause others to worry about whether (or not) they might lose their hair.  Simple fact as of today:  I have not lost hair from taking methotrexate or plaquenil.   This should be viewed as a positive post.  We don't have nearly enough. 

quiger

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Re: No hair loss so far.......my experience
« Reply #6 on: January 17, 2007, 06:42:56 PM »
Hi Lucy,

That's great news. Thanks for sharing this as one of the most asked questions we get about Plaq is in regard to hair loss.

Hope you are having a good week.

Take care,
quiger
Check out the info on the home page  http://www.sjogrensworld.org/index.html

Jaws

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Re: No hair loss so far.......my experience
« Reply #7 on: February 23, 2009, 12:57:32 PM »
Thanks eyeamdry!

That is very reassuring.  My hair fell out by the bucketload nearly 20 yrs ago when CFS started.  I have had 3 appts with hair specialists and none could give a reason for that or the extremely sensitive, sore scalp.  One even looked at my scalp under a light and said it looked very sore.

I have been on Dianette ever since (they put patients on it because it is an anti androgen as well as a contraceptive) and the hair loss stabilised.  I am told I have lovely (long) hair now, and I don't really mind that there is only a fraction of what was there before, because I had so much thick hair it looked freaky!

I must admit I'm worried I might be told to come off the pill (am 45 now and have been on the pill since 18!) and take one of these Sjs drugs, and that my hair will fall out again.  I would be heartbroken - it's bad enough feeling ill on the inside, let alone looking as crap as you feel!

Thanks again for the reassurance, that was kind. ;)