Author Topic: Why does it hurt so much to talk about it  (Read 5317 times)

lynnmarie219

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Re: Why does it hurt so much to talk about it
« Reply #15 on: October 08, 2008, 07:28:52 PM »
I also tell people it like lupus or MS and that my immune system is attacking my own body.....thats what they relate to better and understand more.....but I do tell them the name so that they actually hear the word Sjogrens! I figure the more we say it and get the word out.....the more people will say....hmmmmmm, I heard about that the next time someone mentions it!

It's all about education!

JannaLee

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Re: Why does it hurt so much to talk about it
« Reply #16 on: October 09, 2008, 12:27:15 PM »
You are so right Lynnie!  That is a real good idea.

I'll start adding the name to my graphic description!