Author Topic: First Rheumy Appointment This Thursday...What Can I Expect From A first Visit???  (Read 2439 times)

qtpie1135

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M first Rheumy Appointment is this Thursday, and I have no idea what to expect for my first visit? Can someone fill me in? Thank you so much. The Rheumy's named Dr. Vu from Bedford, Texas, ( Has anyone heard of him???) I know absolutely nothing about him, so I am not getting my hopes up yet. So I am still checking out other options. I am not giving up no matter what!

By the way, I did find out a few things with from my primary care doctor today. The reports came back for my hospital visit, and it showed that I had a severe case of Isemic colitis, they said it was lucky that I did not have to have emergency surgery, and/or a blood transfusion.. They also found that I had a very rare disorder of my arteries called Prinzmetal angina (this has been un-diagnose since the 80's, and has caused me years of problems). They do not know the cause of it, and I do not eat a high fat diet, I don't drink or smoke. They say they only see this in 2 to 4 out of 100,000.

They said that they still are certain that I have some autoimmune disorder, and they are very interested in what my Rheumy finds.  They said it would not surprise them if what I have is rare.
 
I have never been to a Rheumy before; Can anyone tell me what to expect? Thanks again!!!

{{{{HUGS}}}}
Sylvia

Scottietottie

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Hi Sylvia  :)

As I'm in a different country, with a different health care system I can't really tell you what to expect - but someone will.  What I do suggest is to note down your symptoms before you go and also any questions you want to ask as it's so easy to forget what you meant to say once you're actually there.

I would imagine they'd ask about your medical history, examine you and possibly take blood - but I'm not sure.

Good luck ith the appointment I hope it goes well.

Take care - Scottie  :)
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Solmom

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Hi Sylvia!
I can tell you how my Rheumy appt was. He ask a lot of questions on symptoms and family history ( My primary Dr had already taken blood and found my ANA levels were high.. they were 1285). I agree with Scottie, write down questions and concerns. I felt very overwhelmed when he started asking questions and my mind went blank. Once he went through all of those questions, he gave me medication to help with some of the most bothersome symptoms. Then sent me for blood work. I mean lots of blood (took 10 viles)! Then I had to wait (some of the blood work takes a while). When the results was in we met and he went over them (I had primary Sjs). He was great, took his time and answered any questions I had and told me to come here and talk to people who had Sjs, too. I hope your Dr is as good as mine was to me!
Good luck with your appointment!
Barbara
aka
Solmom


qtpie1135

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Hi Scottie  :) And Hi Solmom  :), Thank you both so much for your suggestions! I will start tonight making out my list. I guess I am just a little nervous ??? of the unknown, but if it can give me more answers, it will certainly be worth it!  think it is so much harder not knowing!

Thnak you both for your wishes of luck! I will let you know how everything goes. You all are awesome!!!!  :D


{{{{HUGS}}}}

Sylvia

Nancy60

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Hi Sylvia,

The advice you've already gotten is right on target. 

It is really a good idea to make a list of symptoms, have results/copies of any tests you may have already had done, have questions you want to be sure to remember to ask.  don't be afraid to have it all out with you to refer to so you remember and cover everything. 

You will probably meet with the doctor first, he will ask you about symptoms, problems you are having, family history, any specialists or doctors you have seen and tests you may have already had.  Then he will do an exam that will probably include listening to your heart, lungs, looking in your mouth and checking your joints, muscles, skin etc... plus any other area he feels may be pertinent depending on what problems you are having. 

He should give you an idea of what he thinks may be going on but will likely want to order his own tests etc and then see you on a return visit to go over the results. 

If you are having problems that need to be addressed right away (ie pain etc...) be sure to ask if there is something he can start you on until he gets all the test results. 

Also don't be disappointed if you don't get a diagnosis right away.  Sometimes if it is not clear cut, the doctor will want to see you over a longer period of time to what other symptoms and positive tests come up before actually attatching a diagnosis.  They can offer some types of treatment even before diagnosing you though.

good luck and be sure to let us know how it goes!

Nancy

lynnmarie219

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Hi Sylvia,

My doctor also reviewed all the past family history, my history of symptoms and current symptoms, meds I was on, doctors I had already seen and tests I had already been through. It was a lot of getting the background information down and the paperwork done and was a fairly long appointment. She also did a very complete exam of testing all of my joints, vitals, and soft tissue/fibro points.

Good luck at your upcoming appointment and I hope you get some answers soon! Let us know how it goes!

qtpie1135

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Thank you so much Nancy and Lynnmarie, All of your suggestions are very helpful, it really helps when you have some idea as to what to expect. And this will also help me feel more prepared, and hopefully less nervous!  ???

I just received 4 or 5 papers in the mail today that I am suppose to fill out and bring with me tomorrow. There is not enough room on these papers for all my problems, so I am typing up some more info to brng with me.

Thanks again, you have no idea how much I appreciate all of your help!!!  :D I will keep you posted!

{{{{{{HUGS}}}}}}

Sylvia