Author Topic: A quick return to say hello  (Read 6049 times)

uker

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A quick return to say hello
« on: April 27, 2008, 09:51:18 AM »
Hello again everyone.  I have not been on for quite a while as my life seems to be a round of going up
to London hospital with husband for him to have his chemo.  He is on Folfox for anyone out there who
is up on these things.  So far he is tolerating it fairly well, but very exhausted and a few odd side effects.
However, we just keep saying as long as it works its worth it.
Anyway, I ran out of prednisilone so popped in to see a rheumy at my husband's hospital.  He opened with the
statement that he didn't know anything about Sjogren's, which didn't help, but did say that I should start my
methotrexate as soon as possible.  So,  today is the day.  I am absolutely worn out, had to have tooth out
last week due to abscess, but cannot complain as compared to my husband's problems in recent months it just
seems like nothing.
Anyway, please don't let me have any nasty side effects from the MTX - just can't fit it in.
Nice to see everyone on here still chatting away.

genko_b

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Re: A quick return to say hello
« Reply #1 on: April 27, 2008, 10:36:43 AM »
Take care, Uker -

You certainly have a lot on your plate right now. We will be thinking of you.

Genko

susanep

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Re: A quick return to say hello
« Reply #2 on: April 27, 2008, 11:30:46 AM »
Hi Uker nice too hear from you. Hang in there. Said prayers for both of you.

susanep :)
Sjogren's, Lupus, Rheumatoid Arthritis, Hypothyroid, Fibro, Sleep Apnea, Diabetes 2, Asthma, and Gerd.  (Meds I take) Omeprazole, Pilocarpine, Levothyroxine, Effexor, Cpap, Aspirin, Mobic, Prilosec,, Xanax, Restasis, Systane,Vitamin D3, Plaquenil, Gabapentin, Provigil , Advair, Nasonex, and Proventi

Pooh

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Re: A quick return to say hello
« Reply #3 on: April 27, 2008, 01:34:56 PM »
Hi Uker,
Good luck with the Methotrexate and continued good luck with your hubby and the chemo.  I pray everything comes right real soon for the both of you.

Hugs and God Bless,
Pooh

Patze

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Re: A quick return to say hello
« Reply #4 on: April 27, 2008, 02:12:21 PM »
Hi Urker,

Thanks for the update and I'll keep the old paws crossed for you and your hubby (and I'll keep you all in my thoughts).

Please hang in there and keep us updated, okay?

Patze
Our home page  http://www.sjogrensworld.org/index.html
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Sero Negative Queen

Scottietottie

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Re: A quick return to say hello
« Reply #5 on: April 27, 2008, 03:38:17 PM »
Hi Uker

It's good to see you again. The rheumy doesn't sound too great but I'd rather deal with someone honest enough to admit what they don't know (as long as they're willing to learn) rather than someone who professes to know it all - and doesn't.

Good luck with the traetment. keep us posted. I hope your hubby's doing OK too.

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
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Never do tomorrow what you can put off till the day after tomorrow!

YICKelly

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Re: A quick return to say hello
« Reply #6 on: April 27, 2008, 04:13:06 PM »
Hi Uker.  Being new I didn't miss you! LOL  I will say a prayer for you and hubby.  Your plate is more than full right now.  Hope to see you again soon.

wordnerd

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Re: A quick return to say hello
« Reply #7 on: April 27, 2008, 10:06:12 PM »
Its good to hear from you Uker!  I hope the methotrexate goes well!  Keeping you and your husband in my thoughts!

-Lauren

Shari

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Re: A quick return to say hello
« Reply #8 on: April 28, 2008, 05:29:07 PM »
Thanks for popping in Uker...I hope things go well with your husband and pray the metho. is kind to you. 

Take good care  ~~Shari~~

uker

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Re: A quick return to say hello
« Reply #9 on: April 29, 2008, 09:06:21 AM »
Thank you everyone for your responses.  As ever much valued.  Had first round of MTX on Sunday and Folic Acid
yesterday.  So far, no side effects at all.  Fingers crossed.
Just to make you smile,  the tooth I had to have out last week is almost at the front, so as my dentist can't
do a permanent fix at the moment (just don't have time or opportunity) he has made me a pretend tooth
which is kept in by sticking it to the tooth next to it. Can't bite on it or anything.  He did warn me it will fall out every couple of weeks and will have to be stuck in again.  I am willing to bet money on it falling out (a) just as I get on a train to
go to London hospital so hubby will be visited by a toothless witch (b) at the beginning of a holiday weekend when the dentist is away for three days or (c) I will bite on it by mistake, then swallow it.

wordnerd

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Re: A quick return to say hello
« Reply #10 on: April 29, 2008, 10:30:38 PM »
LOL Uker... your tooth predictions had me cracking up!  My mom has veneers on her front top teeth and at least once a year every year on a holiday weekend or when we're out of town it comes off.  Usually when we are out of town.  It's like they plot against her.  I feel bad for her... but I must admit its happened on cue so frequently it's comical.

I'm glad the methotrexate is going okay so far!  Take care!

-Lauren

Shari

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Re: A quick return to say hello
« Reply #11 on: May 04, 2008, 07:52:40 PM »
Well, if the scenario is choice, "C" then rest assured it will come out the other end.  (Hopefully!)  At least it won't be lost!

A silver lining to every cloud??

~~Shari~~

Scottietottie

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Re: A quick return to say hello
« Reply #12 on: May 05, 2008, 06:00:19 AM »
Hi

I have veneers on 4 teeth at the front. One fell off during my journey to the States recently. Well - I know there's a standing joke about Brits and bad teeth so the first thing I did after I met my son was to get him to drive me to a store that sold super glue.

I stuck the veneer back on and it's worked a treat. it's still there.    ;D

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!

uker

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Re: A quick return to say hello
« Reply #13 on: May 05, 2008, 11:30:24 AM »
Scottie you genius.  superglue it is then.