Author Topic: Elise's Diary  (Read 100207 times)

Scottietottie

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Re: Elise's Diary
« Reply #45 on: January 18, 2008, 07:57:09 AM »
Hi Elise - WELL DONE!!!!!!

I hope it wasn't all too sore and that you are feeling comfortable today.

Brave girl - you deserved the award!  Now - lets hope all the medicines make a real big difference!!

Take care - Scottie  :)
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itssue

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Re: Elise's Diary
« Reply #46 on: January 18, 2008, 10:56:56 AM »
Elise,

You deserve the BIGGEST AWARD for BRAVERY that there is.   You know, you are my hero!!!!    I don't know anyone who is as young as you and yet so brave. 

I wish I could have seen you in the pool splashing your dad, that had to be fun.   ;D

Keep up the great work. 

((((((HUGS))))) for Elise,

Sue

ktfabian

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Re: Elise's Diary
« Reply #47 on: January 18, 2008, 05:21:07 PM »
Elise-

You certainly deserve the Bravery Award!

You are much braver than I am, and I'm 47.

I go to the pool, also.  I had to find a VERY BIG bathing suit, as I've been on steroids for most of the last 10 years.

When the doctor lets me go off the steroids for awhile, I do lose some of the weight, so once you get feeling better and running around - hopefully by this summer - you won't have to worry about that belly.

You are such an inspiration to all of us and you help me feel brave every day.  I tell myself - If Elise can go through all that she has, I can certainly do what I have to do.

Thank you, Elise.  Keep being brave.  I'll pray that you're out and running by summer, and that you Mom and Dad keep up their good work helping you, tool

Love, Tracy

________________________________________________
55yo Sjogren's, Fibro, Selective IgM Def., back pain - fused L3/4-L5/S1,  Costochondritis, Achilles tendon tear,  cluster headaches
Plaq, Medrol, Vit D, Arava, Rituxan, Mobic, Evoxac, Tumeric 1000mg daily, Cymbalta, Fiorcet, Klonopin, Soma, pain med.

Linda196

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Re: Elise's Diary
« Reply #48 on: January 18, 2008, 05:58:01 PM »
Good for you , Elise, we're all so proud of you!
Please check out our home page at http://www.sjogrensworld.org/index.html {{INCLUDES A LINK TO AMAZON SHOPPING!!}}
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Pooh

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Re: Elise's Diary
« Reply #49 on: January 18, 2008, 06:33:26 PM »
We are so proud of you Elise. ;D  You are doing so well and being so brave. 

Just keep thinking about all those great things you will be able to do next year this time. 

Take care little one and keep smiling. 

Hugs, Pooh

Shari

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Re: Elise's Diary
« Reply #50 on: January 19, 2008, 03:48:05 PM »
Well, well, well !  One more step taken on the road to recovery !  Very good job Elise !!

teachinginca

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Re: Elise's Diary
« Reply #51 on: January 19, 2008, 10:43:03 PM »
Hi Craig,

I'm a 28 year old teacher in the US. I was recently DX with SJS, but looking back my first symptoms started around age 20.  I went back through your posts, & I was wondering if Elsie has been dx with other autoimmunes or just Sjogren's?  Sounds rough so far! My prayers are with both of you...with remission possibilites - there is always hope for a better tomorrow.

Hi Elsie,
Good job sweetheart! You keep hanging in there! I love your English accent. It even comes through in your posts.

Love,
Melissa

lynnmarie219

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Re: Elise's Diary
« Reply #52 on: January 19, 2008, 11:12:56 PM »
Elise,


I'm still following your posts and now I see that you got an award for bravery after your biopsy....well you sure deserve it! You are a very brave little girl!

Still thinking about you all of the time.....and hoping that you feel better very soon! I'm so proud of you!


Hugs to you.......

craigmosley

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Re: Elise's Diary
« Reply #53 on: January 22, 2008, 03:07:58 AM »
Teachinginca...........Besides Sjogrens she has developed Polymisitis which is also autoimune.

NOW................where do i start.............?? :-\

The Porta Cath and biopsy went ok.........until friday night when her lung collapsed  :o..............so i rushed her straight back....
Straight away she had a "Drain" fitted ........while she was awake too !!

all well now and we came home on Monday...........PHEEEEEEEEEEEEW !! :o :o

Pooh

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Re: Elise's Diary
« Reply #54 on: January 22, 2008, 05:06:20 AM »
Oh my, things just keep on, keeping on for Elise don't they.   :-\  I sure hope things improve real soon and she can rest and be herself for a while. 

Give her a big hug for me Craig and tell her she is the bravest young lady I know.  :)

Hugs and God Bless,
Pooh

Linda196

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Re: Elise's Diary
« Reply #55 on: January 22, 2008, 05:36:27 AM »
Elise, you've more than earned some time off from these problems!

Hopefully the drain will re-inflate the lung quickly and you'll be back on the road to being healthy, and spending your time doing what you want, not what your body insists on.

My goodness, when you're healthy and back to school again, won't you have stories to tell!
Please check out our home page at http://www.sjogrensworld.org/index.html {{INCLUDES A LINK TO AMAZON SHOPPING!!}}
; and live chat at https://kiwiirc.com/client/irc.dal.net/#SjogrensWorld

lynnmarie219

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Re: Elise's Diary
« Reply #56 on: January 22, 2008, 05:39:08 PM »
((((((((((((((Elise))))))))))))) I think you  need another big but gentle hug! Hang in there.......stay brave!

Pooh

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Re: Elise's Diary
« Reply #57 on: January 22, 2008, 10:29:00 PM »
Craig,
How's our brave girl doing?  Is she feeling any better?  I sure hope so.  And how are you and your wife holding up? 

I can't imagine the stress you all are going through.  Hang in there and know that you are all in my prayers. 

Tell Elise Hi for me and I haven't forgotten the letter and pictures. 

Hugs and God Bless,
Pooh

craigmosley

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Re: Elise's Diary
« Reply #58 on: January 22, 2008, 10:48:20 PM »
All seems well thanks...................but i find myself watching over her which gets on her nerves a little......... ???

Just glad to be back home..............both of us.

She is feeling a little bruised at the moment but that is to be expected.

What a start for a young child.......... :-\

Scottietottie

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Re: Elise's Diary
« Reply #59 on: January 23, 2008, 07:56:31 AM »
Tell you what Craig - she'll grow into a strong minded young woman!  She'll know what matters and what doesn't and a lot of youngsters don't.

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!