Author Topic: Elise's Diary  (Read 91738 times)

elise

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Re: Elise's Diary
« Reply #30 on: January 13, 2008, 08:54:24 AM »
i have been told that if i dont have this treatment i will be in a wheelchair positition so i cant give up. :'(
i have to move on and get better. ::)
I dont know how long it will take but it will be very slow.  :o
It might not be till 6 months till istart running about again. :-[
Hopefully it will be quicker. :)
love elise
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genko_b

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Re: Elise's Diary
« Reply #31 on: January 13, 2008, 09:21:21 AM »
We are all certainly praying that you will feel better soon, and be running about by summer, if not earlier. Children who have always been able to run and walk do not realize how lucky they are, do they? It reminds me to be very grateful for what I've got.

Thank you, Elise, for being who you are.

Genko

Scottietottie

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Re: Elise's Diary
« Reply #32 on: January 13, 2008, 09:28:33 AM »
Hi Elise  :)

When you are your age 6 months seems like ever. It's amazing how quickly it will pass though. Stay strong!

Scottie  :)
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Never do tomorrow what you can put off till the day after tomorrow!

elise

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Re: Elise's Diary
« Reply #33 on: January 13, 2008, 10:39:28 AM »
i will try my best to stay strong.
I speaked to linda today on msn and we talked for a while.
It was amazing to see her.
we played a game together.
yes, six months is a very long time.
my treatment might be over a year, but ive got to have it.
love elise
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Shari

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Re: Elise's Diary
« Reply #34 on: January 13, 2008, 04:51:13 PM »
HELLO ELISE


Just wanted to pop in and say,  HELLO!I had to have some blood work done today so I drank lots of fluid and when I got there I ran my hands under warm water.  If I don't do this they can't get it out of the back of my hand.   My veins are very uncooperative!   I hope you are having a good day today. 
     We are all human and having our individual trials is part of living.  There are many good times to come!!    Love Shari
« Last Edit: March 14, 2008, 12:07:40 PM by Shari »

elise

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Re: Elise's Diary
« Reply #35 on: January 14, 2008, 01:48:39 AM »
Thank you shari,
i had to have some blood taken on friday, but through a canula.
A really kind doctor done it for me.
That was when my veins couldnt work for the canula, so he tried it 3 places.
The wierd thing is, the canula wouldnt go in, but it still bled.
I understand that i have to keep having treatment, but why is it all strong medicines?
am i really that bad?
love from elise
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elise

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Re: Elise's Diary
« Reply #36 on: January 14, 2008, 02:33:12 AM »
I am going in a hydra pool tommorrow.
I dont know how ill be able to fit my swimming costume on!!
you have ought to seen my belly love elise
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Pooh

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Re: Elise's Diary
« Reply #37 on: January 14, 2008, 06:16:54 AM »
Good morning Elise,

I wouldn't worry about that little belly, it will go away when you get better and off the medication treatments.  As long as the pain is going away and you are getting better, don't worry about it. 

I hope you have fun tomorrow in the hydro pool.  It sounds like heaven to me.  Sure wish I could get that kind of therapy for my legs and hips. 

Have a great day today and better one tomorrow.  I have some more pictures to send you.  I hope you like them.

Hugs, Pooh

elise

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Re: Elise's Diary
« Reply #38 on: January 14, 2008, 08:16:35 AM »
Thank you pooh.
I have been on my steroids for 7 years now.
They help a really lot, but will they stop working because i have been on them for that long?
Mum and dad say i have to wear a swimming costume, but none fit because i am that fat,
love from elisexxxxx

Scottietottie

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Re: Elise's Diary
« Reply #39 on: January 14, 2008, 08:58:57 AM »
Hi Elise  :)

I'm sure you doctors would not keep you on anything if they thought it wouldn't work. The steroids must be doing something!

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!

elise

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Re: Elise's Diary
« Reply #40 on: January 16, 2008, 02:22:32 AM »
I went to in a hydra pool yesterday. ;D
I really loved it! :D
I swam on my belly and kicked my legs so i could swim on my belly. i also swam on my back. i had a race with dad and won him!!!!
The water is lovely and warm.
Later on i am going shopping with mum and dad.  8)
Tommorrow is when i have to go to the hospital again :(
I have to stop overnight and i dont get internet connection over there so i cant talk to you and my family :(
only dad is with me this time, mum cant come because you are only allowed 1 visitor at a time to a bed.
I have to have a portacath and biopsy tommorrow, then friday i am having methyl pred and an methetrexete injection.
Thid morning we had a nasty phonecall about having pamatrinate early febuary.
It can put my blood pressure levels down, make my muscles weaker and my breathing worser.
I have only just recovered from my breathing.
Me, mum and dad dont know whether to go through with it or not because it will make me poorlier for the first time, then it not happen again but it will make me really really poorly the first time.
If we decide yes i hope it works!!!
love elise
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Pooh

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Re: Elise's Diary
« Reply #41 on: January 16, 2008, 05:21:28 AM »
Well "Splishy", sounds like you had a good time swimming.  Poor Dad, you must let him win next time. ;D

I can see where these next treatments are going to be scarey, but I know how brave you are and you can do it.   :-*

I know these treatments are no fun, but you, Mum and Dad and we know how much better you are going to feel when they are over.  ;)

Take care little one and have a great day,

Hugs, Pooh

Scottietottie

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Re: Elise's Diary
« Reply #42 on: January 16, 2008, 08:02:15 AM »
Hi Elise  :)

It sounds like the hydropool is something to look forward to then! I hope getting the portacath and the biopsy go as smoothly as they can and don't hurt too much. (I don't think they will) The portocath will definitely make things easier for the future.
It's good that you are being told all about your treatments and what is being used. Some people are not as honest with their children and that must be even more scary.
You have great parents.
I think it's great that you are giving other people encouragenment on the boards in here and telling them not to give up and stuff. Well done!!

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!

Shari

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Re: Elise's Diary
« Reply #43 on: January 17, 2008, 03:51:14 PM »
Hello Elise!!    Well,  strong medicines for a strong ailment.  Thank goodness they exist!!

     Guess what I will be doing in Febuary??   Swimming in the ocean!!  Your pool time makes me want to jump on that plane right now and head to the coast!!  But I have to wait.  Patience.....is there ever enough??? ;) ;)
   Thinking of you today sweetie! :-*  Love  Shari
« Last Edit: March 14, 2008, 12:05:43 PM by Shari »

elise

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Re: Elise's Diary
« Reply #44 on: January 18, 2008, 07:48:59 AM »
i had a muscle biopsy and a portacath yesterday.
i was put under an anastetic.
i had gas and a canula to put me to sleep.
i had a canula when i was asleep.
i had the needle in when i was asleep and they took it out today.
i got given a bravery award.
i didnt cry.
i have only just got back from the hospital.
love elisexxxxx